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 In 2016, I was diagnosed with Lyme Disease after 3 horrific years of medical gaslighting and misdiagnosis.
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 My journey to reclaiming parts of my life I thought I’d lost forever has lead me to aimoing to become the first black woman in history to ski solo and unsupported to the South Pole.
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 In order to qualify for that I’m heading off to Greenland in August 2026 for an expedition crossing the icecap from the east to the west.
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 I’ll be raising money for Lyme Disease UK, and any donation will help make an impact. Thank you so much for your contribution to this amazing cause that means the world to me.
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 More information about Lyme Disease UK: Lyme Disease UK is a UK registered charity which focuses on raising awareness of the disease and supporting those living with Lyme disease and associated tick-borne illnesses.
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My Endeavour: Crossing Greenland for Lyme Disease Awareness

<div>For the last two years Maia  has been bedridden, unable to do the things she loves, draw, read, listen to music, go out and enjoy nature, spend time with and talk to family and friends and making plans for her future or work. Maia has chronic Lyme disease with co-infections, likely contracted in her teenage years and reactivated by a Covid infection, causing a weakening of her immune system. This debilitating disease is caused by the bite of an infected tick and if you are lucky, a bull’s eye rash develops, allowing for tests to be carried out and immediate treatment to be administered. However, sometimes there is no rash and unexplained symptoms develop over time until the disease becomes chronic and increasingly difficult to treat. Many doctors are unaware of the devastating nature of the infection as it settles in the body, wreaking havoc and causing painful symptoms and doctors will only treat those, not addressing the root of the problem. The long-term nature of this affliction and the lack of education and awareness by the larger medical community means that only Lyme literate doctors, mostly in private medical care, understand and can treat it, but at a high cost. So far, Maia has been lucky, part of her IV antibiotic treatment has been funded, and we need your help and generosity to continue. We pledge that any money not used will go to the Lyme Disease UK charity. Please donate and/or share. 
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<div>Thank you, warmly.
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<div>Hélène, Jason, Jake and Tristan.
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Continue to finance Maia's Lyme treatment and her recovery

<div>Help us raise money so that Connie can receive vital treatment to stop her immune system attacking her body.
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<div>For over a 18 months she hasn't been able to swallow properly and since July 2023 has been paralysed. She has terrible seizures lasting over an hour. The beginning of this started over 4 years ago, when she was 12.
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<div>Connie has been diagnosed with PANDAS syndrome. (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus). This is when the immune system causes inflammation which attacks the brain. Small proteins are produced as an inflammatory response which latch onto the brain cells causing them to not function. This has led to Connie to have lock jaw, inability to swallow and paralysis.
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<div>In addition to this, she has POTS (postural orthostatic tachycardia syndrome). This makes her heart beat too fast or suddenly slow down, resulting in her fainting. During one of her fainting spells she hit her head and knocked herself unconscious.
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<div>This condition has become life threatening. She could choke during a seizure and it is impossible to intubate her as her jaw is clamped shut. Connie is also in constant pain all over her body. Her jaw is always in spasm giving her a constant migraine.
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<div>Her private PANDAS specialist advised Connie to get treatment so that she has a chance of living a full life. However, before we do that we have to get her jaw open and get her swallowing again so she can improve her nutrition.
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<div>Before she became critically ill, Connie was a 15 year old full of life. She enjoyed sports, rock climbing, trapeze and silks, dancing, music and youth clubs. She was always involved in school activities with a passion for drama and an interest in environmental activities. She was chosen to represent the school as a changemaker for sustainability in education. Connie's dedication towards helping others is undoubted.
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<div>COVID changed everything. Connie developed tics, seizures and muscle locks, causing her great pain. Her jaw and mouth muscles locked, giving her dysphagia (the inability to swallow). After being on feeding tube for over a year, her health has deteriorated with the lack of normal food and nutrients entering her body. She is not tolerating her soya feed so well and her body at times rejects it, making her sick. This means she doesn't always have the prescribed amount to keep her body functioning well. As a result, she has big seizures and ends up in hospital to be stabilised. She cannot have feed down her tube during a seizure. Every time this happens she loses weight and becomes weaker and weaker.
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<div>With her immune system at an all time low, a simple infection could lead to even more deterioration.
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<div>So we plea with everyone reading this to donate to Connie's life-saving fund so we can help her live a full life again, leading the life of a well 17 year old. She needs this now more than ever to give her a chance at making a recovery.
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<div>Your donations will assist with the costs of specialised medical treatment for her rare PANDAS syndrome and all the other issues which have developed from it. This will include neuro physio therapy to help her open her jaw and learn to swallow again and to help her get back on her feet and walk again. If it is appropriate, treatment with IVIG for PANDAS. However, full diagnostics have to be done before that decision is made.
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<div>Thank you kindly.
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<div>Connie &amp; all her family and friends.
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Life saving medical treatments for Connie

<div>Hi my name is Maddie, I am fundraising for my trip to Birmingham.
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<div>Recently, I traveled to Dublin to audition for British Youth Music Theatre. They are a performing arts company based in England and they produce several new original musicals every Easter and Summer. They produce the shows over 2 weeks of intensive rehearsals.
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<div>Following a successful audition I have been offered a place in their Easter production called "Our girls, our game". That will take place in Birmingham and be performed in the Birmingham Hippodrome.  
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<div>The fees pay for 14 days of accommodation, pastoral care, food and drink and most importantly, training from West End professionals! And at the end of the production, I will receive a level 8 qualification in music theatre in production from Trinity London!!
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<div>I have been working extremely hard this year to year improve my CV by working on my singing, acting and dancing. I've been lucky enough to get leading lady roles in various musicals this past year.
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<div>To perform on the West end is a lifelong dream of mine, and taking part in this production is a massive stepping stone into helping me get where I want to be. Any donation no matter how small is hugely appreciated and will help me on my way. Thank you.
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Send Maddie to Birmingham Hippodrome

Helene Pavey

Arts and culture

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Helene Pavey

Helene Pavey

What they care about

Featured causes

My Endeavour: Crossing Greenland for Lyme Disease Awareness

Continue to finance Maia's Lyme treatment and her recovery

Life saving medical treatments for Connie

Send Maddie to Birmingham Hippodrome

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