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The Dogist

Samuel Weidenhofer

Patriotic Kenny Foundation

Peter Bond

That Good News Girl

Ben Saunders - Flawless Cleaning

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Amy Jandrisevits

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Tess Bohne

Latonja and Taylor Richardson

Officer Richard Craig

John Wolfe

Khloe

<div>
 Hi everyone,
</div>
<div>
 <br>
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<div>
 My name is Lena Huynh, and I'm a first-year dental student at the University of Florida. I'm starting this GoFundMe for my dad, who is 60 years old and preparing to undergo a life-saving bone marrow transplant after being diagnosed with a rare form of blood cancer called myelofibrosis.
</div>
<div>
 <br>
</div>
<div>
 For as long as I can remember, my dad has been sick.
</div>
<div>
 <br>
</div>
<div>
 I remember being in middle school when I first began to understand the seriousness of my dad's condition. I broke down crying, unable to understand how someone who had worked so hard his entire life, who had sacrificed so much for his family, could be diagnosed with something so terrible. At that age, I didn't fully understand his illness, but I understood how scared I was of losing him.
</div>
<div>
 <br>
</div>
<div>
 My dad immigrated to Gainesville, Florida, in 1986, hoping to build a better life for himself and his family. He worked tirelessly for decades, often putting everyone else's needs before his own. No matter how exhausted he was or how much he was struggling with his health, he always made sure our family was taken care of. Growing up, I watched him work through challenges without complaining, and his resilience became one of my biggest inspirations to pursue a career in science.
</div>
<div>
 <br>
</div>
<div>
 In 2010, he was first diagnosed with essential thrombocythemia. In 2019, his health declined to the point where he could no longer work due to the same blood disorder. Since then, my mom has been our family's primary source of income, working 12-hour days as a nail technician to keep our household afloat.
</div>
<div>
 <br>
</div>
<div>
 For years, we lived with the uncertainty of his condition, hoping that his health would remain stable.
</div>
<div>
 <br>
</div>
<div>
 But in the summer of 2026, just one month before I was supposed to begin dental school, everything changed.
</div>
<div>
 <br>
</div>
<div>
 I was sitting beside my dad in an appointment room at Mayo Clinic when his doctors explained that his condition had progressed into myelofibrosis, a rare and serious form of blood cancer. They told us that without a bone marrow transplant, he might only have one to three years left to live.
</div>
<div>
 <br>
</div>
<div>
 I remember breaking down in that room.
</div>
<div>
 <br>
</div>
<div>
 All I could think about was how unfair it felt. My dad had spent his entire life working to give me opportunities he never had. He supported me through every milestone, every challenge, and every dream I had of becoming a dentist. And suddenly, I was faced with the possibility that the person who helped me get this far might not be here to see me receive my white coat or graduate from dental school.
</div>
<div>
 <br>
</div>
<div>
 I had spent years looking forward to starting dental school, and now one of the happiest milestones of my life was overshadowed by the fear of losing my dad.
</div>
<div>
 <br>
</div>
<div>
 It was heartbreaking to think that after everything he had sacrificed to help me build my future, he might not get the chance to be part of it.
</div>
<div>
 <br>
</div>
<div>
 Despite how devastating this news was, we knew we had to keep fighting.
</div>
<div>
 <br>
</div>
<div>
 Finding a medical team that could treat his condition was difficult, especially in Gainesville. Thankfully, we found an incredible team at Mayo Clinic in Jacksonville, Florida, who gave us hope when we needed it most.
</div>
<div>
 <br>
</div>
<div>
 And after so much uncertainty, we received the news we had been praying for: my dad found a matching bone marrow donor.
</div>
<div>
 <br>
</div>
<div>
 For the first time in a long time, we felt hopeful about his future.
</div>
<div>
 <br>
</div>
<div>
 However, while finding a donor has given my dad a chance at life, our family is now facing an overwhelming financial burden.
</div>
<div>
 <br>
</div>
<div>
 My mom has worked tirelessly to support us since my dad stopped working in 2019. As a nail technician, she spends nearly 12 hours a day on her feet, doing everything she can to make ends meet. Even with her long hours, our family has struggled financially.
</div>
<div>
 <br>
</div>
<div>
 Now, as my dad prepares for his transplant, my mom will have to stop working for several months to become his full-time caregiver. My dad will need to stay in Jacksonville near Mayo Clinic for an extended period during his recovery, and we are hoping to arrange accommodations at Gabriel House, a nearby lodging facility for patients and their families.
</div>
<div>
 <br>
</div>
<div>
 During this time, neither of my parents will be able to work, leaving our household without a steady source of income.
</div>
<div>
 <br>
</div>
<div>
 In addition to the transplant-related medical expenses, we will need to cover temporary housing, transportation, groceries, and a secondary caregiver to help care for my dad if my mom becomes sick or is unable to be there. At the same time, the bills back home in Gainesville won't stop.
</div>
<div>
 <br>
</div>
<div>
 As their only daughter, watching my parents go through this has been one of the most difficult experiences of my life.
</div>
<div>
 <br>
</div>
<div>
 I'm currently in my first year of dental school, pursuing a dream that my parents have worked their entire lives to make possible. Between tuition, student loans, and my own living expenses, I'm not in a financial position to help them nearly as much as I wish I could.
</div>
<div>
 <br>
</div>
<div>
 My parents have never asked me for anything. In fact, even through everything they're going through, they still worry more about my education and well-being than their own struggles.
</div>
<div>
 <br>
</div>
<div>
 They have spent my entire life taking care of me, and now, more than anything, I want to be able to take care of them.
</div>
<div>
 <br>
</div>
<div>
 That's why I'm starting this GoFundMe.
</div>
<div>
 <br>
</div>
<div>
 All donations will go toward helping my family with the financial challenges surrounding my dad's bone marrow transplant and recovery, including: Temporary housing in Jax, Caregiver expenses, Transportation, Food and daily necessities, Household and medical bills.
</div>
<div>
 <br>
</div>
<div>
 I know a donation cannot take away my dad's diagnosis or guarantee that everything will be okay. But it can help lift some of the financial stress my parents have been carrying for years and allow them to focus on what matters most: giving my dad the best possible chance at recovery.
</div>
<div>
 <br>
</div>
<div>
 My dad has spent nearly 40 years building a life for our family in Gainesville. He has worked so hard and sacrificed so much, often forgetting to take care of himself because he was too busy taking care of everyone else.
</div>
<div>
 <br>
</div>
<div>
 I don't want him to spend this next chapter of his life worrying about how we're going to pay our bills. I want him to focus on getting better, spending time with our family, and looking forward to the future.
</div>
<div>
 <br>
</div>
<div>
 More than anything, I want my dad to be there when I receive my white coat. I want him to see me walk across the stage at graduation and become the dentist he always believed I could be. I want him to know that every sacrifice he made for our family was worth it.
</div>
<div>
 <br>
</div>
<div>
 And most of all, I want him to have more time to enjoy the life he worked so hard to build.
</div>
<div>
 <br>
</div>
<div>
 If you're able to donate, no matter the amount, it would mean more to our family than I can express. And if donating isn't possible, sharing our story would be just as appreciated.
</div>
<div>
 <br>
</div>
<div>
 Thank you from the bottom of my heart for reading our story, for your kindness, and for giving my family hope during one of the hardest times of our lives.
</div>
<div>
 <br>
</div>
<div>
 With love and gratitude,
</div>
<div>
 <br>
</div>
<div>
 Lena &amp; Huynh Family ❤️
</div>

