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I didn’t plan having to raise this long, I took a pause knowing disability would come. I have every Drs support but it still takes time. Bills don’t care though

    Living with Variegate Porphyria has changed every part of my life. This fundraiser helps with lifelong treatments, medical bills, and daily expenses while also bringing awareness to this rare disease that most people have never even heard of. 💜

    Support Leah’s Fight Against Variegate Porphyria

    Support Leah’s Fight Against Variegate Porphyria

    65% complete

    Helping cover care, medications, therapy, and daily needs so I can focus on healing and keep moving forward.

    Support Leah’s Fight Against Variegate Porphyria

    Support Leah’s Fight Against Variegate Porphyria

    65% complete

    In 2017 I was carefree, always giving and spreading joy. Variegate porphyria humbled me and changed everything. I’ve never had to ask for help before, but here I am. Any amount or a share means so much. Thank you for your support. 💜

    Support Leah’s Fight Against Variegate Porphyria

    Support Leah’s Fight Against Variegate Porphyria

    65% complete
    I’ve always been a giver. I’ve been lucky enough to live a life where I could help others—no overwhelming bills, strong work ethic, good-paying jobs, and great health. Helping people wasn’t just something I did, it was who I was. But life changed. I was diagnosed with a rare and potentially deadly disease called Variegate Porphyria. Looking back, it also took my mom and grandmother—though none of us knew why at the time. My health declined faster than I expected. I had to undergo a hysterectomy at a relatively young age, and the medical bills quickly piled up. Working became harder… and then impossible. So, in true “me” fashion, I went back to school at 46. I loved it. I built a business I was proud of. And then, just as quickly, Porphyria took that too. The chemicals I was exposed to were damaging my body. I’ve now had to walk away from both my career and the business I worked so hard to create—all while going deeper into debt just trying to survive. I’ve started the disability process, but it’s been slow and frustrating. I applied at the end of 2024 and have already been denied once, which I’m told is common. Things are moving… just very slowly. In the meantime, I’m upside down. My credit cards are maxed out. My bank account is negative. I even held an auction recently just to stay afloat. I do have support—Thomas has been incredible—but it’s hard not to feel guilty adding pressure to someone who already works so hard. So here I am, asking for help. Anything you can give means more than I can express. And if giving isn’t possible, sharing this would mean just as much. If you do share, a kind word would go a long way in helping this reach real people beyond the algorithms. With love, Leah