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<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/96188713_17620348229397_r.jpeg" width="100%" />
<div>Ciao a tutti,
</div>
<div>siamo Vito e Irene, genitori di Ismaele (10 anni) e di Violante, la sua sorellina più grande.
</div>
<div><br />
</div>
<div>Ismaele è nato con una malattia genetica rarissima, chiamata Trisomia del braccio corto del cromosoma 16.
</div>
<div>In parole semplici, significa che nel suo DNA c’è un frammento in più che cambia il modo in cui il suo corpo e il suo cervello crescono.
</div>
<div>Una condizione che provoca gravi crisi epilettiche, ritardi nello sviluppo e la necessità di terapie continue e altamente specializzate.
</div>
<div><br />
</div>
<div>Siamo seguiti con dedizione dal Policlinico Gemelli di Roma e, da qualche mese, anche dalla Fondazione Mondino di Pavia, dove Ismaele segue nuove terapie e una dieta chetogenica pensata per ridurre le crisi e migliorare la qualità della vita.
</div>
<div>Ogni spostamento è una sfida: da poco abbiamo ricevuto una nuova sedia a rotelle, più grande e complessa da gestire, che rende i viaggi ancora più impegnativi.
</div>
<div><br />
</div>
<div>In tutto questo, la mamma Irene sta affrontando anche una nuova battaglia: una diagnosi di artrite reumatoide, una malattia cronica e dolorosa che limita i movimenti proprio mentre deve occuparsi di Ismaele.
</div>
<div>Ma nonostante tutto, non si ferma mai — è la colonna che regge la nostra famiglia.
</div>
<div><br />
</div>
<div>Accanto a Ismaele c’è Violante, la sorellina, che lo ama con tutto il cuore.
</div>
<div>Crescendo accanto a lui, ha imparato che la fragilità può diventare forza, e che aiutare gli altri è il dono più grande che esista.
</div>
<div><br />
</div>
<div>Perché questa raccolta fondi?
</div>
<div>Abbiamo aperto questa campagna con un obiettivo di 60.000 € per due necessità fondamentali:
</div>
<div><br />
</div>
<div>Sostenere i costi delle terapie e dei viaggi tra Roma, Milano e Pavia;
</div>
<div><br />
</div>
<div>Acquistare e adattare un’auto per disabili, che ci permetta di spostare Ismaele in sicurezza, senza rischi e senza dolore per lui o per Irene.
</div>
<div><br />
</div>
<div>Ismaele è la nostra forza.
</div>
<div>Violante è la nostra luce.
</div>
<div>E noi siamo solo due genitori che cercano di fare tutto il possibile per donare loro una vita più serena, libera e dignitosa.
</div>
<div><br />
</div>
<div>Ogni aiuto — grande o piccolo che sia — è un gesto d’amore che ci avvicina a questo obiettivo.
</div>
<div>Grazie di cuore a chi sceglierà di camminare accanto a noi.
</div>
<div><br />
</div>
<div>Vito, Irene, Violante e il nostro piccolo grande eroe, Ismaele.
</div>
<div><br />
</div>
<div><br />
</div>
<div>Ismaele’s Story – Official Fundraiser (English Version)
</div>
<div><br />
</div>
<div>Hello everyone,
</div>
<div>we are Vito and Irene, proud parents of Ismaele (10 years old) and his older sister Violante.
</div>
<div><br />
</div>
<div>Ismaele was born with a very rare genetic condition called Trisomy of the short arm of chromosome 16.
</div>
<div>In simple words, it means that a small extra piece of DNA changes the way his body and brain develop.
</div>
<div>This causes severe epileptic seizures, developmental delays, and the need for continuous and highly specialized therapies.
</div>
<div><br />
</div>
<div>We are followed with care by the doctors at Policlinico Gemelli Hospital in Rome, and recently also by the Fondazione Mondino in Pavia, where Ismaele is undergoing new therapies and a ketogenic diet designed to reduce seizures and improve his quality of life.
</div>
<div>Every trip is a challenge: we recently received a new wheelchair, larger and harder to manage, which makes traveling even more difficult.
</div>
<div><br />
</div>
<div>Meanwhile, Irene, Ismaele’s mother, has recently been diagnosed with rheumatoid arthritis, a chronic and painful illness that limits her mobility — just as she needs all her strength to take care of her son.
</div>
<div>Yet she never gives up. She is the pillar of our family.
</div>
<div><br />
</div>
<div>By Ismaele’s side there’s Violante, his sister, who loves him deeply.
</div>
<div>Growing up with him, she has learned that fragility can become strength, and that helping others is the purest form of love.
</div>
<div><br />
</div>
<div>Why this fundraiser?
</div>
<div>We’ve launched this campaign with a goal of €60,000, to support two essential needs:
</div>
<div><br />
</div>
<div>Covering therapy and travel expenses between Rome, Milan, and Pavia;
</div>
<div><br />
</div>
<div>Purchasing and adapting a special vehicle for the disabled, to transport Ismaele safely and without pain for him or his mother.
</div>
<div><br />
</div>
<div>Ismaele is our strength.
</div>
<div>Violante is our light.
</div>
<div>And we are just two parents doing everything possible to give our children a life filled with dignity, freedom, and love.
</div>
<div><br />
</div>
<div>Every gesture, every euro, every share helps us move one step closer to hope.
</div>
<div>Thank you, from the bottom of our hearts.
</div>
<div><br />
</div>
<div>Vito, Irene, Violante, and our brave little hero, Ismaele.
</div>
<div><br />
</div>

La forza di un sorriso: un aiuto per Ismaele

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Valerio Pedace

Valerio Pedace

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La forza di un sorriso: un aiuto per Ismaele

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