Support for Dad’s Bone Marrow Transplant

<div>Help Give Eliyas the Chance Every Child Deserves

</div>

<div><br />

</div>

<div>Our beautiful son, Eliyas, is just 20 <span>months old.</span>
</div>

<div><br />

</div>

<div>He loves giggling at silly animal noises, watching the world with quiet curiosity, and studying our faces with deep concentration. He is determined, full of joy, and the centre of our world.

</div>

<div><br />

</div>

<div>Behind his beautiful smile, Eliyas is living with an ultra-rare genetic condition called TUBB4A-related leukodystrophy.

</div>

<div><br />

</div>

<div>This devastating neurological disorder affects the development of myelin—the protective coating around nerve fibres that allows the brain to communicate with the rest of the body. Without healthy myelin, children can struggle to develop movement, coordination, speech

</div>

<div>and other essential skills. Many experience progressive neurological decline, severe disability and a significantly shortened life expectancy.

</div>

<div><br />

</div>

<div>When Eliyas was first diagnosed, our world fell apart.

</div>

<div>What we believed was a simple developmental delay became every parents worst nightmare. Genetic testing confirmed that Eliyas carries a disease-causing variant in the TUBB4A gene—a condition so rare that only a handful of children worldwide are known to be living with it.

</div>

<div><br />

</div>

<div>Yet every single day, Eliyas reminds us what courage looks like.

</div>

<div>He works tirelessly through physiotherapy to achieve milestones that most children reach naturally. Holding his head a little longer, rolling independently, making a new sound or reaching for a toy are victories we celebrate with overwhelming pride. Every achievement

</div>

<div>represents countless hours of determination and hope.

</div>

<div><br />

</div>

<div>As his parents, we refuse to stop fighting for him.

</div>

<div>That fight has led us to a pioneering personalised antisense oligonucleotide (ASO) gene therapy programme at Rush University Medical Center in Chicago, USA. Eliyas has been assessed and accepted for this investigational treatment, which has been designed specifically

</div>

<div>for children with his genetic condition.

</div>

<div><br />

</div>

<div>This programme offers something we never thought we would have:

</div>

<div>Hope.

</div>

<div><br />

</div>

<div>Hope that the progression of this devastating disease may be slowed.

</div>

<div>Hope that more of Eliyas's abilities can be preserved.

</div>

<div>Hope that he will have the opportunity to achieve milestones that once felt impossible.

</div>

<div><br />

</div>

<div>For us, this treatment is about so much more than medicine. It is about giving our son more time to learn, more time to grow, more time to laugh, and more time to experience childhood.

</div>

<div><br />

</div>

<div>Because TUBB4A-related leukodystrophy is a progressive condition, time is incredibly precious. Early intervention offers the greatest opportunity to protect neurological function before irreversible damage occurs. Every month matters. Unfortunately, this specialised treatment is not available through the NHS and must be funded privately.

</div>

<div><br />

</div>

<div>We are therefore asking for your support to help cover:

</div>

<ul>

<li> Clinical administration and treatment at Rush University Medical Center, Chicago.

</li>

<li>Medical monitoring and specialist follow-up throughout the two-year treatment programme.

</li>

<li> Intensive physiotherapy, hydrotherapy, specialist equipment and rehabilitation to maximise Eliyas's development alongside treatment.

</li>

<li> Essential travel and accommodation costs associated with accessing this highly specialised care.

</li>

</ul>

<div><br />

</div>

<div>We are committed to complete financial transparency and will provide regular updates throughout Eliyas's treatment journey.

</div>

<div><br />

</div>

<div>Eliyas's Story in the Media

</div>

<div><br />

</div>

<div>We are incredibly grateful to the journalists, broadcasters, charities and organisations who have helped share Eliyas's story. Their support has raised vital awareness of TUBB4A-related leukodystrophy and helped our campaign reach families, communities and supporters across

</div>

<div>the UK and beyond.

