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<div>HELP US REBUILD THE SAV INCLUSIVE COMMUNITY AFTER HURRICANE MELISSA
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<div>Hurricane Melissa brought devastating winds and flooding to Western Jamaica. While Negril was spared the worst, Savanna-la-Mar — the parish capital and home to The Sav Inclusive School — was hit hard.
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<div>The storm made landfall less than ten miles from our campus. Roofs were torn off, classrooms flooded, therapy rooms and learning materials destroyed, and our grounds left badly damaged. Many in the surrounding community suffered even greater loss.
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<div>The Rockhouse Foundation Hurricane Recovery Fund will provide direct support to rebuild the Sav Inclusive School and to help the students, families, and teachers most affected by the storm.
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<div>Your donation — large or small — will go directly toward:
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<li>Repairing and rebuilding damaged classrooms and therapy spaces
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<li>Replacing essential educational and therapeutic equipment lost to flooding
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<li>Restoring a safe, nurturing environment where our students can return and thrive
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<li>Providing direct assistance to the hardest-hit families, students, and teachers
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<div>The Sav Inclusive School is a public school built from the ground up by the Rockhouse Foundation where children with disabilities and without learn side by side in a full inclusion setting. It currently has 265 students from ages 3 to grade 6.
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<div>For more than 20 years, the Rockhouse Foundation has been transforming education in Western Jamaica — investing over US $11 million to build schools and strengthen communities. Now, as our neighbors face this devastating aftermath, we’re asking for your help.
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<div>Every act of kindness brings us closer to reopening our doors and continuing to change young lives through inclusion, love, and learning.
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<div>The Rockhouse Foundation is a registered Jamaican charity and a New York–based 501(c)(3) nonprofit.
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<div>See our latest video on Sav Inclusive: "High Expectations"
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<div><a href="https://www.youtube.com/watch?v=NTeQl7pJ0Oo&amp;list=PLyNisiqmyxS8tj2aMgVnt81tXKWt-LiJE&amp;index=1" target="_blank" rel="noreferrer noopener"><a href="https://www.youtube.com/watch?v=NTeQl7pJ0Oo&amp;list=PLyNisiqmyxS8tj2aMgVnt81tXKWt-LiJE&amp;index=1" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.youtube.com/watch?v=NTeQl7pJ0Oo&amp;list=PLyNisiqmyxS8tj2aMgVnt81tXKWt-LiJE&amp;index=1</a></a>
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<div>Note that as we  visit the school community and assess the damages we are better understanding the proportion of the need here and have accordingly increased the goal for this fundraiser.  We greatly appreciate all the love and support.
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Rockhouse Foundation Hurricane Melissa Relief Fund

<div><strong>A parent's worse nightmare is losing their child. Our daughter Lydia is 3 years old. </strong>She is so full of life. She loves playing right along side with her big sister. <strong>But her little body is dying. </strong>Before her disease takes over her body and brain damage starts to occur, we have one chance to change her fate &amp; it has to happen soon. What if money was the one thing that stands in the way of your child's chance to live? <strong>We need your help to save our sweet Lydia. </strong>**donations are tax deductible**
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<div><strong>Our Story</strong>
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<div>When Lydia was born, we were so excited. Her big sister was so happy to have a forever best friend. Our hearts were so full. She had a perfect birth. The doctor said <strong>“she’s perfect”</strong>. We were so in love with her. We were so happy to have our new girl to take home with us. 18 months of our lives were just full of happiness. Until April 4, 2024, <strong>the day our lives changed forever</strong>.
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<div>Our sweet Lydia was diagnosed with a rare genetic disorder called <strong>Sanfilippo Syndrome </strong>type B, which is <strong>terminal</strong>. Life Expectancy not passed teenage years. Our hearts were shattered and it was a dark place I cannot even explain. How was our child slowly dying and we did not even know it?
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<div>In March, my mother sent me a TikTok of a little girl named Olivia with the TikTok account "Saving Liv". This little girl could have been my Lydia's twin. It was a gut punch when I saw the diagnosis of Olivia being a terminal illness. Of a disease I did not even know existed. So I started researching more of the disease, with symptoms that went along with it. I found frequent ear infections, sleep disturbances, distended belly, GI issues, and prominent thick eyebrows, which were all the symptoms Lydia had. The thick eyebrows were something I thought she inherited from my husband. Everyone always said "They look just alike". I knew then when I saw the symptoms, this was what my daughter had. My gut told me so but my heart told me there was absolutely no way (it is 1 in 70,000) that my baby who has met all milestones in her life and to me, was a healthy baby as I thought.
