Donate to Advance Rett Syndrome Research

“a cur” for Zoey 2025

Greetings friends, family and wonderful supporters of “a cur” for Zoey.

Zoey, now 11 years old, has rebounded nicely from her challenging 2024. She was selected as one of the Schreiber Pediatric Ambassadors for 2025. She and our family attended the Schreiber Gala, and Zoey and her mom, Deanna, were interviewed by WGAL TV, the Merchandiser paper and a local radio station. She had a good summer again as she again attended several special needs camps. She continues to progress well in school and participate in Girl Scouts, challenger baseball, adaptive skiing, and for the first time, adaptive surfing at the shore. She is an amazing girl and her smile brightens everyone’s day.

Please help us achieve “a cur” for Rett syndrome with a generous donation to our 2025 campaign. The Rett Syndrome Research Trust (RSRT) is carrying out a $40 million Roadmap to Cures initiative with a goal to have three genetic medicines in clinical trials by 2028. To date, $12 million has been raised towards that funding need, so your support is more important than ever to help RSRT carry out this bold initiative.

While RSRT has successfully motivated companies to start gene therapy clinical trials, science has progressed. Gene therapy is exciting and potentially life changing, but it requires just the right dosage as too little won’t work and too much creates problems. Other approaches such as gene and RNA-editing offer a potentially complete and more effective cure, which is why RSRT is implementing Roadmap to Cures.

To support RSRT’s Roadmap to Cures, Bonnie and I have increased our annual donation to $15,000. We value the wonderful support you have provided, and hope you can continue. If you can and are willing to increase your support that would be terrific. Either way we greatly appreciate all you have done to help our Zoey! The attached word document the link to the website as well as other information if you prefer to call or send a check. If you have any issues and need help, please contact us.

RSRT accomplishes a lot with limited resources and achieving a cure is their only mission. RSRT spends an average of 94% of funding on its research program, making it a highly efficient non-profit organization. YOU ARE MAKING A DIFFERENCE!!

There is hope but we need your help to achieve “a cur”.

Dennis and Bonnie

Rett Syndrome Research Trust

RSRT's mission is to spur and support research that is leading to a cure for Rett Syndrome and related MECP2 disorders. Rett is a devastating disorder that afflicts 350,000 children and adults around the world. It robs its victims of speech, movement, and hand use and often causes seizures, breathing abnormalities, extreme anxiety, digestive and cardiac problems. Rett is caused by a random mutation on the X chromosome and it afflicts mostly girls and women. In 2020 RSRT launched a new phase of its research called CURE 360. The name reflects the fact that RSRT has Rett surrounded with the most promising approaches that attack the disorder at its genetic core. CURE 360 also ensures that the research incubated at RSRT moves into biopharma, a critical step for advancing to clinical trials.

Every contribution, big or small, makes a real impact. Even just a few dollars can help move this mission forward and reach those who need it most.

If you can’t donate right now, sharing this fundraiser is also incredibly helpful. Thank you so much for your kindness and generosity. It means the world to me.