</div>

<div><br />

</div>

<div>You can read and watch Eliyas's journey here:

</div>

<div><br />

</div>

<div> The Sheffield 1000 – Eliyas: Life Saving Treatment

</div>

<div><a href="https://thesheffield1000.org/eliyas-life-saving-treatment/" target="_blank" rel="noreferrer noopener"></a><a href="https://thesheffield1000.org/eliyas-life-saving-treatment/" target="_blank" rel="noreferrer noopener"><a href="https://thesheffield1000.org/eliyas-life-saving-treatment/" target="_blank" class="" rel="nofollow noopener noreferrer">https://thesheffield1000.org/eliyas-life-saving-treatment/</a></a>

</div>

<div><br />

</div>

<div> BBC News – Parents race to raise funds for son&amp;#39;s life-changing treatment

</div>

<div><a href="https://www.bbc.co.uk/news/articles/ckg49l82zglo" target="_blank" rel="noreferrer noopener"></a><a href="https://www.bbc.co.uk/news/articles/ckg49l82zglo" target="_blank" rel="noreferrer noopener"><a href="https://www.bbc.co.uk/news/articles/ckg49l82zglo" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.bbc.co.uk/news/articles/ckg49l82zglo</a></a>

</div>

<div><br />

</div>

<div> Yorkshire Live – Facebook feature on Eliyas&amp;#39;s fundraising campaign

</div>

<div><a href="https://www.facebook.com/yorkshirelive/photos/a-west-yorkshire-couple-are-desperately-trying-to-raise-200000-to-get-their-baby/1488210220016589/" target="_blank" rel="noreferrer noopener"></a><a href="https://www.facebook.com/yorkshirelive/photos/a-west-yorkshire-couple-are-desperately-trying-to-raise-200000-to-get-their-baby/1488210220016589/" target="_blank" rel="noreferrer noopener"><a href="https://www.facebook.com/yorkshirelive/photos/a-west-yorkshire-couple-are-desperately-trying-to-raise-200000-to-get-their-baby/1488210220016589/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/yorkshirelive/photos/a-west-yorkshire-couple-are-desperately-trying-to-raise-200000-to-get-their-baby/1488210220016589/</a></a>

</div>

<div><br />

</div>

<div> People Magazine – UK Mom Says Moving Is the Only Chance to Save Her Son

</div>

<div><a href="https://people.com/u-k-mom-says-moving-is-the-only-chance-to-save-her-son-16-months-11995276" target="_blank" rel="noreferrer noopener"></a><a href="https://people.com/u-k-mom-says-moving-is-the-only-chance-to-save-her-son-16-months-11995276" target="_blank" rel="noreferrer noopener"><a href="https://people.com/u-k-mom-says-moving-is-the-only-chance-to-save-her-son-16-months-11995276" target="_blank" class="" rel="nofollow noopener noreferrer">https://people.com/u-k-mom-says-moving-is-the-only-chance-to-save-her-son-16-months-11995276</a></a>

</div>

<div><br />

</div>

<div> Run For All – One-Year-Old Eliyas Fights Rare Condition as Mum Takes on 10KChallenge

</div>

<div><a href="https://www.runforall.com/community/people-stories/one-year-old-eliyas-fights-rare-condition-as-mum-takes-on-10k-challenge/" target="_blank" rel="noreferrer noopener"></a><a href="https://www.runforall.com/community/people-stories/one-year-old-eliyas-fights-rare-condition-as-mum-takes-on-10k-challenge/" target="_blank" rel="noreferrer noopener"><a href="https://www.runforall.com/community/people-stories/one-year-old-eliyas-fights-rare-condition-as-mum-takes-on-10k-challenge/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.runforall.com/community/people-stories/one-year-old-eliyas-fights-rare-condition-as-mum-takes-on-10k-challenge/</a></a>

</div>

<div><br />

</div>

<div> ITV News Calendar – Toddler is one of only 12 children worldwide with rare genetic condition

</div>

<div><a href="https://www.itv.com/news/calendar/2026-06-03/toddler-is-one-of-only-12-children-worldwide-with-rare-genetic-condition" target="_blank" rel="noreferrer noopener"></a><a href="https://www.itv.com/news/calendar/2026-06-03/toddler-is-one-of-only-12-children-worldwide-with-rare-genetic-condition" target="_blank" rel="noreferrer noopener"><a href="https://www.itv.com/news/calendar/2026-06-03/toddler-is-one-of-only-12-children-worldwide-with-rare-genetic-condition" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.itv.com/news/calendar/2026-06-03/toddler-is-one-of-only-12-children-worldwide-with-rare-genetic-condition</a></a>

</div>

<div><br />

</div>

<div> BBC Look North – Television feature

</div>

<div><a href="https://youtu.be/CG6dWlU6sGk" target="_blank" rel="noreferrer noopener"></a><a href="https://youtu.be/CG6dWlU6sGk" target="_blank" rel="noreferrer noopener"><a href="https://youtu.be/CG6dWlU6sGk" target="_blank" class="" rel="nofollow noopener noreferrer">https://youtu.be/CG6dWlU6sGk</a></a>

</div>

<div><br />

</div>

<div>We are deeply thankful to every journalist, producer, photographer and organisation that has helped amplify Eliyas's voice. Their kindness has enabled thousands more people to learn about this devastating condition and has given our family hope during the most difficult time

</div>

<div>of our lives.

</div>

<div><br />

</div>

<div>Today, we are asking for your help.

</div>

<div>Every donation, no matter the size, brings Eliyas one step closer to the treatment that could change the course of his life.

</div>

<div>If you are unable to donate, sharing Eliyas's story with your friends, family, workplace, school, faith group or community could help us reach someone who can.

</div>

<div><br />

</div>

<div>Our greatest wish is beautifully simple.

</div>

<div><br />

</div>

<div>To give our son the chance to grow.

</div>

<div><br />

</div>

<div>The chance to learn.

</div>

<div>The chance to laugh.

</div>

<div>The chance to play.

</div>

<div>The chance to build a future.

</div>

<div>The chance every child deserves.

