Paris Hilton

Jimmy  Darts

Flavor Flav

SB Mowing

Kalina Silverman / @makebigtalk on Instagram

The Dogist

Patriotic Kenny Foundation

Pattie Gonia

Little Miss Flint

Carlos Eduardo Espina

Samuel Weidenhofer

Ben Saunders - Flawless Cleaning

Peter Bond

That Good News Girl

Ask Uncle Jack

Amy Jandrisevits

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Tess Bohne

Latonja and Taylor Richardson

Officer Richard Craig

<div>Steeds vaker word je niet ziek van je aandoening, maar van het zorgsysteem eromheen. Je wordt doorgestuurd, op een wachtlijst gezet en vult voor de vijfde keer hetzelfde formulier in. Niemand bewaakt het geheel. Zorgfuik maakt dat patroon zichtbaar. Nu is er een officiële stichting nodig om dat onafhankelijk en transparant te kunnen doen. Doel: 1.500 euro.
</div>
<div><br />
</div>
<div><strong>English version below.</strong>
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/104542881_1782054615928280_r.png" width="100%" />
<div><br />
</div>
<div>Je loopt niet vast in de zorg. Je loopt vast tussen de loketten.
</div>
<div><br />
</div>
<div>Mensen die hulp nodig hebben, raken steeds vaker verstrikt in het systeem dat hen zou moeten helpen. Doorverwijzing na doorverwijzing. Wachtlijst na wachtlijst. Tegenstrijdige regels, nieuwe formulieren, een ander loket.
</div>
<div><br />
</div>
<div>Iedere organisatie pakt een stukje van het probleem. Maar niemand neemt verantwoordelijkheid voor het geheel.
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<div><br />
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<div>Het gevolg: de persoon die al ziek, uitgeput of wanhopig is, wordt ook nog de projectleider van zijn eigen zorgprobleem.
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<div><br />
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<div>Dat is geen incident. Het is een patroon. En een patroon kun je zichtbaar maken.
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<div><br />
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<div><strong>Wat Zorgfuik doet</strong>
</div>
<div><br />
</div>
<div>Ik ben Rogér Castelijn, initiatiefnemer van Zorgfuik. We verzamelen ervaringen van mensen die vastlopen in onder andere de GGZ, jeugdzorg, Wmo, huisartsenzorg, medicijngebruik, zorgverzekeringen, gemeenten en Veilig Thuis.
</div>
<div><br />
</div>
<div>We brengen terugkerende problemen in beeld, delen informatie en vragen aandacht voor één ding: onafhankelijke regie met een echt mandaat. Iemand die het geheel bewaakt.
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<div><br />
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<div>Niet om zorgverleners aan te vallen. Wel om zichtbaar te maken waar het systeem mensen laat vallen.
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<div><br />
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<div><strong>Dit is geen plan. Het gebeurt al.</strong>
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<div><br />
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<div>De websites staan online. De petitie loopt. Ervaringen komen binnen. Er wordt gewerkt aan voorlichting en nieuwe campagnes. Volledig vrijwillig.
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<div><br />
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<div>De volgende stap is de officiële oprichting van Stichting Zorgfuik.
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<div><br />
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<div><strong>Waarom een stichting nodig is</strong>
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<div><br />
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<div>Een stichting geeft Zorgfuik een zelfstandige, onafhankelijke en transparante basis. Daardoor kunnen we:
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<div><br />
</div>
<ul>
<li>inkomsten en uitgaven controleerbaar beheren
</li>
<li>samenwerken met maatschappelijke organisaties en afspraken vastleggen
</li>
<li>fondsen en subsidies aanvragen
</li>
<li>gebruikmaken van maatschappelijke tarieven voor software en licenties
</li>
<li>Zorgfuik professioneler en sneller verder ontwikkelen
</li>
</ul>
<div><br />
</div>
<div>Zonder stichting blijft veel onnodig duur, omslachtig of simpelweg onbereikbaar.
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<div><br />
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<div><strong>Op weg naar een ANBI-status</strong>
</div>
<div><br />
