••••As We Leave the Home We’ve Known for 20 Years••••
For 20 years, this house has been our family’s home—the place where we brought our babies home, raised our 6 children, celebrated so many milestones, and built the ordinary routines we never imagined we would one day long for. Now we’re preparing to leave it behind and begin again. I wish I could say this feels like a hopeful, simple fresh start. Instead, it feels heartbreaking, necessary, and frightening all at once.
Since losing Aaron, I’ve learned how precious time is. You can earn more money and replace material things, but you can never slow time. You can’t make more time and you can’t get it back.
It has become too hard for me to stay in this house. Every time I go into the basement, I see where the body bag was laid out. I see the white bathroom door that once I opened, I was changed forever & will never be the same. I remember seeing Aaron’s face and feeling how cold he was. I relive that nightmare over and over. Sometimes, when the flashbacks are bad, I can barely breathe.
And everywhere I go, I’m reminded of him. I see the light pole he hid behind & asked me to come get him only 10 mins into the freshman homecoming football game, after learning he wasn’t included in his friends’ plans. I see the hockey rink he loved for so long, and remember how painful it was when he was told he was too slow and didn’t make the team. Hockey had been one of the places where he felt accepted, and losing that social outlet hurt him deeply. I see the high school he loved, where his mental illness eventually made him feel paranoid and unsafe. He was so afraid, and the voices were so real to him, that he didn’t walk in his graduation.
My heart breaks a million times a day. It’s exhausting trying to wear an “I’m okay” face when I am not okay—and when the grief is written all over me. If you’ve seen me, you understand how grief can affect you physically!
Some people may think moving across the country in the middle of everything we’re carrying sounds crazy. But after finding my own child—the one who made me a mom—cold, stiff, and gone, this move is not the hardest thing I’ve faced. I would live in a tent if it meant Aaron could come back.
This next chapter is something our whole family desperately needs. Our new home will have my parents on one level, with space and accessibility for my mom to get around. It will also give my parents privacy while keeping them close, with a connecting door so I can pop over when they need help. They’ll be able to reach what they need by golf cart, and we can support them at home as my dad’s dementia continues to take pieces of the dad I know. The doctors have told him he should be grateful for my mom and me, and for the everyday ways we’ve helped him over the past year; but he seems to get more mean and paranoid every day. Moving him will be hard, especially as his illness changes how he sees things, but we’re trying to create a safer, more supportive way forward for all of us.
We also don’t know how much time we have left with Ailyn. Her heart is slowly failing and she has too many co morbidities (seizures, bladder, ENT issues) that the outcome of surgery would likely not be well. So she is under home hospice care and we are focusing on her quality of life. She loves being outside, the sun, and the water. We want to make the most of the time we have with her and make as many memories together as we can.
Moving is expensive, and the costs add up quickly. We’re also preparing for things Ailyn needs, including sensory items for her sensory room, as well as furniture that will allow her to sleep in our room with all her medical equipment.
Once we have access to the new house, I’ll create an Amazon list with some of the items that would help her.
I wish this were all a bad dream. I wish I could wake up tomorrow, make sure Aaron was ready for class and work, get the other kids off to school, and go back to the ordinary life I didn’t know I’d miss so much.
We’re scared, and we’re grieving. But we’ve already lived through the worst thing I can imagine. Taking a leap into a new place feels possible, and we’re ready to begin.
If you’re able to help us with this next chapter, we are deeply grateful. If you can’t donate, sharing our GoFundMe means so much, too. Thank you for standing beside our family and helping us make the most of the time we have.