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Kalina Silverman / @makebigtalk on Instagram

Samuel Weidenhofer

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Khloe

Two weeks ago, Amanda Brown decided to visit the hospital because she was experiencing bouts of dizziness, light head ness, and difficulty breathing. She did not think it was anything too concerning, but due to her lifelong heart condition, she thought the best decision was to get everything checked  - just to be on the safe side. The hospital staff requested to keep her overnight, just to run a few tests and ensure everything was alright. 14 days, numerous tests, and two hospital transfers later, we have come to find out that she will require another Open Heart Surgery. It will be her third, and she will be having her mechanical OnX mitral valve replaced with a new one.

 

Amanda was born with a heart defect, and had surgery for the first time at the age of 5 to repair a whole in her ASD. She had another, bigger surgery in 2010 where her ASD was repaired a second time and mitral valve was replaced with a mechanical valve, and a pacemaker was installed to keep her heart beating. In 2020 she has a second pacemaker installed. Family and doctors alike believed that this would be the last surgery she needed, and so the situation we find ourselves in now is completely unexpected. 

 

We are blessed enough to say that we have one of the top Cardiac teams for her type of Congenital Heart Defect on board with us, and we know that her heart could not possibly be in better hands. The surgery will be done at Shands hospital in Gainesville, which is quite a ways from home and adds to the cost of this whole process significantly. 

 

Amanda is a terrific mother and a kind soul who has always done the most for her family and friends. She has always placed her daughters first in life, making sure that they have always been provided and cared for no matter what. This sudden surgery has effected them most.

 

In this difficult time, we would like to support Amanda and her daughters in dealing with this hardship. Your support would assist with household bills, the cost of care, post-op medications, medical supplies, travel, and lodging during and after the surgery.  We appreciate you listening to Amanda’s story, and are eternally grateful for any amount that can be spared in these difficult times.

Support Amanda & her girls with surgery #3.

We lost a beautiful soul on January 16th 2015, Ashleigh was killed in a tragic car accident on I4. This go fund me is to help raise money for Ashleigh's celebration of life and any other monetary things that Angela and her family will need to do. Anything and everything will help, thank you in advance for your generous contributions to this fabulous young lady and her family!

Ashleigh's go fund me

Amanda Brown

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</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/85374773_1753794355141664_r.jpeg" width="100%" />
<div>Hello to everyone seeing this. I’m Amanda and this GoFundMe is being set up on behalf of my 19-year-old daughter, Camryn (or Cam, as she prefers). Cam fell down a flight of stairs on November 6, 2024. She was taken to the ER to have her hip and head checked due to the pain she was in. The ER did a CAT scan, which led them to find a 4.5 cm mass on the trigeminal nerve and the vestibular nerve. Later, we learned that it was a trigeminal schwannoma and a vestibular schwannoma. The neurosurgeon compared several MRIs and CAT scans going back to 2017. In 2018, there was a white blip, a micro dot on the screen, which he believes is the start of the tumor. She has been seeing a neurologist for migraines, but in May of 2023, her migraines changed in the way they presented, and also her medication stopped working. We went to the ER where they gave her a CAT scan and told us that she was having cluster migraines, gave her an IV cocktail drip, and two hours later sent us on our way. Now, looking back at the CAT scan from May 2023, the trigeminal schwannoma was present and was 3.3 cm. Over the past 8 years, she has had so many tests, and no one told us about it. It has now grown to a 4.5 cm dumbbell shape, covering two nerves and causing seizures, hearing loss, eyesight problems, numbness in her face on the left side, dizziness, and passing out spells. For those of you that know me, you know I have taken her to every type of doctor, had her on so many medications, and she struggled so much for so many years, always in pain. As you can imagine, not only is she now dealing with the physical and emotional realizations that she’s going to have to have a craniotomy and have the tumor removed on January 20, but she is also realizing that there was medical negligence. Cam made the choice to shave off her curls on her own as it was the only thing about this situation she could control, so rather than have a doctor do it, she went and had it done. This is just a glimpse of what she has been through and nothing compared to the surgery and healing to come. At 3 months post-op, she will have to undergo radiation as well. The expenses have already taken a toll, and we haven’t even gotten to surgery. Cam is not able to work or go to the spring college semester. The doctors are saying 3-6 months to regain normal facial expressions and feeling. We would be grateful for help during this time. We are already living on limited budgets due to my disability. If you feel led to help, please remember that even by sharing her page, her story, sending her words of encouragement, or even just calling her, sending her pics or memes, anything is appreciated. She isn’t able to get out and do much, and we have to keep her germ-free for her surgery to happen. Any monetary donations will go towards a wheelchair recliner,shower aid devices, cold cap therapy hospital and doctor bills, medication, medical testing, physical therapy, and paying household bills and nutrition needed for recovery. 
</div>

Princess Warrior Tribe Unite-Support Cam’s Brain Tumor Fight

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Amanda Brown

Amanda Brown

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Princess Warrior Tribe Unite-Support Cam’s Brain Tumor Fight

Support Amanda & her girls with surgery #3.

Ashleigh's go fund me