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<div>We richten de stichting vanaf dag één zorgvuldig in, met het doel om na de oprichting de ANBI-status aan te vragen (Algemeen Nut Beogende Instelling). Dat maakt de start iets duurder, maar voorkomt dat statuten, bestuur en administratie er later opnieuw doorheen moeten.
</div>
<div><br />
</div>
<div>Eerlijk en duidelijk: de fiscale voordelen gelden pas nadat de Belastingdienst de ANBI-status daadwerkelijk heeft toegekend. Donaties via deze eerste campagne zijn dus niet automatisch fiscaal aftrekbaar.
</div>
<div><br />
</div>
<div>We bouwen geen tijdelijke constructie. We bouwen een stichting die er over tien jaar nog staat.
</div>
<div><br />
</div>
<div><strong>Ons doel: 1.500 euro</strong>
</div>
<div><br />
</div>
<div>Bewust geen groot bedrag. We willen geen reserve opbouwen zonder doel, maar de stichting oprichten en de basis meteen goed regelen. Zo wordt het geld besteed:
</div>
<div><br />
</div>
<div>675 euro – formele oprichting van de stichting (notaris)
</div>
<div>350 euro – boekhouding en administratie
</div>
<div>200 euro – noodzakelijke software en licenties
</div>
<div>100 euro – communicatie- en campagnemateriaal
</div>
<div>175 euro – transactiekosten en onvoorziene kosten
</div>
<div><br />
</div>
<div><strong>Jouw donatie gaat niet naar techniek</strong>
</div>
<div><br />
</div>
<div>De webhosting, domeinnamen en het technische beheer van Zorgfuik en Stichting Zorgfuik worden volledig gesponsord door Cas ICT. Daar gaat geen euro van deze actie naartoe. Daarnaast heeft Screenmate.com hardware beschikbaar gesteld (extra schermen voor de laptops), zodat het werk efficiënter gaat.
</div>
<div><br />
</div>
<div>Zo min mogelijk naar overhead. Zo veel mogelijk naar een onafhankelijke, professionele basis.
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<div><br />
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<div><strong>Transparantie vanaf het begin</strong>
</div>
<div><br />
</div>
<div>Stichting Zorgfuik is nu nog in oprichting. Tot de stichting officieel bestaat en een eigen bankrekening heeft, registreren we elk ontvangen bedrag apart. Het geld wordt uitsluitend gebruikt voor de oprichting en de eerste noodzakelijke kosten.
</div>
<div><br />
</div>
<div>Na de oprichting publiceren we via de website de doelstelling, het beleidsplan, de samenstelling van het bestuur, het beloningsbeleid, de activiteiten en een financiële verantwoording.
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<div><br />
</div>
<div>Halen we meer dan 1.500 euro op, dan gaat het extra bedrag naar de maatschappelijke activiteiten: voorlichting, onderzoek, het verzamelen van ervaringen en het vergroten van het bereik.
</div>
<div><br />
</div>
<div><strong>Waarom dit niet kan wachten</strong>
</div>
<div><br />
</div>
<div>Iedere dag lopen mensen verder vast. Niet omdat er geen zorgverleners zijn die willen helpen, maar omdat verantwoordelijkheden worden verdeeld en niemand het geheel bewaakt.
</div>
<div><br />
</div>
<div>Mensen wachten, bellen, mailen, vullen opnieuw formulieren in en vertellen voor de zoveelste keer hetzelfde verhaal. Sommigen raken uitgeput. Sommigen verliezen het vertrouwen. Sommigen haken helemaal af. En soms worden mensen pas serieus genomen als het al volledig is geëscaleerd.
</div>
<div><br />
</div>
<div>Dat mag niet normaal worden.
</div>
<div><br />
</div>
<div><strong>Iedere bijdrage helpt</strong>
</div>
<div><br />
</div>
<div>Omdat het doelbedrag overzichtelijk is, maakt elke bijdrage zichtbaar verschil. Met 10, 25, 50 of 100 euro help je rechtstreeks mee om Stichting Zorgfuik op te richten.
</div>
<div><br />
</div>
<div>Kun je iets missen? Dan zijn we daar enorm mee geholpen. Kun je niet doneren? Deel deze actie dan. Ook dat helpt Zorgfuik verder.
</div>
<div><br />
</div>
<div>Zorgfuik bestaat al. Nu moet de stichting eronder komen. Help ons dat mogelijk te maken.
</div>
<div><br />
</div>
<div>Rogér Castelijn
</div>
<div>Initiatiefnemer Zorgfuik
</div>
<div><br />
</div>
<div>zorgfuik.nl / zorgfuik.com
</div>
<div>stichtingzorgfuik.nl / stichtingzorgfuik.org
</div>
<div><br />
</div>
<div><strong>English version</strong>
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/104542881_1782054592913504_r.png" width="100%" />
<div><br />
</div>
<div><strong>You don't get stuck in the care. You get stuck between the desks.</strong>
</div>
<div><br />
</div>
<div>People who need help increasingly get caught in the very system meant to support them. Referral after referral. Waiting list after waiting list. Conflicting rules, new forms, another desk.