</div>

<div><br />

</div>

<div>From the bottom of our hearts, thank you for standing with our family, believing in Eliyas, and giving us hope.

</div>

<div><br />

</div>

<div>With love and gratitude,

</div>

<div>Jasmin, Hasnain &amp; Eliyas

</div>

Eliyas needs life saving treatment

<div>Hi, there. My name is Vanesa Argueta and I'm from New York. I'm currently fundraising on behalf of my dear friend, Ahmed Altaban and his family (of 8) trapped in Gaza. They live in a town at the center of Gaza Strip and have been in great danger since October 2023. Your help would mean the absolute world to me and this family. Please, allow me to kindly introduce them to you.
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_1715996634166259_r.png" width="100%" />
<div><em>(zoom in!) </em>
</div>
<div><br />
</div>
<div>There are eight members of the family: Heba (the mother), Amjad (the father), their sons Ahmed, Khaled, Soliman, and Abdallah, their young daughter Lamar, and Ahmed (the grandfather).
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<div><br />
</div>
<div>The siblings were all pursuing engineering, design, or completing grade school.
</div>
<div>Lamar in particular aspires to be a doctor some day.
</div>
<div><br />
</div>
<div>If you cannot donate, please consider sharing this page with others or engaging with our social media content (@thealtabans on Instagram). <strong>Any amount</strong> (even $5) <strong>is highly appreciated</strong> and will bring Ahmed and his family closer to safety as soon as possible.
</div>
<div>Follow this family's page on <a href="https://www.instagram.com/thealtabans/" target="_blank" rel="noreferrer noopener">Instagram</a> for more updates and ways to support them. Thank you so, so much for all of your support!
</div>
<div><br />
</div>
<div>Here is a message from the family's youngest child, Abdallah (Abood):
</div>
<div><br />
</div>
<div class="youtube-replace"><br />
</div>
<div><br />
</div>
<div>Here is a message written by his older brother, Ahmed:
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<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_1716040011616172_r.jpeg" width="100%" />
<div><br />
</div>
<div>"Hi, I'm Ahmed Altaban. I'm 22 years old and aspire to become a Biomedical Engineer but my university studies were interrupted due to the war in the Gaza Strip. I am from Deir al Balah which is located right in the middle of Gaza. It has taken me some time to gather my thoughts and courage to write this, but the urgency to save my future, my life, and the lives of my family is stronger than any hesitation.
</div>
<div><br />
</div>
<div>I am making a sincere appeal, and I strongly ask for your generous support to help us leave Gaza and survive... The situation in this city has become catastrophic, as we face difficult conditions represented by a lack of food, medicine, water, in addition to the spread of diseases and epidemics.
</div>
<div><br />
</div>
<div>Because of the devastating war that destroyed everything, including my home, dreams, ambitions, and other things, we are exposed to danger and death several times throughout the day as we cannot move freely and go anywhere. Because of that, we hope that people of conscience will support us. We sincerely ask for your help, share our story, and hope that your compassion will guide us on this difficult journey. Any amount that you could donate would make an incredible impact on our survival. Thank you so much for your help.
</div>
<div><br />
</div>
<div>Sincerely,
</div>
<div>Ahmed"
</div>
<div><br />
</div>
<div><em>Donations will cover:</em>
</div>
<div><em>- Evacuation Tickets ($35,000 per person as of June 2026) </em>
</div>
<div><em>- Bus transportation from Palestine border to Cairo, Egypt </em>
</div>
<div><em>- Egyptian Visa</em>
</div>
<div><em>- GoFundMe &amp; Transfer fees </em>
</div>
<div><br />
</div>
<div><strong>Photo Gallery  </strong>
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_1716040045884412_r.jpeg" width="100%" />
<div>A glimpse around the neighborhood.
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_1716040135858336_r.jpeg" width="100%" />
<div>Ahmed collecting (salted) water for basic necessities.
</div>
<div><br />
</div><img alt="79524885_1724810679212005_r.jpg" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_1724810679212005_r.jpg" width="100%" />
<div>Image of Ahmed’s academic building after being destroyed. 
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_1728522681621543_r.jpeg" width="100%" />
<div>Ahmed bakes bread that his parents prepared.
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_172852299760163_r.jpeg" width="100%" />
<div>Mr. Altaban's beautiful convenient store before it was bombed and completely burned down.
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_1728523736204558_r.jpeg" width="100%" />
<div>The family enjoyed eating fresh dates from the market.
</div>
<div><br />
</div>
<div><strong>Keep in touch</strong>
</div>
<div>Learn more about how you can to help this kind family!
</div>
<div><a href="https://linktr.ee/savethealtabans" target="_blank" rel="noreferrer noopener"><a href="https://linktr.ee/savethealtabans" target="_blank" class="" rel="nofollow noopener noreferrer">https://linktr.ee/savethealtabans</a></a>
</div>
<div><br />
</div>
<div>Stay connected with us on Instagram (@thealtabans) for updates and more ways to support this amazing family!
</div>
<div><br />
</div>
<div>Thank you so, so much ❤️
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/79524885_1717014798448161_r.png" width="100%" />
<div><br />
</div>
<div>Follow @thealtabans on Instagram ❤️
</div>
<div><a href="https://www.instagram.com/thealtabans/" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/thealtabans/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/thealtabans/</a></a>
</div>
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<div>Follow Ahmed on TikTok! He’s has over 15k supporters on that platform. Help us by boosting his upcoming posts!
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<div><a href="https://www.tiktok.com/" target="_blank" rel="noreferrer noopener"><a href="https://www.tiktok.com/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.tiktok.com/</a></a>@7amada.family?_t=ZP-8xHhwMC9Ho6&amp;_r=1
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Save Ahmed and His Family in Gaza

