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<div>Everett is a brave little boy living in Austin, Texas, with an ultra-rare neurodevelopmental mitochondrial genetic condition caused by a harmful, spontaneous change in his HK1 gene. Fewer than 50 cases are known worldwide, there is no cure (yet!), and the condition carries a frighteningly high mortality rate. You can read more about Everett's story and the mission his family is on to fund a cure at <a href="https://acureforeverett.org" target="_blank" rel="noreferrer noopener">acureforeverett.org</a>
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<div>I established this fund to help support his superhero mom, Marissa Blomstrom, with Everett's ongoing medical care, therapies, equipment, travel for specialty care and life expenses.
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<div>Here's why...
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<div>I've known Marissa since 2000 when we became instant best friends at the University of Wisconsin-Madison. From the moment I met her, I knew she was extraordinary. Marissa does everything BIG - she turns every day moments into something special and is the ultimate memory maker. Her heart knows no bounds and she has showed up for me, and ALL of her friends, time and time again.
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<div>As she brought Everett into the world, Marissa suffered a life-threatening hemorrhage due to undiagnosed placenta accreta, lost four liters of blood and had to have an emergency hysterectomy - being at her bedside in the hospital the morning after she delivered Everett was one of the most terrifying days of my life.
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<div>But I have watched in awe as she has fought relentlessly for Everett - through 143 days together in the NICU to their fragile time at home, punctuated by many trips back to the hospital.
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<div>As a single mom, her life is centered around Everett’s care, appointments, therapies, hospitalizations and constant monitoring. Everett has large team of specialists that Marissa juggles including Genetics, Neurology, Neurosurgery, Pulmonology, Gastroenterology, Endocrinology, ENT, Nephrology, Palliative Care as well as his Pediatrician, PT, OT and Speech Therapists. I've witnessed firsthand on several visits to Austin how every moment of Marissa's day (and night!) is dedicated solely to caring for Everett. The financial strain of medical costs, bespoke equipment and living expenses is significant.
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<div>Marissa is fiercely independent - asking for help does not come easy for her, but she needs her village now more than ever.
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<div>*This is to support the Blomstrom family with their expenses (so your donation is not tax deductible). You can also show up for them in other very important ways:
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<li><a href="https://give.rarevillage.org/campaign/771239/donate" target="_blank" rel="noreferrer noopener"><strong>Donate directly to fund research to find a cure</strong></a> - 100% of the funds will be used for A Cure for Everett’s initiative and the research and development of a cure for Everett’s HK1 genetic condition, which is estimated to cost around $3 million. A Cure for Everett is currently operating under fiscal sponsorship of Rare Village Foundation, a 501(c)(3) nonprofit organization and your donation is tax-deductible within the guidelines of U.S. law.
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<li><a href="https://www.bonfire.com/store/a-cure-for-everett/?utm_source=native_share&amp;utm_medium=store_page_share&amp;utm_campaign=a-cure-for-everett&amp;utm_content=default" target="_blank" rel="noreferrer noopener"><strong>Shop Everett's merch store</strong></a><strong> </strong>- the proceeds from all of these darling items go towards this sweet boy's medical and living expenses.
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<li><strong>Pray </strong>- if you feel called,<strong> </strong>for the Blomstrom family.
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<li><strong>Share their story </strong>- awareness fuels progress!
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Support The Blomstrom Family As They Find A Cure For Everett

My name is Catherine, and I am reaching out on behalf of my son, who is facing an incredibly difficult journey. He has been diagnosed with a brain tumor, and his surgery is scheduled for September 4th. As a parent, it’s heartbreaking to watch your child go through something so serious, but we are doing everything we can to support him through this challenge. 
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 The days ahead will be filled with hospital visits, recovery, and uncertainty. The funds raised here will help us cover the mounting medical costs, provide lodging so we can stay close to him during his hospital stay, and help keep our family afloat as we take unpaid time off work to be by his side during his recovery. Every bit of support will make a real difference in helping us focus on what matters most: my son’s healing and well-being. 
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 We are so grateful for our friends, family, and community. Your support—whether through donations, kind words, or simply sharing our story—means more to us than we can express. Thank you for standing with us during this difficult time. We truly could not do this without you.

Supporting JAK: September Brain Surgery

Catherine Koesel

Catherine Koesel

Catherine Koesel

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