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<div>
 Help My Wife Regain Her Freedom
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<div>
 Hi everyone,
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 I'm setting up this fundraiser for my wife.
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 For the past 10 years, my wife has been living with ME (Myalgic Encephalomyelitis), severe abdominal pain caused by adhesions, and POTS (Postural Orthostatic Tachycardia Syndrome). Her health changed dramatically after serious complications during surgery. Although she fought hard to rebuild her life, she has never fully recovered.
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 Over the last 12 months, her ME has progressed to a severe level. She now spends most of her life confined to bed, as even the smallest amount of physical or mental activity can leave her with debilitating exhaustion and a significant worsening of her symptoms. Everyday tasks that most people don't think twice about, such as getting dressed, taking a shower, or leaving the house, can trigger post-exertional malaise (PEM), the hallmark symptom of ME, leaving her feeling desperately ill for days or even weeks afterwards.
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<div>
 Alongside this, she also lives with severe abdominal pain from adhesions and POTS, which makes being upright difficult and adds to the physical strain of everyday life. Together, these conditions have taken away so much of the life she once had.
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 Something as simple as going for a walk, visiting family, or enjoying a trip out together has become almost impossible. Most days are spent looking out of the window, wishing she could be part of the world again.
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<div>
 We're raising money to buy her a powered wheelchair.
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 A manual wheelchair isn't a suitable option because the physical effort of pushing herself would make her ME significantly worse, and the repetitive movements would also aggravate the severe pain caused by her abdominal adhesions. A powered wheelchair would allow her to conserve the little energy she has, helping her leave the house while reducing the risk of triggering severe crashes.
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 This isn't about convenience. It's about giving her back a part of her life that illness has taken away.
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 A powered wheelchair would mean she could:
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 • Spend time outdoors without making herself dangerously ill.
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 • Enjoy days out with our family instead of watching from home.
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 • Attend appointments with less physical strain.
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 • Experience some independence and freedom again.
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 Like many families living with long-term illness, we simply can't afford the cost of a suitable powered wheelchair on our own. Every donation, no matter how big or small, brings us one step closer to making this possible.
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 If you're unable to donate, sharing our fundraiser would mean just as much.
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<div>
 Thank you for taking the time to read my wife's story. Your kindness, generosity and support mean more than we can put into words.
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<div>
 With heartfelt thanks,
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<div>
 Her husband
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A Power Wheelchair to Help My Wife Experience Life

<div>TW: caregiver abuse, s*icidal ideation 


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<div>Mari has Severe Myalgic Encephalomyelitis, and is trapped in a dangerous situation with a highly abusive “caregiver” who she is completely physically dependent on. 


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<div>The ongoing abuse is keeping Mari in a Severe state with no chance of recovery. 


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<div>Severe ME is a devastating disabling multisystemic neuroimmune disease often described as a ‘living death’. Despite this grave level of illness, many housebound patients like Mari lack the care and symptom-relieving treatment necessary to reduce preventable suffering.


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<div>There is no cure or licensed treatments for ME. Patients with severe ME require aggressive rest, assistance with daily needs, and a safe, stress free home environment to give their health a chance at stabilising. 


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<div>Mari is completely reliant on daily care to meet her survival needs, but she’s been experiencing ongoing neglect, a lack of adequate care, and extreme abuse from her caregiver. She has been isolated in this abuse ever since the onset of her ME, which rapidly deteriorated her into a Severe state which she’s been suffering in ever since. Without her caregiver she wouldn’t be able to access her daily survival needs and would immediately begin to deteriorate further from the added exertion, but staying with this caregiver she is unable to improve her health along with experiencing daily suicidal ideation due to the ongoing abuse, therefore she ultimately also will not survive unless she manages to escape this horrific situation soon.


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<div>Mari does not have any other friends or family who are able to help care for her, and adequate government funded care is no longer an option for the majority of disabled Canadians due to the entire medical field being severely understaffed. There are also no shelters that can provide safe accommodations for a Severe ME patient. 


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<div><strong>Mari has been trapped and suffering in this dangerous situation for over half a decade without any realistic way out. </strong>


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<div>The intensity of this abuse is rapidly increasing, and Mari is in PHYSICAL DANGER. Mari has been physically attacked and seriously injured by her abuser several times. 