<div>I never expected to be running the London Marathon.
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<div>I entered the ballot with friends not expecting anything to come from it, but somehow I was lucky enough to secure a place for 2027.
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<div>The only problem?
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<div>I’m not a runner.
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<div>Over the next nine months, I’ll be taking on the biggest challenge I’ve ever attempted - going from never running to standing on the start line of the London Marathon and completing 26.2 miles.
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<div>But this journey isn’t really about me.
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<div>I want to use this unexpected opportunity to support a little boy called Eliyas.
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<div>Eliyas is living with an extremely rare genetic condition called TUBB4A-related leukodystrophy, which affects the development of myelin in his brain - an essential substance involved in movement, coordination and neurological function.
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<div>For Eliyas, everyday milestones that many of us take for granted are achievements that require incredible strength and determination.
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<div>Holding his head up for longer.
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<div>Making new sounds.
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<div>Every step forward is something to celebrate.
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<div>Despite the challenges he faces, Eliyas continues to show incredible resilience, supported by his loving family who are doing everything they can to give him the brightest possible future.
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<div>A pioneering gene therapy programme in the United States could help slow or alter the progression of Eliyas’s condition, giving him the opportunity to continue reaching milestones and experiencing more of the moments every child deserves.
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<div>Accessing this treatment and the specialist care around it comes at a significant cost, which is why his family are fundraising for the support needed. Any donations made through this page will be passed directly to Eliyas’s main fundraising campaign, helping his family get closer to their goal.
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<div>When I found out I had a place in the London Marathon, I realised I had been given an opportunity.
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<div>Now I want to use that opportunity to help Eliyas and his family.
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<div>Over the coming months, I’ll be sharing my journey from first run to marathon day - the progress, challenges and hopefully the finish line on 24 April 2027.
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<div>Every mile will be run with Eliyas in mind.
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<div>If you’re able to donate, no matter how small, thank you. Your support will help Eliyas’s family get closer to their fundraising goal and access the treatment and care they are working so hard towards.
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<div>If you can’t donate, sharing this page would mean just as much.
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<div>Thank you for being part of this journey and helping me turn an unexpected marathon place into something meaningful for Eliyas.
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<div>You can follow Eliyas's story on Instagram: <a href="https://www.instagram.com/eliyastubb4a/" target="_blank" rel="noreferrer noopener">eliyastubb4a</a>
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From First Run to Marathon Day: 26.2 Miles for Eliyas

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<div>Eliyas is a 16-month-old little boy, full of joy, love and determination. He has recently been diagnosed with TUBB4A related leukodystrophy, a rare and life-limiting neurological condition.
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<div>As a group “Eliyas's Angels,” we are doing everything we can to give him hope. We are raising funds to access a specialist gene therapy programme in the United States that may help change the course of his condition.
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<div>In support of this, we are walking 10,000 steps every day throughout July to raise awareness and vital funds for his treatment, travel, and ongoing care.
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<div>We are walking for Eliyas’s future—every step, every donation, every share matters.
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<div>And follow his story on Instagram
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<div><a href="https://www.instagram.com/eliyastubb4a" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/eliyastubb4a/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/eliyastubb4a/</a></a> and message us to join the cause
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<div>Thank you
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<div>Eliyas's Angels xx
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Eliyas's Angels - Walk4Eliyas - help us save his life

<div>I'm Jassi and I'm Running 10K For My Nephew Eliyas.  Please Help Us Save Him
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<div>My nephew Eliyas is one year old. He is funny, fierce, and full of light. And he is fighting for his life. I need you to donate so we can all help him! 
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<div>Eliyas has been diagnosed with TUBB4A related leukodystrophy,  a devastating and extremely rare genetic condition that attacks the brain and can be life limiting. Only a handful of children in the entire world are known to have it.
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<div>But Eliyas has not given up. Every single day he pushes through physiotherapy, fights for every milestone, and amazes everyone around him. He is one year old and he is the bravest person I know.
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<div>His parents have found hope in a pioneering gene therapy programme at Rush University Medical Center in Chicago. This treatment could slow or alter the course of this condition and give him more time, more life. But the NHS cannot fund it, and time is everything.
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<div>That is why I am running 10 kilometres for him.
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<div>Every penny raised will go towards:
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<div>His clinical care and treatment in Chicago
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<div>Medical monitoring across a two year programme.
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<div>Supportive therapies to keep him strong.
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<div>Please donate. Please share. Help us give this little boy the chance he deserves.
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<div>He is one year old. Every pound matters.
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<div>Love Jassi.
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<div>Eliyas's Massi
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Massi's (Auntie) Running 10k for her special nephew Eliyas

<p>My grooming van isn't fully functioning properly and needs major repair in order to get back on the road to take care of the fur babies waiting for me. As a pet groomer, my van is essential for reaching clients and providing the care their pets need. Right now, the van's generator is failing, making it impossible to operate my equipment and serve the animals who depend on me. 
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<p>The funds raised will help me purchase a new generator for my van, allowing me to continue offering grooming services to the pets in our community. With your support, I can get back to work and ensure that every fur baby receives the care and attention they deserve. Your generosity will make a real difference in keeping my business running and helping local families and their pets. 
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<p>Without a proper generator, my business is at high risk of closing its doors completely. I'm asking for your support to help me keep caring for the pets in our community. Every donation, big or small, brings me closer to getting back on the road and making sure our furry friends stay happy and healthy. 
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<p>since I had posted this i am very overwhelmed by so many of you reaching out to me.. I even had private phone call with kind words that touched me in so many ways !! I work with abused animals that are in there rescue homes now, that gave them hope that I there is a groomer out there to handle there grooming needs with gentle hands !! some local humans have reached out to me because they were or still in abusive situations, this touches my heart in so many ways.. Not only all of you helping me but also helping others out here. I am beyond grateful for everyone who reached out to me and gave me more strength to push foward !! 
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Help Save My Pet Grooming Van

<div>I am walking 150km for to help fund Elsie’s many therapies and treatments for her medication resistant epilepsy.

