cheering for Aine
Our oldest of 4, 13 yr old daughter Aine has been diagnosed with a rare and aggressive soft tissue cancer called Ewing sarcoma. It's been a rough year to get to this diagnosis. Due to its rarity many doctors often mistake it for something else or just have no idea what it is. We've been traveling to fortwayne cancer institute and now with an official diagnosis we are traveling to Cincinnati children's hospital. There they specialize in pediatric sarcomas. Its going to be a rough road ahead with the travel and treatments .we have limited resources and are reaching out for help so we can give this brave girl the best chance to beat this we possibly can give. The mass is located on her radial nerve and they must take care to preserve her hand function. Travel and medical expenses are going to add up as well as keeping our vehicle road worthy. Any form of support is greatly appreciated whether its money, goods, support ,prayers or just simply sharing this. We also have a donation page set up through face book and are planning tshirt/bracelet sales as well as planning some benifet events which we will keep everyone posted on+ Read More
Aine is our 14 year old daughter. When she was 13 she got diagnosed with Ewing sarcoma. It's a bone and soft tissue cancer. She has been going through 14 rounds of chemo and yesterday Aine has officially finished her chemo. Now starts the healing process with an unexpected turn. She is having to remain in the hospital in Cincinnati for inpatient rehab. Poor girl was very very upset to have to remain in the hospital. But the doctors dont think it is safe to send her home as weak as she is do to the chemo breaking down her body. Along with that also comes with Mom having to stay with her. It's a expensive unexpected twist due to Kelly having to eat every meal out. I am starting a second job to help catch up and keep us moving but it will be a few weeks before that starts to help. We greatly appreciate any and all help we receive and as always please keep Aine and family in your prayers.
Aine's surgery went pretty good. they got clear margins on either side of what they removed so that is really good. Not everything was dead which is why they must continue doing the chemo treatments to kill anything still floating around in there. still looking at atleast 7 more treatments at roughly every other week. We have noticed as this gets farther into it she is taking longer to recover from each treatment which is normal but at the same time could make this last longer. she has been staying pretty positive for the most part.
Aine's surgery is coming up within the next couple weeks. A meeting with the surgeon we learned her tumor grew out of her radial bone. when they go in to remove it they have to take most of her bone with it. They said she will lose some functions of her hand but not sure how much till after the surgery. On top of all of this my wifes job had her resign today in order to not get to many points so she can come back when this is over. Any and all help is greatly appreciated and as always prayers are needed and also greatly appreciated. thank you