Fransheska

I’ve been fighting a silent, invisible medical battle for years — one that escalated into a full medical crisis on Christmas Day 2025. What began as unexplained pain, neurological symptoms, and progressive weakness has now left me bedridden. I can’t walk, sit upright, or lie flat without triggering severe neurological crashes, seizures, vision loss, and choking sensations in my neck. If you knew me before, you know this isn’t who I was. I was extremely active and dedicated over 12 years of my life to bodybuilding and powerlifting. Movement wasn’t just something I did — it was part of my identity. I was hospitalized for 11 days in unrelenting 10/10 pain that was never adequately controlled. During that time, my condition continued to decline. I experienced symptoms consistent with intracranial hypotension, tremors, non-epileptic seizures, slurred speech, blurred vision, and severe autonomic crashes with even slight movement. After discharge, I was rehospitalized for medically induced opioid withdrawal, and Neurology told me further care would have to be handled outpatient. That’s when it became clear the level of care I need isn’t available locally. My symptoms are constant and severe: orthostatic headaches, crushing neck pain that makes my head feel “too heavy,” bilateral occipital and trigeminal neuralgia, nausea, tinnitus, limb weakness, and pain that worsens dramatically when I’m upright. I’ve already been formally diagnosed with craniocervical instability (CCI) by out-of-state specialists, and doctors also suspect an active spinal CSF leak — conditions that require highly specialized care. Treating CCI without first ruling out a leak could be dangerous and may worsen my condition. Right now, I’m in the process of pursuing consultations with three neurosurgeons who specialize in CCI, EDS, and Chiari malformation. All of them are out of state and out of network. I’m also trying to be re-evaluated by Neurology to obtain updated MRI imaging to support these consultations and move my case forward. Without timely evaluation by the right specialists, there’s a very real risk of permanent neurological damage and irreversible loss of mobility. I can’t safely fly, drive, sit upright, or lie flat. Time is critical. I’m currently unable to work, and the costs of medical care, travel, lodging, imaging, and specialist consultations continue to grow. This fundraiser isn’t about comfort — it’s about survival and access to the care I need for a chance at a future. Funds raised will help cover: Transportation and lodging for out-of-state specialist consultations Out-of-pocket evaluations, imaging, and procedures related to CCI and CSF leak assessment Uninsured gaps in diagnostic testing and medical care Basic living expenses while I fight for answers and treatment I’m committed to providing transparent updates as evaluations progress, including diagnostic findings, specialist recommendations, and how funds are being used. If you’ve ever wondered what it’s like to live inside a body that collapses while the system stalls — this is it. Please help me access the care I desperately need before it’s too late. Any held would be great and you can share this with others as well! You can follow my journey on TikTok and Instagram: @rebuildwithsheska Any amount helps. Any share truly matters.