Paarul Prinja

Hi everyone, ​We’ve had a really busy week! Last week at our Sip and Paint event, we were visited by the team at ITV News, who did a feature on Eliyas's condition and our fundraising campaign. Check out the link below to see the coverage. ​We are so deeply grateful for all your messages of support and generous donations. Thanks to your kindness, we are now incredibly close to hitting £75,000! ​ You will never know just how much your support means to our family. Every message of positivity and every single donation takes us one step closer to getting Eliyas to the United States for the treatment that will help preserve his function and improve his quality of life. ​Please continue to share our story with your friends, family, and networks. You can also follow our journey and see our latest progress on TikTok and Instagram @EliyasTUBB4a. ​Thank you from the bottom of our hearts for standing with us! Jasmin, Hasnain and Eliyas

What an incredible weekend! We spent a fantastic day at Blend Cafe in Leeds for our Sip and Paint fundraiser, and thanks to everyone who came out and supported, we raised over £1,000! It was so much fun, but more than anything, it was deeply moving to see so many warm, familiar faces and connect with people who have been supporting us and sending well wishes throughout this journey. Seeing the community show up for Eliyas means more to our family than words can express. We want to send a special thank-you to the wonderful local businesses whose generous contributions made the event such a huge success: Blend Cafe for hosting us in such a great space Joie de Graze in Leeds for the delicious food spreads You Will Never Bake Alone for the amazing treats On top of a brilliant day, we also had an extra special visit from ITV News, who came to film a feature on Eliyas and our fundraising mission. Having our story shared on television is huge for spreading awareness and bringing us closer to our goal. Watch the full ITV feature here: https://www.itv.com/watch/news/family-raise-money-for-life-changing-treatment-to-help-fight-sons-ultra-rare-condition/b2m4kk9 Thank you from the bottom of our hearts to everyone who bought a ticket, donated, or contributed. Every bit of support brings us one step closer. Please continue to follow us and share our story Lots of love Jasmin, Hasnain and Eliyas

Just an update for everyone as Eliyas gets ready to go for a walk, we have officially passed over £60,000! We are beyond grateful for all of your help and support in reaching this milestone. I particularly want to give a heartfelt thank you to our amazing fundraisers who have taken on sponsored events and half marathons to help get us here. Your dedication, effort, and time mean the world to our family. It means so much to us that you have taken the time to read about Eliyas’s story, support us, and donate. Every single contribution brings us closer to getting Eliyas the treatment he needs in Chicago early next year. While reaching £60,000 is incredible progress, our journey isn't over yet and we still need your support to reach our final target. How you can continue to help: Share Our Story: Please continue sharing our GoFundMe link with your family, friends, and colleagues. Follow our journey and share our updates on Instagram and TikTok @eliyasTUBB4a. Thank you all so much for standing with Eliyas and keeping this momentum going! With deepest gratitude, Jasmin, Hasnain and Eliyas

We are completely overwhelmed to share that we have officially reached £50,000! To everyone who has donated, left messages of encouragement, and shared our posts across social media, thanking you simply doesn't feel like enough. Your kindness, generosity, and belief in Eliyas means more to our family than words can ever express. Because of your incredible support, we are moving closer and closer to our ultimate target. We now have a clear path forward and are preparing to travel to the United States for treatment in Chicago at the beginning of next year! While this is a massive milestone, our journey isn't over yet as we continue pushing toward our final goal. How you can continue to help us: * Follow & Share: Please continue sharing our updates across social media. You can follow our journey and share our posts on Instagram and TikTok @eliyasTUBB4a. * Pass It On: Sharing our GoFundMe link with your friends, family, or work colleagues helps keep the momentum going. Thank you all from the bottom of our hearts for standing with Eliyas and giving us so much hope. We couldn't do this without you. With deepest gratitude, Jasmin and Hasnain (Eliyas’s parents)

It’s been a little while since our last check-in, but life behind the scenes has been non-stop! Between running fundraising events, staying on top of daily physiotherapy, and navigating regular day-to-day life, our days have been completely packed. Today, we are popping in with immense gratitude and some incredibly exciting news to share. First, thanks to your overwhelming kindness and generosity, we have officially hit £46,000! Seeing this number grow leaves us absolutely lost for words. Every donation, share, and kind message brings us one step closer to changing Eliyas’s life, and we cannot thank you enough for standing by us. Because of this unbelievable support, we have a major milestone to announce: at the end of this year, we will be making our way to Chicago for Eliyas to start his gene therapy treatment! This dream becoming a reality is directly because of the thousands of incredible people who have donated, shared our posts, and supported us along the way. Your belief in Eliyas and our family has given us the chance to access this life-changing care, and we will forever be grateful. As we prepare for this next big chapter in Chicago, please continue to follow along, share our campaign, and spread the word. You can follow our journey across all social media platforms at @EliyasTUBB4a for regular updates, photos, and news as we head towards treatment. From the bottom of our hearts, thank you for being a part of Eliyas’s team. We couldn't do this without you! With all our love and gratitude, Paarul on behalf of Eliyas’s Angels & Family

Eliyas is a 16-month-old little boy, full of joy, love and determination. He has recently been diagnosed with TUBB4A related leukodystrophy, a rare and life-limiting neurological condition. As a group “Eliyas's Angels,” we are doing everything we can to give him hope. We are raising funds to access a specialist gene therapy programme in the United States that may help change the course of his condition. In support of this, we are walking 10,000 steps every day throughout July to raise awareness and vital funds for his treatment, travel, and ongoing care. We are walking for Eliyas’s future—every step, every donation, every share matters. And follow his story on Instagram https://www.instagram.com/eliyastubb4a/ and message us to join the cause Thank you Eliyas's Angels xx