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<div>Police involvement has only caused further trauma for Mari and has also caused her to contract illness as they do not mask. Emergency services cannot intervene and should not be contacted. 


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<div>Community support is our last hope for Mari!


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<div><strong>— If we can successfully reach HALF of this fundraising goal by the end of MARCH 2026, Mari will finally have the opportunity to escape. </strong>


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<div><strong>— The other half must be raised by the end of SEPTEMBER 2026 so that Mari has access to care and medical needs once she moves out.</strong>


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<div>Mari desperately needs ongoing funds for secure housing, moving expenses, healthy and accessible food, household items, medical supplies and paid care. 


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<div>The goal is to get Mari to safety within the next year, and reduce the extreme mental and physical strains of this ongoing trauma in the meantime. 


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<div>The target fundraising goal is what is needed for Mari to escape, successfully live alone and maintain her health and nutrition both before and after. All costs in CAD:


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<li><strong>$33.8K for 12 months of paid care (this equates to 2.5 hours of care/day at $38 per hour) so that Mari can survive on her own.</strong>


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<li>$7.7K for specialised accessible moving services.


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<li>$3.6K for 6 months meal delivery service.


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<li>$6K for 12 months basic needs including groceries and household items.


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<li>$3K for 6 months prescriptions and medical supplies. 


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<li>$10.4K for a year of essential medical appointments including transportation. 


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<div>The total goal is $64,500 CAD ($46,789 USD/£34,690)


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<div>Adequate financial support would give her a chance to find a new living situation and become independent from her abuser so she can finally have a chance to stabilize and improve her health. 


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<div>Mari is deeply appreciative of all the support she has received and continues to receive, and is holding onto hope that our community will continue to support her and make this goal a reality.


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<div>Thank you so much for taking the time to hear Mari’s story and for contributing to her recovery.


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<div>NB it is essential Mari stays anonymous for their own safety hence why there are no photos of Mari and we aren’t using her real name. Numerous people who are helping with these fundraising efforts know Mari personally and can vouch for her and the reality of her situation. 


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<div><br />


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<div><strong>More information on myalgic encephalomyelitis:</strong>


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<div>Severe ME is often described as a living death and despite this extreme level of illness many housebound patients like Mari still lack the homecare, support and symptom relieving treatment necessary to reduce preventable suffering. To learn more about ME please check out <a href="https://www.meaction.net" target="_blank" rel="noreferrer noopener"></a><a href="https://www.meaction.net/" target="_blank" rel="noreferrer noopener"></a><a href="https://www.meaction.net/" target="_blank" rel="noreferrer noopener"><a href="https://www.meaction.net/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.meaction.net/</a></a> 


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Help a Severe ME patient safely escape her abuser

