cheering for Aine
Our oldest of 4, 13 yr old daughter Aine has been diagnosed with a rare and aggressive soft tissue cancer called Ewing sarcoma. It's been a rough year to get to this diagnosis. Due to its rarity many doctors often mistake it for something else or just have no idea what it is. We've been traveling to fortwayne cancer institute and now with an official diagnosis we are traveling to Cincinnati children's hospital. There they specialize in pediatric sarcomas. Its going to be a rough road ahead with the travel and treatments .we have limited resources and are reaching out for help so we can give this brave girl the best chance to beat this we possibly can give. The mass is located on her radial nerve and they must take care to preserve her hand function. Travel and medical expenses are going to add up as well as keeping our vehicle road worthy. Any form of support is greatly appreciated whether its money, goods, support ,prayers or just simply sharing this. We also have a donation page set up through face book and are planning tshirt/bracelet sales as well as planning some benifet events which we will keep everyone posted on+ Read More
Aine's surgery went pretty good. they got clear margins on either side of what they removed so that is really good. Not everything was dead which is why they must continue doing the chemo treatments to kill anything still floating around in there. still looking at atleast 7 more treatments at roughly every other week. We have noticed as this gets farther into it she is taking longer to recover from each treatment which is normal but at the same time could make this last longer. she has been staying pretty positive for the most part.
Aine's surgery is coming up within the next couple weeks. A meeting with the surgeon we learned her tumor grew out of her radial bone. when they go in to remove it they have to take most of her bone with it. They said she will lose some functions of her hand but not sure how much till after the surgery. On top of all of this my wifes job had her resign today in order to not get to many points so she can come back when this is over. Any and all help is greatly appreciated and as always prayers are needed and also greatly appreciated. thank you
Been a rough couple days. Aine had to be flown down to Cincinnati yesterday. She was really really sick. Spent the night in ICU. She is doing alittle better today.
we are now getting ready for the second round of chemo for Aine. As of yesterday her hair was already starting to fall out. it's been very hard on all of us and is going to continue like this for the next year. any and all support is greatly appreciated. I am working 4 jobs to try and keep our Bill's caught up but that does not allow for much extra as far as these trips are concerned.