Paris Hilton

Jimmy  Darts

Flavor Flav

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Kalina Silverman / @makebigtalk on Instagram

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Patriotic Kenny Foundation

Pattie Gonia

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Samuel Weidenhofer

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Peter Bond

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Ask Uncle Jack

Amy Jandrisevits

FowlMouthFarmer

Tess Bohne

Latonja and Taylor Richardson

Officer Richard Craig

<p>My name is Dean Ibbotson. I was born with Nemaline Myopathy, a rare and little understood muscular condition that shapes nearly every part of my life. Simple tasks that many people take for granted can be exhausting and sometimes impossible for me. I want to share my experience to lift the veil on what living with this disease really looks like and to remind others that behind the medical name there are real people with hopes, challenges, and strengths.</p>
<p>Awareness matters because understanding leads to support, research, and solutions. That is why I am supporting A Foundation Building Strength. Their mission to find treatments for Nemaline Myopathy gives people like me a real reason to hope. When researchers can study our condition and develop therapies, it changes futures — making daily life easier, extending independence, and opening new possibilities for families and patients.</p>
<p>Every act of support moves us closer to answers. Your donation helps fund research, patient resources, and the scientific work needed to turn hope into tangible progress. Even if you have never heard of Nemaline Myopathy before, your belief in our potential to find treatments means more than words can say.</p>
<p>Please join me in supporting A Foundation Building Strength. Give what you can, share this page, and help bring awareness and momentum to the search for treatments. Together we can change lives and build a stronger future for everyone affected by Nemaline Myopathy.</p>

Living Loud for Nemaline Myopathy

<div>Hi - thank you for looking at our GoFundMe. We are raising money to help Demi (age 25) with his medical and living expenses, while he is undergoing treatment for his stage 4 cancer and unable to work. As you might know, Demi was diagnosed with a very rare, aggressive small cell testicular cancer that has metastasized to his bones. He is currently receiving in-patient chemotherapy and radiation at Beaumont. Any amount will help Demi and is so very much appreciated. 
</div>

Demi's Fight Cancer Fund

Marilyn Ibbotson

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Marilyn Ibbotson

Marilyn Ibbotson

Featured causes

Living Loud for Nemaline Myopathy

Demi's Fight Cancer Fund

About me