<div><strong>Daryna is a 29-year-old woman with very severe ME/CFS, Myasthenia Gravis (MG), and multiple other comorbidities. After years of enduring both her illnesses and the war in Ukraine, she has evacuated to Berlin, Germany, but she remains bedbound, entirely dependent on hired caregivers for daily survival, and in urgent need of ongoing support while she works to secure stable medical care in a new country.</strong>
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<div>We are asking for your ongoing support to cover Daryna's rent, caregiving, and medical costs for MG and ME/CFS.
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<div><strong>Donations go directly toward Daryna's essential daily needs: rent, the caregivers she cannot survive without, food, medicine, and doctor's appointments.</strong>
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<div><strong>Her story so far</strong>
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<div>Daryna first began experiencing symptoms in late summer 2021. After three years of endless doctor visits, tests, and misdiagnoses, she was diagnosed with both MG and ME/CFS in late 2024, with other suspected comorbidities. In addition to ME/CFS and MG, she lives with immune deficiency (chronic EBV reactivations and susceptibility to infections), autonomic dysfunction (POTS), mast cell activation syndrome (MCAS), secondary adrenal insufficiency, a combination of conditions that each worsen the others.
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<div>While she was still in Ukraine, her condition deteriorated due to lack of specialized care, ongoing war stress, housing and financial instability, and an inability to access proper treatment. <strong>Despite objective test results confirming her diagnoses</strong>, both her MG and ME/CFS were heavily psychologized by doctors there, who treated her as though her illnesses weren’t real. That medical neglect nearly killed her: in May, Daryna suffered a myasthenic crisis, a critical MG exacerbation that stops a person from breathing, and was hospitalized on oxygen, IV fluids, and glucose, narrowly avoiding tube feeding. <strong>She was discharged while still in crisis. It was this discharge that prompted an urgent medical evacuation to Germany.</strong>
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</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/92662637_1765996279322703_r.jpeg" width="100%" /><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/92662637_1765996328197839_r.jpeg" width="100%" />
<div><em>Aftermath of November 17th shelling to Daryna's building and neighboring buildings</em>
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<div>The crisis also caused her ME/CFS to progress from severe to profound. It has since come back down to very severe, but she remains bedbound and unable to eat or use the toilet without help.
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<div>Throughout all of this, Daryna also lived through the escalating war in Dnipro, including a winter without heat after Russian strikes on the power grid, and repeated periods of shelling that made any kind of baseline recovery from her illness impossible.
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<div><strong>How things stand now</strong>
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<div>About two months ago, with the help of this community, Daryna was able to arrange medical transport to Berlin. She has since found an apartment, hired local caregiving, and is in the process of registering as a refugee, a process that takes time and has not yet been completed. A doctor in Berlin has confirmed her diagnoses, and Germany's public health system has more resources and understanding of both ME/CFS and MG than she had access to in Ukraine.
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<div>But please don't mistake this progress for stability. <strong>Daryna is currently in the worst physical state of her life</strong>. She has no income of her own and does not receive any government support. <strong>She is navigating a new country, a new healthcare system, and an overwhelming amount of logistics almost entirely alone, while bedbound, with no family nearby.</strong> A caregiver comes daily to prepare her food, feed her, help her with toileting and hygiene, and manage laundry and medications; without this support, she cannot survive.
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<div>ME/CFS and MG are chronic; they don't go away, though they can sometimes be managed with the right care. Daryna has a long road ahead of her, and right now, that road depends entirely on this fund. <strong>Without continued support, she will have no choice but to return to Ukraine. </strong>
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<div><strong>How your donation helps</strong>
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<div>Your donations cover: rent, daily caregiving, food, medications, and doctor's visits, totaling approximately $4,733/month. None of these costs are currently covered by government assistance. A full breakdown of monthly expenses is below.
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<div>If you can donate any amount, even $5, it will go a long way. Please consider a monthly recurring donation; it provides not just financial support, but some predictability in an otherwise very unstable situation.
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<div>This fundraiser is organized by Sarah, a close friend of Daryna's, along with co-organizer Jon. We are committed to full transparency about how funds are used, and to updating this page as Daryna's situation evolves.
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<div>Thank you for your support.
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<div><strong><em>If you’re unable to donate, please consider liking and sharing this fundraiser.</em></strong>
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<div>About Sarah Payne, GoFundMe organizer for Daryna:
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<div>Hi, I'm Sarah. Daryna and I are friends, former roommates, and former colleagues from when we both lived in Denmark. We met while working at Lenus eHealth in Copenhagen in 2022. We quickly became friends, which is easy to do when you both like similar music, thrifting, cooking, and trying to make a new PR. Daryna also moved into my flat and we became roommates before she moved back to Ukraine. We had some hyggeligt times together in our small unit! I have since also moved from Denmark to the US. I created this GoFundMe to help Daryna cover her medical needs.
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<div>Funds transparency:
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<div>All funds donated to this GoFundMe are transferred to me, Sarah Payne, and as soon as any of those transfers are completed, I directly transfer the money to Daryna through PayPal. I regularly audit my bank account to make sure I don't accidentally miss any payments. Daryna really needs the funds. As mentioned above, funds are used for her direct medical care, caregiving, rent, and food.
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<div>Funds use:
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<div>Daryna's needs have evolved over time. Now that she is in Berlin, fundraising efforts also cover the cost of a caregiver, rent, and food.
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<div>Monthly expenses:
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<div>Caregiving: $2,080 (€1,800)
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<div>Rent: $1,330 (€1,150)
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<div>Medication: $640 (€450)
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<div>Food: $400 (€350)
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<div>Platform fees: $333 (€307)
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<div>Monthly total: $4,733 (€4,107)
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Completely Bedbound: Help Daryna Survive MECFS & MG

