Brett Sciullo

In the last week . Miss Rowan’s feeding tubes have been removed. She has been talking up a storm! She has been breathing so well on her own and talking with medics staff and letting them know what’s going on with her. We happily said goodbye to the nurses on the picu floor of children’s hospital and transferred up to a recovery wing where we have a bigger room and can entertain more guests . She is looking forward to every visitor she gets even whenever she just wants a few moments alone . There is so much more to see and do up here along with and outdoor garden she likes to visit . I have been trying to reach out individually and through this app and other social medias to express my thanks , joy , and gratitude for everyone who has helped, reached out, donated or sent vital information . But again . Thank you so much for. Everything. I got to hear my little girl laugh again . I get to tell her everything wil be okay , and exactly how many people have been praying for her and checking on her . Thank you so much , I will be posting more updates and milestones as they happen Her dad -B

Today my daughter had her first physical therapy , she was sat up . She was very dizzy because of the amount of time she was laying but she eventually leveled out . She is getting measured for a wheelchair to get to see what else we are able to do this coming week . Thank you all for the prayers and donations that will come into play after we get home and have to make major adjustments around our living space