11 of November 2020 sounds too cold for an outside cocktail party.
So I am keeping warm running 50 K with friends.
Some will run with me, thank you!
Some will bike or rollerblade with me, thank you!
Some will cheer me on trailside or bring me water or snacks, thank you!
Please no birthday gifts.
But...
My cousin Örn Kaldalóns is on the board of the Myotonic Dystrophy Association of Iceland. In his name I would like to
raise money to benefit research on Myotonic, any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.
More information about Myotonic: Myotonic is the world's largest patient organization focused solely on myotonic dystrophy. Our mission is to enhance the quality of life of people living with myotonic dystrophy (DM) and advance research focused on treatments and a cure. Learn more about Myotonic and our impact at https://www.myotonic.org
So I am keeping warm running 50 K with friends.
Some will run with me, thank you!
Some will bike or rollerblade with me, thank you!
Some will cheer me on trailside or bring me water or snacks, thank you!
Please no birthday gifts.
But...
My cousin Örn Kaldalóns is on the board of the Myotonic Dystrophy Association of Iceland. In his name I would like to
raise money to benefit research on Myotonic, any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.
More information about Myotonic: Myotonic is the world's largest patient organization focused solely on myotonic dystrophy. Our mission is to enhance the quality of life of people living with myotonic dystrophy (DM) and advance research focused on treatments and a cure. Learn more about Myotonic and our impact at https://www.myotonic.org
Organizer
Marit Von Tetzchner
Organizer
Gloucester, MA
Myotonic Dystrophy Foundation (MDF)
Beneficiary