<div>Hello everyone 
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<div>My name is Sydney, and I'm reaching out to you from Washington state. I'm here to rally support for Esam Bannar, his wife, and their three children, who are facing a dire situation in Palestine. 
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<div>Esam's family home was tragically destroyed in the recent attacks on Palestine, leaving them with nothing. Esam himself sustained injuries from shrapnel to his chest during these harrowing events. They are now in desperate need of assistance to evacuate to safety, but they lack the necessary funds to do so.
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<div>We initially set our fundraising goal at $10,000, but the urgency of their situation demands more. Therefore, we've increased our goal by an additional $10,000. This will cover not only the costs of their evacuation but also essential supplies such as food and water for the Deir Al-Bala camp where they are currently seeking refuge.
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<div>Just today, a water truck arrived to provide much-needed relief to Esam, his family, and others in the camp. Now, our focus is on securing funds to purchase food from local markets for the entire camp community.
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<div>Your generous donations will make a direct and immediate impact on Esam's family, enabling them to access the safety and security they urgently need. 
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<div>I'll be updating this campaign with videos and photos documenting the distribution of water and food, so you can see the tangible difference your support is making.
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<div>Thank you from the bottom of our hearts for your kindness, generosity, and unwavering support during this challenging time.
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Help Esam and his family evacuate Palestine

Help Markéta survive life with Long Covid

<div><strong>*** UPDATE*** </strong>
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<div>Week 18 - Millie continues to deteriorate and struggle in the hospital environment.
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<div>A mediation meeting has been held via solicitors with the hospital Trust and family. 
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<div>Millie now has an official diagnosis of ME/CFS accepted by the hospital.
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<div>Unfortunately, getting NG tube feeding at home no longer appears to be viable option and a PEG tube procedure is being offered as a route to get Millie discharged home with a suitable feeding solution. 
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<div>Millie and family are worried about Millie’s extra fragile state to have this done but see it as her only viable route home.
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<div>Millie’s family have found a wonderful local care company with some understanding of ME/CFS to come into hospital for a few hours a day to meet Millie’s ME/CFS care needs in the mornings.
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<div>Some of the money already raised will cover this for a few weeks but if more can be raised this can cover more hours and more days for Millie to receive this support, which would really help her at this difficult time.
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<div>We would also like to use this care company plus maybe another nursing one once she is discharged home to provide her with ME/CFS sensitive care.
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<div>We are looking into council funding but we aren't sure if we will get it or get it fully.
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<div>As we have said we also want to use ME/CFS Drs to support Millie at home who are often mostly private so will also incur costs.
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<div>So your donations will really help Millie get the care she needs with her very severe ME/CFS.
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<div>**************************************
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<div>This fundraiser is being set up to cover legal costs (a solicitor), private ME/CFS specialists and private care after hospital for Millie McAinsh.
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<div>Millie (age 18) has very severe ME/CFS and has been in struggling in hospital for nearly 12 weeks to receive the care she needs and to return to the safety of her home environment with a feeding tube which is necessary due to the level of exhaustion and pain she is experiencing with her condition.
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<div>Her and her family thought the hospital stay would be a week or less to get a feeding tube and return home to the best environment for the management and treatment of her symptoms which include extreme pain and sensitivity to sensory stimulation (light, sound, touch, pain, movement), fatigue and post exertional malaise (PEM) following any exertion.
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<div>●The situation with Millie has got to the point where there is a total breakdown of trust between the hospital and Millie/family. Because of this they have made the decision to involve a solicitor to try and get matters resolved.
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<div>●Once Millie is out of hospital family wish to engage with the best Dr's and other healthcare providers available to help manage Millie’s MECFS symptoms and also to move along the road to a full recovery as far as possible; all this will be costly as most of these providers are private.
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<div>●Top ME/CFS specialists in the UK state that "Some patients with very severe ME will require tube feeding, either enterally or parenterally." (see <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213/)." target="_blank" rel="noreferrer noopener"><a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070213/</a>).</a>
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<div>Millie is one of these unfortunate patients and family wish to use a private care company to help with NG tube feeding at home due to a lack of NHS services in Millie’s postcode area for this and alongside support from the hospital and NHS community nurses; this will incur costs of travel and care.
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<div>Funds are going to Lucy Montgomery (Millie's Mum), to manage on behalf of Millie.
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Help Millie and her family with legal and medical costs

Rachel Spalding

Rachel Spalding

Rachel Spalding

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