</div>
<div><br />
</div>
<div>Every organisation handles one piece of the problem. But no one takes responsibility for the whole.
</div>
<div><br />
</div>
<div>The result: the person who is already ill, exhausted or desperate also becomes the project manager of their own care problem.
</div>
<div><br />
</div>
<div>That is not an incident. It is a pattern. And a pattern can be made visible.
</div>
<div><br />
</div>
<div><strong>What Zorgfuik does</strong>
</div>
<div><br />
</div>
<div>I'm Rogér Castelijn, founder of Zorgfuik ("care trap"). We collect the experiences of people who get stuck in mental health care, youth care, social support, GP care, medication, health insurance, municipalities and safeguarding services.
</div>
<div><br />
</div>
<div>We map recurring problems, share information and call attention to one thing: independent coordination with a real mandate. Someone who watches over the whole.
</div>
<div><br />
</div>
<div>Not to attack care providers. But to show where the system lets people fall.
</div>
<div><br />
</div>
<div><strong>This is not a plan. It's already happening.</strong>
</div>
<div><br />
</div>
<div>The websites are live. The petition is running. Experiences are coming in. We're working on information campaigns. Entirely on a voluntary basis.
</div>
<div><br />
</div>
<div>The next step is the official founding of the Zorgfuik Foundation.
</div>
<div><br />
</div>
<div><strong>Why a foundation is needed</strong>
</div>
<div><br />
</div>
<div>A foundation gives Zorgfuik an independent, transparent and self-standing base. It allows us to manage income and spending accountably, work formally with other organisations, apply for funds and grants, access non-profit rates for software, and develop Zorgfuik faster and more professionally.
</div>
<div><br />
</div>
<div><strong>Our goal: 1,500 euro</strong>
</div>
<div><br />
</div>
<div>Deliberately modest. We don't want to build a reserve without purpose, but to establish the foundation and get the basics right from the start:
</div>
<div><br />
</div>
<div>800 euro – formal founding of the foundation (notary)
</div>
<div>350 euro – bookkeeping and administration
</div>
<div>200 euro – essential software and licences
</div>
<div>100 euro – communication and campaign material
</div>
<div>50 euro – transaction costs and contingencies
</div>
<div><br />
</div>
<div><strong>Your donation does not go to technology</strong>
</div>
<div><br />
</div>
<div>The hosting, domains and technical management of Zorgfuik are fully sponsored by Cas ICT. Not a single euro of this campaign goes there. Hardware (extra screens for the laptops) has also been donated by Screenmate.com. As little as possible to overhead, as much as possible to an independent, professional foundation.
</div>
<div><br />
</div>
<div><strong>Transparency, and a note on tax</strong>
</div>
<div><br />
</div>
<div>The foundation is currently being established. Until it officially exists and has its own bank account, we register every contribution separately and use it solely for the founding and first essential costs. After founding, we'll publish our goal, policy plan, board, activities and financial accountability on the website. We intend to apply for ANBI status (Dutch public-benefit status) after founding; until it's granted, donations are not automatically tax-deductible.
</div>
<div><br />
</div>
<div><strong>Why this can't wait</strong>
</div>
<div><br />
</div>
<div>Every day, more people get stuck. Not because there are no care providers who want to help, but because responsibility is divided and no one watches over the whole. People wait, call, email, fill in the same forms again and tell the same story for the umpteenth time. Some get exhausted. Some lose trust. Some drop out entirely.
</div>
<div><br />
</div>
<div>That must not become normal.
</div>
<div><br />
</div>
<div><strong>Every contribution helps</strong>
</div>
<div><br />
</div>
<div>Because the goal is modest, every contribution makes a visible difference. Can you spare something? You help directly. Can't donate? Please share this campaign. That helps Zorgfuik too.
</div>
<div><br />
</div>
<div>Zorgfuik already exists. Now it needs a foundation beneath it. Help us make that possible.
</div>
<div><br />
</div>
<div>Rogér Castelijn
</div>
<div>Founder, Zorgfuik
</div>
<div><br />
</div>
<div>stichtingzorgfuik.org / zorgfuik.com
</div>

