Got good news! I’m improving!! Up next- Heart Stent.
I got the trial treatment. I’m improving. And was just told by the Mayo Clinic as long as we stay on track at December follow up. I will be approved for the heart stenting that’s needed to open up one of the veins!!!
I cannot fully explain how much every donation, share, prayer, and message has meant to my family.
I am living with fibrosing mediastinitis, an extremely rare disease that causes scar tissue to compress vital structures in my chest and restrict blood flow through my lungs. My left lung has essentially lost function, and the pulmonary veins affecting my right lung are also narrowed.
But I am still here. I am still a wife, a mother of four, and someone doing everything possible to keep showing up for the people I love while managing specialist appointments, testing, medications, travel, and the everyday reality of this disease.
If you can donate—even a few dollars—it truly helps. If donating is not possible, please share. Sharing costs nothing, but it may place my story in front of someone who can help us close this final $480 gap.
To everyone who has already supported us: thank you. Your kindness has carried our family through moments you may never fully realize. ❤️
https://www.gofundme.com/f/support-tesss-fight-against-rare-lung-disease