Rett Syndrome Research Trust

Mi chiamo Daniele Di Laudo e negli ultimi anni ho visto la ricerca sulla sindrome di Rett fare passi da gigante. La terapia genetica è diventata una realtà concreta e diverse ragazze hanno già cominciato a beneficiare dei risultati di studi nati proprio grazie al lavoro e al sostegno di RSRT. Questo mi dà speranza e mi spinge ad agire perché nessuna famiglia debba accettare la Rett come destino irreversibile.

Sostengo il Rett Syndrome Research Trust perché è l'organizzazione che sta portando avanti il lavoro per curare la Rett, finanziando e incubando programmi di terapia genica che mirano alla causa profonda della malattia. La loro leadership scientifica e la passione delle famiglie di tutto il mondo stanno accelerando il cammino verso una cura; io voglio essere parte di questa spinta, contribuendo a trasformare la speranza in risultati concreti.

Donare a RSRT significa dare potere agli scienziati e alle famiglie che stanno lavorando giorno dopo giorno per cambiare il futuro di tante bambine e ragazzi. Ogni contributo aiuta a sostenere la ricerca, a far avanzare i trial clinici e a portare terapie efficaci a chi ne ha bisogno.

Per favore, unisciti a me in questo impegno: fai una donazione oggi per il Rett Syndrome Research Trust e aiutaci a costruire un domani in cui la sindrome di Rett sia solo uno spiacevole ricordo.

Rett syndrome has touched our family deeply, and it has reshaped the way we show up in the world. Because we are fortunate to run a business that can help raise awareness and funds, we want to turn our work into a force for change. Every conversation we start, every event we host, and every dollar we raise lifts up families like ours who are fighting for a future where Rett no longer defines a life.

We believe in bold science and in the power of community. The Rett Syndrome Research Trust is driving the search for cures through genetic medicines that get to the root cause. They incubated the gene therapy programs now in clinical trials and are the trusted partner for researchers and companies around the world. Their work gives families not just hope, but a clear path toward treatments that could transform lives.

Giving to RSRT means investing in rigorous research and in the relentless commitment of Rett families everywhere. Our fundraiser is our way of amplifying that commitment. We want to bring more attention and resources to this global effort so that promising therapies can move faster from the lab into the clinic.

Please join us in supporting the Rett Syndrome Research Trust. Your donation will accelerate life changing work and bring us closer to a cure. Together we can make a real difference for children and families living with Rett.

My daughter Georgia and the Rett community deserve the world. Watching Georgia face each day with bravery and joy has shown me how urgently we need treatments that target the root cause of Rett Syndrome. I am fundraising for the Rett Syndrome Research Trust because they are the organization driving real progress toward a cure, and I want Georgia to have every chance at a fuller, healthier life.

RSRT is the largest funder of Rett research worldwide and the leader advancing genetic medicines. Their work to incubate gene therapy programs and partner with scientists and companies is exactly the kind of bold, science-driven effort that gives families like ours hope. The commitment of Rett families has carried this movement forward, and now we must stand together to accelerate the Roadmap to Cures.

When you give, you are investing in research that targets the cause of Rett, not just its symptoms. Your support helps move promising therapies through the pipeline and into clinical trials where they can change lives. For Georgia, that means the possibility of regained skills, greater independence, and more shared moments of joy.

Please join me in supporting the Rett Syndrome Research Trust. Your donation brings us closer to a cure and gives Georgia the future she deserves. Every gift matters and moves us forward.