Help Stichting Zorgfuik officieel van start

<strong><iframe media_type="0" media_id="z00A7tT5EOk" class="youtube-replace" title="YouTube video player" style="margin-bottom:20px;width:560px;height:315px;" src="//www.youtube.com/embed/z00A7tT5EOk/?rel=0" frameborder="0" allowfullscreen="1"></iframe><br />- - - - GIBB NEEDS YOUR HELP - - - - <br /></strong><br />Our dear friend, Mark Carver Gibb, originally from Toronto and a Fernie resident for 25 years, has been bravely fighting brain cancer since 2006. Mark was originally diagnosed after having back to back grand-mal seizures at home early 2006. <strong>The diagnosis then came with a discovery of an Oligodendroglimo tumor in his right frontal lobe, a less common type of brain tumor.</strong> The diagnoses came at 36 years of age and quickly took away Mark's career and required that he put his many passions on hold as he began the biggest fight of his life. At the time of his diagnosis, Mark was also significantly impacted by his loving mother’s own battle with cancer. Her treatments, pain, and suffering weighed on him heavily yet he remained unfailingly committed to her until her tragic passing four years ago.<br /><br /><br />HIS STORY<br />After receiving the diagnosis, <strong>Mark has bravely endured 3 brain surgeries</strong>; 2006 and 2009 in Calgary and, 2018 in Vancouver. But the neurosurgeons were unable to completely remove the tumor without leaving Mark with severe brain damage and/or motor deficits; part of the tumor continues to exist in Mark's right frontal lobe. Mark endured a year of chemotherapy and all that process entails in addition to living with brain-tumor seizures.<br /><br /><img src="https://d2g8igdw686xgo.cloudfront.net/45452772_1581912942584052_r.jpeg" alt="45452772_1581912942584052_r.jpeg" width="100%" media_type="3" /><br />Mark has been determined to fight his cancer battle from a holistic approach using a naturopath oncologist and naturopathic medications; this comes from his desire to heal himself completely.<br /><br />Mark’s daily regime includes anti-seizure medication, 30+ supplements, naturopathic medications, Vitamin C IV treatments, Mistle-toe injections 3 times a week, reiki, juicing, diet and more. Following the 2018 surgery, the tumor became inactive however the victory over the cancer was short-lived; the tumor has become more aggressive in the last few months and has expanded in Mark’s right frontal lobe.<br /><br /><strong>Mark desperately needs treatment to fight this cancer that has returned with a vengeance to destroy his life.</strong><br /><br /><br />HIS TREATMENT<br />Marks clinical team in BC is highly recommending radiation treatment immediately, specifically Intensity-modulated radiation therapy (IMRT). <strong>Doctors tell him the risk of IMRT side effects is severe; possible loss of vision, brain tissue death resulting in severe brain damage, severe blood clots, worsening seizures and, the potential of a new type of cancer growth.</strong><br /><br />Mark is terrified about the idea of radiation, worsened by memories of his mom’s experience. Mark and his fiancée Jodi (a nurse) have been desperately looking for new treatment options; clinical trials abroad, immunotherapy, vaccines and the possibility of another surgery. Jodi has spent countless hours reaching out to doctors around the world; sending Marks medical chart and MRI films for review and consideration for treatment, to London, Germany, Toronto and cities across the US.<br /><br />Doctors continue to recommend radiation as the best course of action. