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Compassion , kindness & empathy #James’s Journey

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    Hi , again due to the lack of concern , false promises and lies off another NHS specialist , I have requested the NHS Cardiologist to terminate their service regarding little James care . James test & treatment will now be fully private I intended on keeping the cardiologist until a recent appointment That decision has now changed. I have a written letter James would be having a longer heart trace , James was refused this basic simple test only yesterday . As you can Imagen this has caused me serious distress and with the lack of basic test and the dismissal I experience about my serious concerns I have for my child , this is why I am here today . It feels like a bad dream and I’m loosing my mind , because as a mother who just wants some answers , stop little James suffering and to move forward , even the most basic things I am refused. It has been more than frustrating and difficult to process. Onwards and upwards with Spire private hospital. I can only do that with this incredible support on James GFM .. I am deeply grateful to you all Thankyou Neisha - Louise x
    Hi , James has a right to privacy as he is a child , however the GFM has to be transparent. I thankyou all for your donations , we are ready to go with the Spire hospital at Manchester. James Bare minimum NHS Specialist and I quote said ‘ James needs a fresh set of eyes ‘ We have been left with no choice but to do this. We thankyou again from our hearts and hoping and praying we get answers to stop these awful episodes and other issues James experiences for now 31 months. A return to normal life is a dream and a goal , where I can work and James can get back into education Thank-you Neisha -Louise
    Hi , James has a right to privacy as he is a child , however the GFM has to be transparent. I thankyou all for your donations , we are ready to go with the Spire hospital at Manchester. James Bare minimum NHS Specialist and I quote said ‘ James needs a fresh set of eyes ‘ We have been left no choice but to do this. We thankyou again from our hearts and hoping and praying we get answers to stop these awful episodes & other issues James experiences for now 31 months. A return to normal life is a dream and a goal , where I can work and James can get back into education. Thank-you Neisha -Louise
    Hi , as people we will be aware , the costing of James private test / treatment will be very expensive Why little James has been really suffering and struggling since March 2024 , it will be worth every single penny to get some answers , so thankyou from our hearts. I desperately need to get all his issues under control as quickly as possible , not only to stop the chronic pain and his other issues, I really need to get James on the path to be a normal healthy teenager , so he can live a normal life, he is simply unable to do for so long I can’t find the right words to describe how grateful and thankful we are. You are giving us hope , and a light at the end of a very long tunnel. We appreciate every single one of you , and I am deeply grateful for your kindness Thankyou Neisha Louise x
    Hi, Thankyou again for donating. It means everything to us. Little James says thankyou too and said everyone is very kind. James has now been discharged from his 2 specialist on the NHS James last saw his neurologist on the 10th of December 2024 It simply is not good enough, the lack of care , lack of test , non follow ups and lack of concern for James. This has gone on far too long. Afrid alone that is an eating disorder that his illness has created , is a life threatening and an extremely concerning condition. James also has other additional health problems that need addressing as quickly as possible. •Severe chronic pain in his head •Severe chronic sickness •Seizure type fitting •Involuntary moments during episodes and in his sleep •Heart pauses with 2.1 blocks 3.1 blocks •Intense Déjà vu •Emotional out burst •Blackouts •Fainting / very unwell episodes •Lethargic after episodes •Long recovery periods Since the 14th of March 2024 James in all has had a combined 61 episode. Bare minimum has been done for James in all this time by the NHS Every penny will go to helping James to get the answer he desperately needs through Spire private hospital in Manchester We thankyou you again from our hearts x
    Hi , I have had to Increase James GFM , test are very expensive I was holding out on hope , James NHS specialist would do something ..he did not ! And he was more than happy I am going private for James James story will be published very soon on Wigan today page I thank everyone again with my whole heart , my goal is to get James back to full health as quickly as possible I am extremely grateful for your kindness …lv from Neisha - Louise and little James xx
    Hi , thankyou for your kind donations . I am now using the Spire hospital in Manchester , and I have secured James’s 1st appointment. I cannot thank you enough . To be able to start the process , it is a huge relief and a step forward we so desperately need. There are no words enough to describe how grateful I am x Many many thanks love from Neisha and little James x