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<div>
 Help My Wife Regain Her Freedom
</div>
<div>
 <br>
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<div>
 Hi everyone,
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<div>
 <br>
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<div>
 I'm setting up this fundraiser for my wife.
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<div>
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<div>
 For the past 10 years, my wife has been living with ME (Myalgic Encephalomyelitis), severe abdominal pain caused by adhesions, and POTS (Postural Orthostatic Tachycardia Syndrome). Her health changed dramatically after serious complications during surgery. Although she fought hard to rebuild her life, she has never fully recovered.
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<div>
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<div>
 Over the last 12 months, her ME has progressed to a severe level. She now spends most of her life confined to bed, as even the smallest amount of physical or mental activity can leave her with debilitating exhaustion and a significant worsening of her symptoms. Everyday tasks that most people don't think twice about, such as getting dressed, taking a shower, or leaving the house, can trigger post-exertional malaise (PEM), the hallmark symptom of ME, leaving her feeling desperately ill for days or even weeks afterwards.
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<div>
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<div>
 Alongside this, she also lives with severe abdominal pain from adhesions and POTS, which makes being upright difficult and adds to the physical strain of everyday life. Together, these conditions have taken away so much of the life she once had.
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<div>
 Something as simple as going for a walk, visiting family, or enjoying a trip out together has become almost impossible. Most days are spent looking out of the window, wishing she could be part of the world again.
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<div>
 We're raising money to buy her a powered wheelchair.
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 A manual wheelchair isn't a suitable option because the physical effort of pushing herself would make her ME significantly worse, and the repetitive movements would also aggravate the severe pain caused by her abdominal adhesions. A powered wheelchair would allow her to conserve the little energy she has, helping her leave the house while reducing the risk of triggering severe crashes.
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<div>
 This isn't about convenience. It's about giving her back a part of her life that illness has taken away.
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 A powered wheelchair would mean she could:
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 • Spend time outdoors without making herself dangerously ill.
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 • Enjoy days out with our family instead of watching from home.
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 • Attend appointments with less physical strain.
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 • Experience some independence and freedom again.
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 Like many families living with long-term illness, we simply can't afford the cost of a suitable powered wheelchair on our own. Every donation, no matter how big or small, brings us one step closer to making this possible.
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<div>
 If you're unable to donate, sharing our fundraiser would mean just as much.
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<div>
 Thank you for taking the time to read my wife's story. Your kindness, generosity and support mean more than we can put into words.
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<div>
 <br>
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<div>
 With heartfelt thanks,
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<div>
 <br>
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<div>
 Her husband
</div>

A Power Wheelchair to Help My Wife Experience Life

<div>TW: caregiver abuse, s*icidal ideation 


</div>


<div><br />


</div>


<div>Mari has Severe Myalgic Encephalomyelitis, and is trapped in a dangerous situation with a highly abusive “caregiver” who she is completely physically dependent on. 


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<div><br />


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<div>The ongoing abuse is keeping Mari in a Severe state with no chance of recovery. 


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<div><br />


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<div>Severe ME is a devastating disabling multisystemic neuroimmune disease often described as a ‘living death’. Despite this grave level of illness, many housebound patients like Mari lack the care and symptom-relieving treatment necessary to reduce preventable suffering.


</div>


<div><br />


</div>


<div>There is no cure or licensed treatments for ME. Patients with severe ME require aggressive rest, assistance with daily needs, and a safe, stress free home environment to give their health a chance at stabilising. 


</div>


<div><br />


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<div>Mari is completely reliant on daily care to meet her survival needs, but she’s been experiencing ongoing neglect, a lack of adequate care, and extreme abuse from her caregiver. She has been isolated in this abuse ever since the onset of her ME, which rapidly deteriorated her into a Severe state which she’s been suffering in ever since. Without her caregiver she wouldn’t be able to access her daily survival needs and would immediately begin to deteriorate further from the added exertion, but staying with this caregiver she is unable to improve her health along with experiencing daily suicidal ideation due to the ongoing abuse, therefore she ultimately also will not survive unless she manages to escape this horrific situation soon.


</div>


<div><br />


</div>


<div>Mari does not have any other friends or family who are able to help care for her, and adequate government funded care is no longer an option for the majority of disabled Canadians due to the entire medical field being severely understaffed. There are also no shelters that can provide safe accommodations for a Severe ME patient. 


</div>


<div><br />


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<div><strong>Mari has been trapped and suffering in this dangerous situation for over half a decade without any realistic way out. </strong>


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<div><br />


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<div>The intensity of this abuse is rapidly increasing, and Mari is in PHYSICAL DANGER. Mari has been physically attacked and seriously injured by her abuser several times. 


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<div><br />


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<div>Police involvement has only caused further trauma for Mari and has also caused her to contract illness as they do not mask. Emergency services cannot intervene and should not be contacted. 


</div>


<div><br />


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<div>Community support is our last hope for Mari!


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<div><br />


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<div><strong>— If we can successfully reach HALF of this fundraising goal by the end of MARCH 2026, Mari will finally have the opportunity to escape. </strong>


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<div><br />


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<div><strong>— The other half must be raised by the end of SEPTEMBER 2026 so that Mari has access to care and medical needs once she moves out.</strong>


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<div>Mari desperately needs ongoing funds for secure housing, moving expenses, healthy and accessible food, household items, medical supplies and paid care. 


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<div>The goal is to get Mari to safety within the next year, and reduce the extreme mental and physical strains of this ongoing trauma in the meantime. 


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<div><br />


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<div>The target fundraising goal is what is needed for Mari to escape, successfully live alone and maintain her health and nutrition both before and after. All costs in CAD:


</div>


<ul>


<li><strong>$33.8K for 12 months of paid care (this equates to 2.5 hours of care/day at $38 per hour) so that Mari can survive on her own.</strong>


</li>


<li>$7.7K for specialised accessible moving services.


</li>


<li>$3.6K for 6 months meal delivery service.


</li>


<li>$6K for 12 months basic needs including groceries and household items.


</li>


<li>$3K for 6 months prescriptions and medical supplies. 


</li>


<li>$10.4K for a year of essential medical appointments including transportation. 


</li>


</ul>


<div>The total goal is $64,500 CAD ($46,789 USD/£34,690)


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<div><br />


</div>


<div><br />


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<div>Adequate financial support would give her a chance to find a new living situation and become independent from her abuser so she can finally have a chance to stabilize and improve her health. 


</div>


<div><br />


</div>


<div>Mari is deeply appreciative of all the support she has received and continues to receive, and is holding onto hope that our community will continue to support her and make this goal a reality.


</div>


<div><br />


</div>


<div>Thank you so much for taking the time to hear Mari’s story and for contributing to her recovery.


</div>


<div><br />


</div>


<div>NB it is essential Mari stays anonymous for their own safety hence why there are no photos of Mari and we aren’t using her real name. Numerous people who are helping with these fundraising efforts know Mari personally and can vouch for her and the reality of her situation. 


</div>


<div><br />


</div>


<div><strong>More information on myalgic encephalomyelitis:</strong>


</div>


<div>Severe ME is often described as a living death and despite this extreme level of illness many housebound patients like Mari still lack the homecare, support and symptom relieving treatment necessary to reduce preventable suffering. To learn more about ME please check out <a href="https://www.meaction.net" target="_blank" rel="noreferrer noopener"></a><a href="https://www.meaction.net/" target="_blank" rel="noreferrer noopener"></a><a href="https://www.meaction.net/" target="_blank" rel="noreferrer noopener"><a href="https://www.meaction.net/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.meaction.net/</a></a> 


</div>

Help a Severe ME patient safely escape her abuser

<div><strong>Daryna is a 29-year-old woman living in a war zone in eastern Ukraine, fighting severe ME/CFS, Myasthenia Gravis, and multiple other comorbidities while enduring constant bombings and navigating severe disability alone</strong>. <strong>She is bedbound, coordinating complex medical needs without adequate support, and in urgent need of life-saving treatment and evacuation to safety.</strong>
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<div>We are asking for your ongoing support to cover Daryna’s medical costs for Myasthenia Gravis (MG) and Myalgic Encephalomyelitis (ME/CFS).
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<div>Daryna urgently needs to evacuate Ukraine after approximately 20 drone strikes in close proximity to her apartment building in late November caused massive collateral damage to the building as well as direct damage to surrounding areas.
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<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/92662637_1765996279322703_r.jpeg" width="100%" /><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/92662637_1765996328197839_r.jpeg" width="100%" />
<div><em>Aftermath of November 17th shelling to Daryna's building and neighboring buildings</em>
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<div><br />
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<div><strong>Donations will exclusively go to medical requirements and essential daily care like medicine, doctor’s appointments, and blood tests, as well as to helping Daryna find a safer place to live.</strong>
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<div><br />
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<div>Daryna first began experiencing symptoms in late summer 2021. Finally, after three years of endless doctor visits, tests, and misdiagnoses, she was diagnosed with both MG and ME/CFS in late 2024, with other suspected comorbidities.
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<div><br />
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<div>Her condition has only continued to deteriorate due to lack of specialized care, ongoing war stress, housing and financial instability, familial and medical abuse, and inability to access proper treatment in Ukraine.
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<div><br />
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<div>Daryna is 99% bedbound. She struggles to perform even basic daily functions - cooking, eating, bathing, and communicating all require immense effort and often trigger severe crashes that leave her unable to function for days. She desperately needs consistent help with daily survival tasks, but this support is minimal and unreliable.
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<div><br />
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<div>Because she has severe ME/CFS, Daryna experiences PEM (post-exertional malaise / post-exertional neuroimmunological exhaustion) - severe immune flare-ups after any activity. She has extreme sensory hypersensitivity, requiring 4-12 hours daily of complete sensory deprivation (eye mask, earplugs, darkness) to recover from minimal activities like eating or using the bathroom.
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</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/92662637_1765996595658814_r.jpeg" width="100%" />
<div><br />
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<div><strong>She has left her apartment only 3 times in the past 6 months</strong>; twice for doctor appointments and once to reach the bomb shelter during the shelling.
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<div><br />
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<div>In addition to ME/CFS and Myasthenia Gravis, Daryna has multiple severe comorbidities: immune deficiency (chronic EBV reactivations and susceptibility to infections), autonomic dysfunction (POTS - affecting heart rate and blood pressure regulation), mast cell activation syndrome (MCAS - causing severe reactions to everyday triggers), and secondary adrenal insufficiency (her body doesn’t produce enough cortisol). These conditions create a dangerous feedback loop where each worsens the others.
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<div><br />
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<div>Most recently, <strong>Daryna has begun experiencing severe breathing problems</strong> - she repeatedly stops breathing during sleep and rest. This is a dangerous escalation of her myasthenic crisis (from MG) that requires urgent treatment.
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<div><br />
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<div>Daryna manages all medical coordination completely alone while bedbound. While her family provides some practical help (food and occasional logistics), she has no consistent caregiving support or local network to help with appointments and daily medical needs. Every medical decision, every doctor call, every medication coordination must be handled by her while experiencing severe post-exertional crashes.
</div>
<div><br />
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<div>Daryna’s medical needs lead to severe financial strain because while ME/CFS exists in Ukraine’s medical classification system (ICD-10), there are no doctors who understand the condition and it does not qualify for disability benefits. Essential MG medications like IVIG, which are typically covered in the US and EU, must be paid for privately, as must all other medications, doctor visits, and medical tests.
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/92662637_1765996775631516_r.jpeg" width="100%" />
<div><em>Daryna's last IVIG treatment in September was completely paid out of pocket, with help from fundraising </em>
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<div><br />
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<div>Daryna has been approved for a small disability payment for MG ($50/month), but bureaucratic delays mean it’s unclear when payments will begin, and this amount wouldn’t meaningfully cover her medical expenses regardless. Her total monthly medication costs are approximately $500, not including periodic IVIG treatments ($3,500 each). A friend helps contribute toward Daryna’s monthly expenses, covering only a portion of her rent and a small fraction of her medical costs, leaving significant gaps in her ability to afford treatments and medications.
</div>
<div><br />
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<div>Daily bombings and air raids make baseline recovery impossible, with each air raid alert triggering dangerous adrenaline surges that worsen both her MG and ME/CFS. This creates a perpetual cycle of deterioration, and the ongoing threat of strikes eliminates any chance of stability.
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<div><br />
</div>
<div><strong>She is urgently looking to relocate to Europe, preferably Germany, seeking refuge and access to better medical support for ME/CFS and MG. We ask for help finding resources for contacts and organizations that can help with the relocation.</strong>
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<div><br />
</div>
<div>If you can donate any amount, even just $5, it will go a long way. <strong>Please consider a monthly recurring donation for Daryna’s needs.</strong> A recurring donation not only provides the financial support she needs, but also helps provide some predictability and stability in her unsafe and difficult situation.
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/92662637_1765996951196602_r.jpeg" width="100%" />
<div><em>Daryna and I cooking together, before her condition got worse</em>
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<div><br />
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<div>Daryna is in active danger from both her rapidly deteriorating health and constant bombings. This is not about improving quality of life - this is about survival. <strong>Our goal is to allow Daryna to afford life-saving medications and relocate to a safer country where she can access specialized medical care. </strong>Her situation is critical and requires urgent support.
</div>
<div><br />
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<div>Thank you for your support.
</div>
<div><br />
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<div><strong><em>If you’re unable to donate, please consider liking and sharing this fundraiser.</em></strong>
</div>

