ITS HARD BUT WE ARE MAKING IT
I know it’s been a while since I updated. I have gone back to work part-time, and I am so lucky to have the people behind me that I do. Those who have been through this, those who can understand where I’m coming from, and those who may not have been through this but can still find compassion and empathy and lend me strength when I need it.
I am trudging forward, putting 1 foot in front of the other, and some days it’s far harder than others, but we are making it through to the other side.
One more chemo to go before radiation begins! More than half way there definitely living on a prayer. As someone who has Cerebral Palsy I have always lived a grateful life- but now… wow. Thank you will never be enough.
That being said I want to share some thoughts, I’ve had a lot of thinking time- So, if you have someone in your life going through this, maybe you have a little insight and you know that they’re grumpy demeanor, they’re suddenly quiet nature, or their desire just to be alone and lick wounds, they never asked for but FEEL like they are carrying alone, even with so many people beside them is “normal”.
Cancer is the loneliest thing I have ever experienced, but also has shown how loving and caring people truly are. I would love to say that I have faced this with all smiles and that it has been smooth sailing. But there have been lots of days where I’ve cried myself to sleep or cried myself awake because it hurts, not just on the outside but on the inside. There are things that I can’t explain even to those who know me best and love me even in the moments when I find it hard to love myself.
Cancer changes who you are. It changes your body. It changes your spirit. It changes your outlook on life. I’ve said many times, this is the curveball none of us expected and in every way from every angle IT SUCKS. I do however find myself now appreciating things I never even bothered to look at before, and maybe that’s the purpose. Maybe that’s the reason. I know now that life is not infinite, that time is precious. This realization is bother terrifying and in a way beautiful.
Live the time that you are given. There is only now.
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So many people in my life keep telling me “It’s only temporary.” and yes, this piece of the journey is only temporary. My hair will grow back… I will be healthy again, life will move forward. But the reality is cancer is not temporary and neither is the impact that it has on the warrior it invades or the lives of those around her who will also be forever changed.
Who I see in the mirror will never be who I saw six months ago, before all of this started. I’m used to battle scars. but the new ones I carry tell a story that could’ve taken my life, pieces forever gone only phantoms remain-
where there were once routine exams, there will now be fear, and what ifs- every ache, every pain in the back of your head, will ask if it’s cancer?! you will see fellow warriors on the street and know that they are fighting a battle, not just that the world can see, but one that they can’t, and that hopefully many will never understand. Silent solidarity in a club you never wanted to be in, tears that no one else sees, that never seem to grow less. Grieving a self, a life, and a body that once was but never will be again. Missed opportunities taken- left to pick up pieces that don’t fit quite right together again.
But still we battle on, fight for those who we love and a life that even though may seem dim right now is worth it. Forever changed but still worth living.
Self love and acceptance are a struggle all their own during this fight learning to love the new you with a respect and gentleness that is both forgiving and fierce. Look in the mirror and see not what is broken but was has survived!
Breathe deep. deeper than you even know how, and when you exhale, just remind yourself you only FEEL alone, you are not alone! Let those feelings and fears come, welcome them, embrace them but do not let them consume you or accompany you too long on this journey. They are too heavy to drag along, you need your strength to fight and to live!
Which leads me to thank you, Thank you again to everyone who’s donated, and as this GoFundMe prepares to come to an end, just know that your love and support and prayers and everything good that you have surrounded me with has changed me and taught me that even in the worst of times, if you look to those around and you surround yourself with the right people, you can find hope and strength and someone to lean on.
I cannot wait to ring the bell. I cannot wait to walk out of the radiation office for “the last time.” to say goodbye to the immobilizing leg pain and horrendous side effects ( which, honestly, I’m grateful for because they’re saving my life). To be able to sit beside (not inside) this all again and look at it as something that I went through and not something that I’m going through.
(I’ll leave this “open”, only so that when this is finally over, I can come back and scream that we won, that I won with the help of all of you.)
If you find yourself in this battle, one final thought, some people may not react how you expect them to, but the right people will show up and step up. Those are your people.
Thankful and blessed xoxo
“How do you smile through it?!”
Well it takes as many muscles to smile as it does to frown so it’s energy better spent.