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Emily Remisz

<div>My name is Emily. I live in Switzerland, where I run a practice for medical massage. I have been dedicated to manual therapy for many years. Privately, I am the aunt of my brave nephew. I started this fundraiser to support him in his fight against his illness.
</div>
<div>Michał is Fighting Duchenne Muscular Dystrophy (DMD) – And He Needs Your Help
</div>
<div>Together for Michał – Fighting DMD
</div>
<div>Michał has been diagnosed with Duchenne Muscular Dystrophy (DMD), a rare and progressive genetic disorder that leads to irreversible muscle loss.
</div>
<div>He was born a healthy, energetic child. Until the age of four, he developed just like any other child – running, laughing, and enjoying his childhood. But one morning, he suddenly couldn’t stand on his leg. That’s when everything changed.
</div>
<div>What followed was a long journey – from one doctor to another, from one hospital to the next. Eight long months of uncertainty, until we finally found specialists in Poznań, Poland. There, we received the devastating diagnosis: Duchenne Muscular Dystrophy – a progressive, incurable muscle disease. It was a shock. My cheerful, full-of-life nephew – now facing a lifelong battle.
</div>
<div>Common symptoms of DMD include:
</div>
<div>Progressive muscle weakness
</div>
<div>Enlargement of the calf muscles
</div>
<div>Fatigue
</div>
<div>Muscle pain
</div>
<div>Toe-walking
</div>
<div>Difficulty climbing stairs
</div>
<div>Frequent falling
</div>
<div>Breathing difficulties
</div>
<div>Learning difficulties, especially short-term memory
</div>
<div>Scoliosis (curvature of the spine)
</div>
<div>Problems with sitting, standing, and walking
</div>
<div>Waddling gait
</div>
<div>Trouble running or jumping
</div>
<div>Balance issues
</div>
<div>How DMD is affecting Michał’s daily life right now:
</div>
<div>Even at this stage, Michał already needs help with many everyday activities:
</div>
<div>Getting out of bed
</div>
<div>Getting dressed
</div>
<div>Brushing his teeth
</div>
<div>He needs assistance getting into a car – he can’t even open the car door by himself.
</div>
<div>Simple tasks like opening a bottle or a snack package are difficult for him.
</div>
<div>Because of his condition, Michał now attends a small local school in the village of Piecnik, which offers a safer environment. Every injury could drastically worsen his condition.
</div>
<div>As long as it’s possible, we want him to continue attending school – to stay connected with other children and maintain social interaction.
</div>
<div>However, he can’t use the school bus on his own – he needs help getting in and out. He also needs assistance carrying his school backpack. During school trips, he already relies on a wheelchair.
</div>
<div>A powered wheelchair costs 4,900 CHF (22,000 PLN).
</div>
<div>At home, Michał also needs support with:
</div>
<div>Getting up from the floor
</div>
<div>Climbing stairs
</div>
<div>Opening doors
</div>
<div>Dealing with balance issues
</div>
<div>From the bottom of my heart, thank you for your support.
</div>
<div><br />
</div>
<div>– Emily, Michał’s aunt
</div>
<div><br />
</div>
<div>Michał (8) is my nephew, and he has his whole life ahead of him. That’s why I’m doing everything I can to give him the most comfortable and fulfilling life possible.
</div>
<div>This also includes treatment and care for his condition – Duchenne Muscular Dystrophy (DMD).
</div>
<div>Duchenne Muscular Dystrophy is a rare genetic disorder that causes progressive and irreversible muscle degeneration. It is one of the fastest-progressing neuromuscular diseases affecting boys.
</div>
<div><br />
</div>
<div>Michał Needs Medical Support
</div>
<div>Michał is fighting every day against the progression of muscle degeneration. The disease has advanced to the point where he can no longer walk.
</div>
<div>An operation on his Achilles tendons is urgently needed – due to muscle contractures, Michał can no longer properly move his legs.
</div>
<div>The surgery costs 17,700 CHF.
</div>
<div>In addition, Michał needs:
</div>
<div>Intensive rehabilitation at least 5 times a week (700 CHF per month)
</div>
<div>Specialized medical care (approx. 500–600 CHF per month)
</div>
<div>Rehabilitation equipment (orthoses, wheelchair, special care bed) (approx. 400 CHF per month)
</div>
<div>Regular check-ups with neurologists, cardiologists, orthopedists, endocrinologists, pulmonologists, psychologists, dietitians, and speech therapists (approx. 700–1,000 CHF per month)
</div>
<div>A Spark of Hope
</div>
<div>There is a glimmer of hope – the opportunity to participate in a clinical trial in Belgium, led by one of Europe’s leading DMD specialists.
</div>
<div>This chance could be life-changing for Michał – but the costs for travel, accommodation, and medical support are high: 5,000–6,000 CHF (one-time cost).
</div>
<div>The Most Expensive – and Most Promising – Treatment
</div>
<div>The most expensive, but also potentially most promising treatment is a stem cell transplant from Michał’s father. This therapy can slow down the progression of the disease. It is a form of gene therapy, and unfortunately, it is not available in the country where Michał lives.
</div>
<div>That’s why we are raising funds or looking for a sponsor in the United States, where such procedures are performed.
</div>
<div>The cost of a single transplant is approximately 3,000,000 USD.
</div>

Support Michał in His Fight Against DMD

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Emily Remisz

Emily Remisz

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Support Michał in His Fight Against DMD

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