Bedbound in War Zone: Help Daryna Survive MECFS & MG

<div>Hello everyone 
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<div><br />
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<div>My name is Sydney, and I'm reaching out to you from Washington state. I'm here to rally support for Esam Bannar, his wife, and their three children, who are facing a dire situation in Palestine. 
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<div><br />
</div>
<div>Esam's family home was tragically destroyed in the recent attacks on Palestine, leaving them with nothing. Esam himself sustained injuries from shrapnel to his chest during these harrowing events. They are now in desperate need of assistance to evacuate to safety, but they lack the necessary funds to do so.
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<div><br />
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<div>We initially set our fundraising goal at $10,000, but the urgency of their situation demands more. Therefore, we've increased our goal by an additional $10,000. This will cover not only the costs of their evacuation but also essential supplies such as food and water for the Deir Al-Bala camp where they are currently seeking refuge.
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<div><br />
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<div>Just today, a water truck arrived to provide much-needed relief to Esam, his family, and others in the camp. Now, our focus is on securing funds to purchase food from local markets for the entire camp community.
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<div><br />
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<div>Your generous donations will make a direct and immediate impact on Esam's family, enabling them to access the safety and security they urgently need. 
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<div><br />
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<div>I'll be updating this campaign with videos and photos documenting the distribution of water and food, so you can see the tangible difference your support is making.
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<div>Thank you from the bottom of our hearts for your kindness, generosity, and unwavering support during this challenging time.
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Help Esam and his family evacuate Palestine

Help Markéta survive life with Long Covid

<div><strong>*** UPDATE*** </strong>
</div>
<div><br />
</div>
<div>Week 18 - Millie continues to deteriorate and struggle in the hospital environment.
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<div><br />
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<div>A mediation meeting has been held via solicitors with the hospital Trust and family. 
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<div><br />
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<div>Millie now has an official diagnosis of ME/CFS accepted by the hospital.
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<div><br />
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<div>Unfortunately, getting NG tube feeding at home no longer appears to be viable option and a PEG tube procedure is being offered as a route to get Millie discharged home with a suitable feeding solution. 
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<div><br />
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<div>Millie and family are worried about Millie’s extra fragile state to have this done but see it as her only viable route home.
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<div><br />
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<div>Millie’s family have found a wonderful local care company with some understanding of ME/CFS to come into hospital for a few hours a day to meet Millie’s ME/CFS care needs in the mornings.
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<div><br />
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<div>Some of the money already raised will cover this for a few weeks but if more can be raised this can cover more hours and more days for Millie to receive this support, which would really help her at this difficult time.
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<div><br />
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<div>We would also like to use this care company plus maybe another nursing one once she is discharged home to provide her with ME/CFS sensitive care.
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<div><br />
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<div>We are looking into council funding but we aren't sure if we will get it or get it fully.
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<div>As we have said we also want to use ME/CFS Drs to support Millie at home who are often mostly private so will also incur costs.
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<div><br />
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<div>So your donations will really help Millie get the care she needs with her very severe ME/CFS.
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<div><br />
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<div>**************************************
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<div><br />
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<div>This fundraiser is being set up to cover legal costs (a solicitor), private ME/CFS specialists and private care after hospital for Millie McAinsh.
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<div><br />
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<div>Millie (age 18) has very severe ME/CFS and has been in struggling in hospital for nearly 12 weeks to receive the care she needs and to return to the safety of her home environment with a feeding tube which is necessary due to the level of exhaustion and pain she is experiencing with her condition.
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<div><br />
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<div>Her and her family thought the hospital stay would be a week or less to get a feeding tube and return home to the best environment for the management and treatment of her symptoms which include extreme pain and sensitivity to sensory stimulation (light, sound, touch, pain, movement), fatigue and post exertional malaise (PEM) following any exertion.
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<div><br />
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<div>●The situation with Millie has got to the point where there is a total breakdown of trust between the hospital and Millie/family. Because of this they have made the decision to involve a solicitor to try and get matters resolved.
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<div><br />
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<div>●Once Millie is out of hospital family wish to engage with the best Dr's and other healthcare providers available to help manage Millie’s MECFS symptoms and also to move along the road to a full recovery as far as possible; all this will be costly as most of these providers are private.
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<div><br />
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<div>●Top ME/CFS specialists in the UK state that "Some patients with very severe ME will require tube feeding, either enterally or parenterally." (see <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213/)." target="_blank" rel="noreferrer noopener"><a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213/</a>).</a>
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<div><br />
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<div>Millie is one of these unfortunate patients and family wish to use a private care company to help with NG tube feeding at home due to a lack of NHS services in Millie’s postcode area for this and alongside support from the hospital and NHS community nurses; this will incur costs of travel and care.
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<div><br />
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<div>Funds are going to Lucy Montgomery (Millie's Mum), to manage on behalf of Millie.
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Help Millie and her family with legal and medical costs

Rachel Spalding

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Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

Rachel Spalding

Rachel Spalding

Featured causes

A Power Wheelchair to Help My Wife Experience Life

Help a Severe ME patient safely escape her abuser

Bedbound in War Zone: Help Daryna Survive MECFS & MG

Help Esam and his family evacuate Palestine

Help Markéta survive life with Long Covid

About me