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<div>I took my concerns to our pediatrician in our hometown of Natchitoches, Louisiana. I showed him side by side pictures &amp; the TikTok I had seen. He told me "I have never been asked this before, nor have I ever seen a child with it". He told me he would have to go do research himself and come back into the room. He came back into the room and tells me <strong>"I cannot come back in here &amp; tell you she does not have it, </strong>so I will order you the genetic testing for it, but you will have to do it at another hospital because our town does not have that type of ability to test for it. I want you to assure you that this is very rare, and children come in all the time with issues not sleeping, constipation, and frequent ear infections still after tubes". I was so grateful that he listened to me, ordered us the testing, and did not make me feel crazy. We went to another hospital to have the testing done the very next day. It was a blood test and a urine test.
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<div>A week of anxiously waiting to "rule it out".... the following Thursday I pull up my patient portal to see <strong>POSITIVE MPS III </strong>(Sanfilippo Syndrome). That exact moment was the worst feeling of any day I have ever had on this earth. My heart sunk, I felt like I could not breathe. <strong>The instant feeling of "my baby is going to die". </strong>
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<div>This dark place my husband and I were in last for about 2 weeks. It was then, I was ready to <strong>fight</strong> for her. I contacted the <strong>Cure Sanfilippo Foundation</strong> to figure out what I could do as a mother to fight for her and the treatments available for her. There are no current treatments or cure approved by the FDA, only clinical trials. <strong>But there is HOPE.</strong> The clinical trials have a gene therapy treatment and an enzyme replacement therapy. In Sanfilippo Syndrome, Lydia's body is missing an enzyme that is used to breakdown sugar molecules. Without this enzyme, <strong>toxic waste build up in her body. </strong>This would explain her distended belly from an enlarged liver. That I thought was just from constipation. As the years go by and more toxic waste build up, it will start affecting her brain, causing damage, leading to her to <strong>lose or forget all of her abilities such as walking, talking, and feeding herself, </strong>everything she has already learned. This is why it is called Childhood Dementia. She will also eventually endure pain and suffering, and then die. <strong>This is 100% fatal.</strong>
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<div>Luckily, we were able to get diagnosed early because of TikTok and our pediatrician. The <strong>regression usually starts around age 3 and 4.</strong> But every child with this disease is different. This would mean we have about a year or less before brain damage begins &amp; takes over. Fast forward 18 months after we got the diagnoses, THERE NOW IS A TREATMENT OPTION. We need 6 million to fund a treatment that could be available for her as early as this summer 2026. 3.8 million by December 1, 2025 &amp; the rest by spring 2026. This is how you can help us <strong>Save Our Lydia.</strong> So one day, when my 6 year old daughter, Heidi, is able to understand, I will not have to explain to her that her little sister is going to die. The words I never want to hear is <strong>"I don't want my sister to die"</strong>. After the diagnosis, that is the moment I am dreading. She is the best big sister to her. Her sister deserves a chance at life.
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<div>As a mother, feeling helpless and knowing this disease is out of my control.. the only thing I know to do is fight for her. Fighting for her in this case is making awareness of this disease, sharing her story, fundraising, and in hopes her story will reach the world. <strong>Hoping the world will help save her.</strong> We pray everyday for this. We will never stop fighting for her. Every dollar counts. <strong>We need a miracle and this world of a community could be our miracle</strong>. Along with all the other children and families suffering with this disease and heartbreak.
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<div><strong>Our goal is to raise $6 million dollars to help fund treatments </strong>and give our Lydia a chance at growing up, a chance at life. We can't just sit back and accept that she is going to die with knowing there are treatments out there. Previous clinical trials done for Sanfilippo Syndrome have shown real promise. The treatments WORK. <strong>Our Lydia needs treatment!! </strong>This campaign for her LIFE is as urgent as it gets. <strong>It's now or never for Lydia. This is our last chance to save her life before brain damage begins. 3.8 million by December 1st. </strong>
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<div><strong>This is truly our only hope.</strong> Her story has already reached millions. People Magazine, VT, Daily News, &amp; News stations. Help us keep sharing her story. In hopes it will reach a celebrity or millionaire that will be these children's spokesperson and help fund for them. They deserve a chance at this life. A parent's love is like no other. If you are a parent, you understand.
