Myotonic Dystrophy Foundation (MDF)

11 of November 2020 sounds too cold for an outside cocktail party.
So I am keeping warm running 50 K with friends. 
Some will run with me, thank you!
Some will bike or rollerblade with me, thank you!
Some will cheer me on trailside or bring me water or snacks, thank you!

Please no birthday gifts.
But...
My cousin Örn Kaldalóns is on the board of the Myotonic Dystrophy Association of Iceland. In his name I would like to 
raise money to benefit research on Myotonic,  any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about Myotonic: Myotonic is the world's largest patient organization focused solely on myotonic dystrophy. Our mission is to enhance the quality of life of people living with myotonic dystrophy (DM) and advance research focused on treatments and a cure. Learn more about Myotonic and our impact at https://www.myotonic.org

Dear friends and family:
This is the second annual OC Half Marathon that we are running to raise funding for research into Mytonic Dystrophy.

Myotonic Dystrophy is a muti-systemic inherited disease that affects at least 1 in 8,000 people in the US. It is often viewed as a muscle disease; however, individuals affected by DM may have skeletal muscle problems, heart function abnormalities, breathing difficulties, cataracts, issues with speech and swallowing, cognitive impairment, excessive daytime sleepiness, or diabetic symptoms. Any single individual is unlikely to have all or even most of these symptoms.

Our dearest friend Matt Brown and his cousin Emily Youngblood Roberts both were in the peaks of their careers, living out their dreams when the symptoms appeared. After many doctors appointments, meetings with specialists and much more they were eventually diagnosed with DM.

The funds raised for the Myotonic Dystrophy Foundation  will help bring Matt, Emily and about 40,000 other people closer to finding a cure for DM.

Any donation you could give to this cause would be so appreciated, no matter how small, any little bit helps! 

More information about Myotonic Dystrophy Foundation can be found at https://www.myotonic.org