Ashley Bell

We got home really late last night. Thomas had to be at work early this morning so since her procedures went well we drove home afterwards. Zarianna is doing great (: for the very first time she didn't have to have any chemotherapy none into her port and none into her eye. For the first time there are no live cancer cells detected near the tumors. The tumors are still in her eye because they are almost impossible to get rid of so they do have to be watched very closely and she will still go under anesthesia every 4 or 5 weeks to have her eye examined. We are so so so great full that as of right now her cancer is not showing as live she got to wake up from anesthesia for the first time with no eye patch and no sore eyes. They will be taking another sample in a couple months to check for cancer cells again to see if they come back to life without any chemo therapy. She did get her teeth fixed yesterday 12 teeth total. She had a hard time with the pain from that on our drive home but by the time we arrived home she was doing much better. Her and i were up every couple hours to give her water due to her throat being very dry and sore because she was fully intubated during the procedure yesterday. She is now still sleeping next to me in bed and doing good. She has some mild swelling of her lips and face but is doing okay with it all. She is such a strong beautiful brave baby girl i hope with everything in me things keep getting better and better for my baby. Keep her in your thoughts as always. We appreciate you all so much.

We came down yesterday and stayed in a hotel. We did have to stay about 30min away from the hospital due to hotels in Palo Alto being so expensive. We took Zarianna for a walk on the beach yesterday and to play at a big park, and to get pizza and ice cream for dinner. she had a great time but wished her siblings where with her the whole time. She had her bath this morning and is dressed and adorable and ready for her procedures today but already upset about not eating and realy wants chicken. We will get her some once she is awake and ready to eat after her procedure. Her first 2 appointments starts today at 945. She will have her port accessed, labs taken and a full checkup. We check into preop at 1145 and her procedure will start around 130ish. Having her go under anesthesia is horrible everytime I have nightmares about it and it just never gets easier please keep her in your thoughts today and send lots of love her way ❤️ if you can donate towards this trip it is very needed Thomas missing anywork takes away from us quite a bit and these trips are very expensive. So please donate if you can and if not a share is also very helpful and appreciated