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<div>Elsie has a debilitating condition called Infantile Spasms, which is a serious form of Epilepsy and a medical emergency. Elsie continues to have seizures every 5 to 10 minutes, including in her sleep so she’s currently going through 100’s of seizures per day. Not only are these seizures exhausting for her little body, infantile spasms and the medications she is on, cause global developmental delay which affects movement, speech, eating, cognitive skills etc. Due to emotional trauma from all the treatments, Elsie is scared of eating orally so is fed a blended diet via a feeding tube. Everything a child can do easily day to day, Elsie struggles with and she needs 24/7 care and support, which resulted in Hannah giving up her self-made business 3 years ago and it’s likely she won’t be able to return to for the foreseeable future.

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<div>Elsie was a happy, smiley little girl reaching all her milestones until one day at 4 months old, in aug 2023, she started having seizures, this then escalated quickly to hundreds of seizures daily over the next few days and she began gruelling treatment programs but unfortunately none of them worked.

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<div>Elsie has spent months at a time in hospital and suffered numerous other illnesses as a result of her condition. She has been on countless medications (some have damaged her brain and all have severely impairing side effects) and NHS prescribed treatments to try and reduce her seizures but sadly none have had any significant or lasting effect, therefore her condition is classed as ‘uncontrolled and drug resistant’. She has had lots of testing done, been poked and prodded, she’s had surgery and been scanned by numerous machines over the past nearly 3 years and this will sadly continue until she improves. Elsie has not had a cause identified and this means we are limited in the support she can get from the already underfunded and overstretched NHS, plus it does not allow us to pinpoint a direct treatment route.

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<div>At the start of 2024 we took the decision to look privately at support for her and over the next few months we started some therapies and continue to see improvements, particularly with her physical development.

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<div>Since then we have spent every day researching a holistic approach to support her such as food, therapy and supplements all of which have proven positive, not just to help her epilepsy but for her overall health and wellbeing to enable her to have the childhood she deserves and a better quality of life.

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<div>We hope you can support Elsie and any contribution no matter the value will be appreciated by us all!

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<div>Elsie’s Treatment Plan – sadly no treatment is free and the majority are a significant cost, combined it adds up to tens of thousands of pounds every year.

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<div>Our top treatments/therapies we’re hoping to try or continue are;

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<div>• We would love to take Elsie for more weeks of intensive physio, speech and feeding therapy

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<div>• Hyperbaric Oxygen Chamber – to aid her recovery from drug toxicity and boost development

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<div>• Physio – we have been taking Elsie to a specialist physio (Chloe at Ribble Valley Children’s Physiotherapy) privately for the last 18 months and she has been doing really well. We’d love to be able to continue and to also book some intensive weeks of this.

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<div>We also see Agi (very special children) who does CME therapy and have seen incredible progress through this
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<div>• Functional Medicine and CBD – we’re currently working with a practitioner to help improve Elsie’s overall health, focusing on her gut as there are huge links between epilepsy and gut health. We’re also hoping to try CBD as a treatment option

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<div>Other treatments we want to be able to/continue to provide that we have seen a benefit to Elsie are;

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<div>• Acupuncture, Chiropractor, Osteopath and Craniosacral Therapy