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<div><strong>There are three things we are asking you to do.</strong> A campaign like this can grow quickly if supported and if shared with great mass. We can reach this goal if it goes viral.
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<div><strong>1. Please donate what you are able. </strong>All donations go to the 501c3 <strong>nonprofit Cure Sanfilippo Foundation</strong> (Tax ID: 46-4322131) to fund a clinical trial and are tax deductible.
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<div><strong>2. </strong>Please take a few minutes and share our GoFundMe everywhere you can. It’s really easy to do. Just click the “Share” button and send it everywhere you can. Please help this reach the right people. I know if they see it, this can happen.
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<div><strong>3.</strong> Please leverage any avenue you have to make this go viral.
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<div><strong>Thank you for making it this far in our story. I hope you are able to help save our girl.</strong>
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<div><strong><em>-Morgan &amp; Kirk</em></strong>
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<div>Other ways to donate:
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<div>-- By check: Cure Sanfilippo Foundation, PO Box 6901, Columbia, SC 29260. Include “Save Lydia” in the memo.
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<div>-- Donate via Venmo, ACH, digital wallet or digital wallet, go to <a href="https://give.curesanfilippofoundation.org/save_lydia" target="_blank" rel="noreferrer noopener"><a href="https://give.curesanfilippofoundation.org/save_lydia" target="_blank" class="" rel="nofollow noopener noreferrer">https://give.curesanfilippofoundation.org/save_lydia</a></a>
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<div>-- Make a recurring donation, go to <a href="https://give.curesanfilippofoundation.org/give/630751/#!/donation/checkout?recurring=1" target="_blank" rel="noreferrer noopener"><a href="https://give.curesanfilippofoundation.org/give/630751/#!/donation/checkout?recurring=1" target="_blank" class="" rel="nofollow noopener noreferrer">https://give.curesanfilippofoundation.org/give/630751/#!/donation/checkout?recurring=1</a></a>
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<div>-- By stock gift, email <a href="https://CureSanfilippoFoundation.org" target="_blank" rel="noreferrer noopener">[email redacted]</a> for details.
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<div>Follow us
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<div>-- TikTok: <a href="https://www.tiktok.com/" target="_blank" rel="noreferrer noopener"><a href="https://www.tiktok.com/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.tiktok.com/</a></a>@hopeforlydia
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<div>-- Instagram: <a href="https://www.instagram.com/hopeforlydia/" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/hopeforlydia/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/hopeforlydia/</a></a>
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<div>-- Facebook: <a href="https://www.facebook.com/profile.php?id=61561244030850" target="_blank" rel="noreferrer noopener"><a href="https://www.facebook.com/profile.php?id=61561244030850" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/profile.php?id=61561244030850</a></a>
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<div>For media
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<div>For additional information and photography for the media, please go to <a href="https://CureSanfilippoFoundation.org/Save_Lydia" target="_blank" rel="noreferrer noopener"><a href="http://CureSanfilippoFoundation.org/Save_Lydia" target="_blank" class="" rel="nofollow noopener noreferrer">http://CureSanfilippoFoundation.org/Save_Lydia</a></a>
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<div>Credits
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<div>Special thanks to Joe Lane of Anointed Media LLC (<a href="https://www.anointed.media" target="_blank" rel="noreferrer noopener"><a href="https://www.anointed.media" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.anointed.media</a></a>) for lending his tremendous videography, video edit, music and audio editing skills, and passion to this project.
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Save Lydia

<div>For millions of Americans, one unexpected crisis—such as a lost job, an unexpected medical bill, or a broken-down car—spells disaster. Roughly <a href="https://institute.bankofamerica.com/content/dam/economic-insights/paycheck-to-paycheck-lower-income-households.pdf" target="_blank" rel="noreferrer noopener">45</a>%<a href="https://institute.bankofamerica.com/content/dam/economic-insights/paycheck-to-paycheck-lower-income-households.pdf" target="_blank" rel="noreferrer noopener">of Americans live paycheck to paycheck</a>, and more than a quarter <a href="https://www.bankrate.com/banking/savings/emergency-savings-report/" target="_blank" rel="noreferrer noopener">have no emergency savings</a>. In these circumstances, even a small amount of flexible financial support can determine whether a family weathers the storm or falls into deeper hardship.
