Dear friends and family:
This is the second annual OC Half Marathon that we are running to raise funding for research into Mytonic Dystrophy.
Myotonic Dystrophy is a muti-systemic inherited disease that affects at least 1 in 8,000 people in the US. It is often viewed as a muscle disease; however, individuals affected by DM may have skeletal muscle problems, heart function abnormalities, breathing difficulties, cataracts, issues with speech and swallowing, cognitive impairment, excessive daytime sleepiness, or diabetic symptoms. Any single individual is unlikely to have all or even most of these symptoms.
Our dearest friend Matt Brown and his cousin Emily Youngblood Roberts both were in the peaks of their careers, living out their dreams when the symptoms appeared. After many doctors appointments, meetings with specialists and much more they were eventually diagnosed with DM.
The funds raised for the Myotonic Dystrophy Foundation will help bring Matt, Emily and about 40,000 other people closer to finding a cure for DM.
Any donation you could give to this cause would be so appreciated, no matter how small, any little bit helps!
More information about Myotonic Dystrophy Foundation can be found at https://www.myotonic.org
This is the second annual OC Half Marathon that we are running to raise funding for research into Mytonic Dystrophy.
Myotonic Dystrophy is a muti-systemic inherited disease that affects at least 1 in 8,000 people in the US. It is often viewed as a muscle disease; however, individuals affected by DM may have skeletal muscle problems, heart function abnormalities, breathing difficulties, cataracts, issues with speech and swallowing, cognitive impairment, excessive daytime sleepiness, or diabetic symptoms. Any single individual is unlikely to have all or even most of these symptoms.
Our dearest friend Matt Brown and his cousin Emily Youngblood Roberts both were in the peaks of their careers, living out their dreams when the symptoms appeared. After many doctors appointments, meetings with specialists and much more they were eventually diagnosed with DM.
The funds raised for the Myotonic Dystrophy Foundation will help bring Matt, Emily and about 40,000 other people closer to finding a cure for DM.
Any donation you could give to this cause would be so appreciated, no matter how small, any little bit helps!
More information about Myotonic Dystrophy Foundation can be found at https://www.myotonic.org
Organisateur
Myotonic Dystrophy Foundation (MDF)
Bénéficiaire