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Walking for Elsie

<div><strong><em>(English, Arabic, German, Polish and Russian translation below) </em></strong>
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<div>English: 
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<div>Hello World, 
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<div>On Saturday, the 17th of January 2026, life changed forever. A phone call from abroad shattered my world. My beautiful, vivacious, confident daughter Chenai Johnson, 23 years of age had been in a car accident in Hurghada, Egypt. The accident caused horrific and devastating injuries; her spine was broken and her spinal cord severed. Chenai has a complete spinal injury she has no movement or feeling below the waist. Despite spinal fusion surgery she remains paralysed. Doctors say she will never walk again. 
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<div>Chenai is a strong, charismatic young lady who loves to dance and laugh. At the age of 22 she moved to Hurghada in Egypt pursing her dreams, working in entertainment as a sports animator.  Now she dreams of regaining her independence and adjusting to her new way of life. She has begun to do this with determination through physiotherapy where she works hard at strengthening her back and building up her arm strength ready for life as a wheelchair user.
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<div>However, adjusting to her new life involves an ambulance escort from London Gatwick Airport, buying equipment, rehabilitation and making home adaptations to ensure she has the best possible life so in time she can regain her independence and become her best self.  These things come at a cost and as a family we are fighting her corner and doing everything we can.
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<div>We are asking for the kindness and generosity of friends and strangers to donate so my precious, brave and resilient daughter can face the future and receive the best possible care, equipment and rehabilitation to overcome the many challenges in this new world she has been thrown into. 
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<div>Any donation, no matter how small or big, and even simply sharing this page would mean more to us than words can ever express. 
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<div>Thank you for taking the time to read Chenai’s story and for keeping her in your thoughts and prayers.
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<div>Arabic – 
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<div>مرحباً أيها العالم،
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<div>في يوم السبت الموافق 17 يناير 2026، تغيرت حياتي إلى الأبد. مكالمة هاتفية من الخارج حطمت عالمي. ابنتي الجميلة، المفعمة بالحيوية والثقة، شيناي جونسون، البالغة من العمر 23 عاماً، تعرضت لحادث سير في الغردقة، مصر. تسبب الحادث في إصابات مروعة ومدمرة؛ فقد كُسر عمودها الفقري وانقطع نخاعها الشوكي. تعاني شيناي من إصابة كاملة في العمود الفقري، فهي لا تستطيع الحركة أو الإحساس في الجزء السفلي من جسمها. على الرغم من خضوعها لعملية دمج الفقرات، إلا أنها لا تزال مشلولة. يقول الأطباء إنها لن تمشي مرة أخرى.
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<div>شيناي شابة قوية وجذابة، تعشق الرقص والضحك. في سن الثانية والعشرين، انتقلت إلى الغردقة في مصر لتحقيق أحلامها، وعملت في مجال الترفيه كمقدمة برامج رياضية. الآن، تحلم باستعادة استقلاليتها والتأقلم مع حياتها الجديدة. وقد بدأت بالفعل في تحقيق ذلك بعزيمة من خلال العلاج الطبيعي، حيث تعمل بجد على تقوية ظهرها، وبناء قوة ذراعيها استعداداً لحياة جديدة كمستخدمة للكرسي المتحرك.
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<div>مع ذلك، يتطلب تأقلمها مع حياتها الجديدة شراء معدات، وتأهيل، وإجراء تعديلات منزلية لضمان حصولها على أفضل حياة ممكنة، حتى تستعيد استقلاليتها وتصبح أفضل نسخة من نفسها. هذه الأمور لها تكلفة، ونحن كعائلة نبذل قصارى جهدنا لمساعدتها.
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<div>نطلب من الأصدقاء والغرباء التبرع بسخاء حتى تتمكن ابنتي الغالية، الشجاعة، والصامدة من مواجهة المستقبل وتلقي أفضل رعاية ومعدات وتأهيل ممكن للتغلب على التحديات الكثيرة في هذا العالم الجديد الذي وجدت نفسها فيه.
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<div>أي تبرع، مهما كان صغيرًا أو كبيرًا، وحتى مجرد مشاركة هذه الصفحة، يعني لنا الكثير.
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<div>شكرًا لكم على قراءة قصة شيناي وعلى دعواتكم لها.
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<div>German – 
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<div>Hallo Welt,
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<div>Am Samstag, dem 17. Januar 2026, veränderte sich mein Leben für immer. Ein Anruf aus dem Ausland erschütterte meine Welt. Meine wunderschöne, lebensfrohe und selbstbewusste Tochter Chenai Johnson, 23 Jahre alt, hatte einen schweren Autounfall in Hurghada, Ägypten. Der Unfall verursachte entsetzliche Verletzungen: Ihre Wirbelsäule war gebrochen und ihr Rückenmark durchtrennt. Chenai ist vollständig querschnittsgelähmt und kann sich unterhalb der Taille weder bewegen noch fühlen. Trotz einer Wirbelsäulenversteifung ist sie weiterhin gelähmt. Die Ärzte sagen, sie wird nie wieder laufen können.
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<div>Chenai ist eine starke, charismatische junge Frau, die gerne tanzt und lacht. Mit 22 Jahren zog sie nach Hurghada, um ihren Traum zu verwirklichen und arbeitete als Sportanimatorin im Unterhaltungsbereich. Nun träumt sie davon, ihre Unabhängigkeit zurückzuerlangen und sich an ihr neues Leben anzupassen. Mit Entschlossenheit hat sie damit begonnen und trainiert Physiotherapie, um ihren Rücken zu stärken und ihre Armkraft für ein Leben im Rollstuhl aufzubauen.
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<div>Die Umstellung auf ihr neues Leben erfordert jedoch die Anschaffung von Hilfsmitteln, Rehabilitation und Anpassungen in ihrem Zuhause, um ihr ein bestmögliches Leben zu ermöglichen, damit sie mit der Zeit ihre Unabhängigkeit zurückgewinnt und ihr volles Potenzial entfalten kann. All dies ist mit Kosten verbunden, und wir als Familie setzen alles daran, sie dabei zu unterstützen.
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<div>Wir bitten Freunde und Bekannte um ihre Großzügigkeit und Spenden, damit unsere wertvolle, tapfere und widerstandsfähige Tochter ihrer Zukunft gewachsen ist und die bestmögliche Pflege, Hilfsmittel und Rehabilitation erhält, um die vielen Herausforderungen in dieser neuen Welt zu meistern.
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<div>Jede Spende, egal wie klein oder groß, und selbst das Teilen dieser Seite bedeuten uns unendlich viel.
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<div>Vielen Dank, dass Sie sich die Zeit genommen haben, Chenais Geschichte zu lesen und sie in Ihre Gedanken und Gebete einzuschließen.
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<div>Polish – 
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<div>Witaj świecie,
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<div>W sobotę, 17 stycznia 2026 roku, życie zmieniło się na zawsze. Telefon z zagranicy roztrzaskał mój świat. Moja piękna, pełna życia i pewności siebie córka, Chenai Johnson, lat 23, miała wypadek samochodowy w Hurghadzie w Egipcie. Wypadek spowodował straszne i druzgocące obrażenia; złamała kręgosłup i przerwała rdzeń kręgowy. Chenai ma całkowity uraz kręgosłupa, nie ma ruchu ani czucia poniżej pasa. Pomimo operacji zespolenia kręgosłupa, pozostaje sparaliżowana. Lekarze twierdzą, że nigdy więcej nie będzie chodzić.
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<div>Chenai to silna, charyzmatyczna młoda kobieta, która uwielbia tańczyć i śmiać się. W wieku 22 lat przeprowadziła się do Hurghady w Egipcie, aby realizować swoje marzenia, pracując w branży rozrywkowej jako animatorka sportowa. Teraz marzy o odzyskaniu niezależności i przystosowaniu się do nowego stylu życia. Zaczęła to robić z determinacją poprzez fizjoterapię, gdzie ciężko pracuje nad wzmocnieniem pleców i wzmocnieniem ramion, przygotowując się do życia na wózku inwalidzkim.
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<div>Jednak przystosowanie się do nowego życia wiąże się z zakupem sprzętu, rehabilitacją i dostosowaniem domu, aby zapewnić jej jak najlepsze warunki do życia, dzięki czemu z czasem odzyska niezależność i stanie się najlepszą wersją siebie. To wszystko ma swoją cenę i jako rodzina walczymy o jej przetrwanie, robiąc wszystko, co w naszej mocy.
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<div>Prosimy o życzliwość i hojność przyjaciół i nieznajomych o darowizny, aby moja kochana, dzielna i odporna córka mogła stawić czoła przyszłości i otrzymać najlepszą możliwą opiekę, sprzęt i rehabilitację, aby pokonać liczne wyzwania w tym nowym świecie, w którym się znalazła.
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<div>Każda darowizna, niezależnie od jej wielkości, a nawet samo udostępnienie tej strony, znaczy dla nas więcej, niż można wyrazić słowami.
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<div>Dziękujemy za poświęcenie czasu na przeczytanie historii Chenai i za to, że pamiętacie o niej w swoich myślach i modlitwach.
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<div>Russian – 
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<div>Привет, мир!
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<div>В субботу, 17 января 2026 года, моя жизнь изменилась навсегда. Телефонный звонок из-за границы потряс мой мир. Моя прекрасная, жизнерадостная, уверенная в себе дочь, Ченай Джонсон, 23 лет, попала в автомобильную аварию в Хургаде, Египет. Авария причинила ей ужасные и тяжелые травмы: сломан позвоночник и поврежден спинной мозг. У Ченай полная травма позвоночника, она не может двигаться и чувствовать ниже пояса. Несмотря на операцию по сращению позвонков, она остается парализованной. Врачи говорят, что она никогда больше не сможет ходить.
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<div>Ченай — сильная, харизматичная молодая женщина, которая любит танцевать и смеяться. В 22 года она переехала в Хургаду, Египет, чтобы осуществить свои мечты, работая в индустрии развлечений спортивным аниматором. Теперь она мечтает вернуть себе независимость и адаптироваться к новой жизни. Она начала это делать с решимостью, занимаясь физиотерапией, где усердно работает над укреплением спины и силы рук, готовясь к жизни в инвалидном кресле.
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<div>Однако адаптация к новой жизни включает в себя покупку оборудования, реабилитацию и обустройство дома, чтобы обеспечить ей наилучшие условия жизни, чтобы со временем она смогла восстановить свою независимость и стать лучшей версией себя. Все это требует усилий, и мы, как семья, боремся с ней, делая все возможное.
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<div>Мы просим друзей и незнакомых людей проявить доброту и щедрость и сделать пожертвования, чтобы моя драгоценная, смелая и стойкая дочь могла смотреть в будущее и получать наилучший уход, оборудование и реабилитацию, чтобы преодолеть многочисленные трудности в этом новом мире, в который она попала.
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<div>Любое пожертвование, независимо от размера, и даже простое распространение этой страницы будет значить для нас больше, чем можно выразить словами.
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<div>Спасибо, что уделили время, чтобы прочитать историю Ченай, и что вы помните о ней в своих мыслях и молитвах.
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Chenai's New World  - Complete Spinal Cord Injury