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<div>Launched in 2020, the Essentials Fund was created to support Americans asking for help on the GoFundMe platform with a one-time emergency cash grant made as a surprise donation to their fundraiser.
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<div>Grantees of the Essentials Fund are most often individuals who, through no fault of their own, have experienced an unexpected crisis and are suddenly unable to cover critical expenses like food, housing, or utilities.
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<div><a href="https://www.gofundme.org/blog/francescos-story-essentials-fund-grantee/" target="_blank" rel="noreferrer noopener">Read one grantees story</a> or learn about the <a href="https://www.gofundme.org/wp-content/uploads/2026/09/GoFundMe.org_Essentials_Fund_FY27.pdf" target="_blank" rel="noreferrer noopener">fund's past impact</a>.
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<div>To date, the Essentials Fund has raised over $3 million and provided direct support to more than 7,500 individuals and households in need.
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<div><strong>Why donate? </strong>
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<div>Via this Fund, GoFundMe.org provides swift support directly to people asking for help—almost dollar for dollar.* Donations to this fund are tax-deductible to the extent allowed by U.S. law. We’ll send you a receipt upon donation completion and keep you updated on the impact of your donation.
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<div><strong>Donate with confidence</strong>
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<div>The GoFundMe Giving Guarantee provides a full refund for up to a year in the rare case something isn't right.
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<div><strong>Learn more</strong>
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<div>For more information, <a href="https://www.gofundme.org/wp-content/uploads/2022/05/GoFundMe-Essentials-Fund-2026.pdf" target="_blank" rel="noreferrer noopener">click here to review a one-pager</a> about this fund's past impact.
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<div><em>To donate via DAF, please select the DAF Pay option as the payment method once you click “donate now” on this page. If you would like to donate to this Fund via stock, ACH/wire, crypto, check, or by Private Foundation please visit our offline donations page and we will add your donation to this fund as an offline donation so that your contribution is recognized on this Fund page.</em>
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<div><em>GoFundMe.org is a registered 501(c)(3) nonprofit organization (EIN 81-2279757) that works to swiftly mobilize donations raised to support individuals and communities impacted by crises, natural disasters, and social inequalities. We accept tax-deductible donations from donors into funds created for a specific philanthropic purpose. From these funds, we issue grants to charitable classes of individuals, nonprofit organizations, and charitable projects.</em>
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<div><em>Donations to this fund are tax-deductible to the extent permissible by U.S. law. Money will be given to verified charitable needs at the discretion of GoFundMe.org.</em>
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<div><em>*A 2.9% + $0.30 transaction fee is automatically deducted from each donation.</em>
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Essentials Fund

Chris Welsher

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<div>My name is Chris Welsher and I am from the Lake of the Ozarks, Missouri. In 2022, I moved to the Philippines to start a new life. Since being here, I have been constantly reminded of how poor a vast majority of the population is. Throughout my time here, I have also noticed the number of talented singers who have no opportunities to be discovered because they have no money. I have posted a video to show you a local filipina talent singing a song written by myself and the music video I made for her song as well as a link to her artist profile on Spotify. I would love to be able to give this opportunity to other Filipinos. With your help we can empower lots of people here in the Philippines and give them an opportunity to have something to look forward to and opportunities to help their families as well.
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<div><strong>My goal is to open a record label and find these individuals and give them a chance to become an artist at no cost to them.</strong> How money raised will be allocated.  I am looking to raise money to rent a location which will be $25k a year, buy studio equipment which will be 50k, and pay for travel to bring these individuals to the studio so we can start producing songs for them as well as other costs associated with the studio such as advertising and music and songwriting. These will all be ongoing costs as we find and bring talent to our studio location. There are Filipinos with amazing voices here that the world deserves to hear. I can give them not only the opportunity to be heard by the rest of the world on all the popular music streaming platforms but also an opportunity to make money so they and their families can have better lives. <strong>So help me on this journey and help support the Philippines by helping people to have better lives. Especially with all the constant natural disasters that keep happening here. The people of the Philippines need more help and opportunities now than ever before.</strong>
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<div><a href="https://open.spotify.com/artist/2WXRx1CI1u1GWqzuv7ufRp?si=qbUHNYL3Tt2RQUx0DHuQfQ" target="_blank" rel="noreferrer noopener"><strong>Local Artist Princess Migallen on Spotify</strong></a>
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