Hello everyone,
We are reaching out for support to help our beautiful little girl, Aria 5years old who faces daily challenges due to several complex medical conditions.
Aria has been diagnosed with Epilepsy, 16p11.2 Duplication Syndrome, Hypertonia, and AuDHD (Autism and ADHD). She is also currently being assessed for Cerebral Palsy. Despite everything she faces, she continues to show incredible strength, determination, and resilience every single day.
One of our biggest concerns is keeping her safe, particularly at night. Due to her epilepsy, developmental needs, muscle stiffness and pain caused by hypertonia, and sensory challenges, a standard bed no longer provides the level of safety she requires. We are hoping to raise funds to purchase a specialist floor bed and safety equipment to create a secure environment where she can sleep safely and comfortably.
The equipment we are fundraising for will help:
* Reduce the risk of injury during seizures.
* Prevent falls from height during the night.
* Provide a safe sleeping environment tailored to her additional needs.
* Give her greater comfort and independence.
* Allow us, as her family, to have greater peace of mind knowing she is safer while sleeping.
As many families caring for children with complex needs know, specialist equipment can be extremely expensive and is often not fully funded. While we will continue to explore every avenue of support available, we are asking for help from our community to make these essential adaptations possible as soon as we can.
Every donation, no matter the size, will bring us one step closer to creating a safer bedroom for Aria. If you are unable to donate, sharing our fundraiser with friends, family, and your wider community would mean the world to us.
Thank you for taking the time to read our story and for helping us provide the safety, comfort, and security our little girl deserves.
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With love and Sass
Aria xx ( Mum Becca posting on behalf)