Abigail Nandray

<div>Hi, I’m Abi.
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<div>Eliyas is our nephew, and he means absolutely everything to our family.

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<div>He’s just one year old, and he’s already facing more than most of us ever will.

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<div>In January 2026, on his first birthday, our world changed forever. What should have been a weekend full of celebration became something none of us could have prepared for. My sister Jasmin and her husband Hasnain had to share the devastating news that Eliyas had been diagnosed with a rare genetic condition called TUBB4A-related leukodystrophy.

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<div>I will never forget that moment.

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<div>This condition affects how myelin develops in the brain, impacting movement, coordination and development. There is currently no cure, and without treatment, his future and ability to live a full life is uncertain.

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<div>But there is hope.

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<div>A pioneering gene therapy programme in Chicago, United States, could give Eliyas the chance to slow the progression of his condition and protect the abilities he has worked so hard to build through intensive physiotherapy.

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<div>This treatment is unfortunately not offered by the UK’s NHS. Early intervention is critical, and right now, we are racing against time to raise enough funds in the coming months to give him that chance.

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<div>Watching my sister and her husband navigate this has been incredibly emotional. The strength, resilience and love they show for Eliyas every single day is something I can’t even begin to put into words. They are doing everything they possibly can to fight for their son’s future, and I have so much respect for the sacrifices they are making, including relocating across the world for his treatment.

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<div>So we wanted to do something too.

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<div>That’s why we’ve decided to take on a challenge to raise funds for his treatment:

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<li>The <strong>32km</strong> (<strong>20</strong> <strong>mile</strong>) <strong>Edale Skyline</strong> hike in the Peak District, a challenging 9-12 hour route, that my partner Mac and I will be completing together (mid–end of May)  ⛰️

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<div>This is completely outside of our comfort zone, and something we have been training hard for in the last few weeks.

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<div>But nothing compares to what Eliyas is going through every single day.

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<div>This is our way of standing beside our family and fighting for him in the only way we know how.

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<div>If you’re able to donate, even a small amount, it would mean so much. £10, £15 anything at all helps bring Eliyas one step closer to the treatment that could change his future.

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<div>Please note that all funds will go directly towards Eliyas’ main GoFundMe page:

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<div><a href="https://gofund.me/3505b7404" target="_blank" rel="noreferrer noopener">Eliyas GoFundMe</a> - please consider reading the full story here too.

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<div>If you can’t donate, sharing this page helps more than you know.

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<div>You can also follow Eliyas’ journey outside of the fundraiser, on Instagram &amp; TikTok: @eliyastubb4a, where I’ll be sharing updates on his progress, our events, and the challenges along the way.

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<div>Thank you for supporting him, and for being part of this journey.

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<div>Abi &amp; Mac 

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<div>#EliyasTubb4A

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</div><img class="text-editor_textEditorImage__43_GE" alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/101269651_1774291614706622_r." width="100%" />

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Abigail Nandray

Abigail Nandray

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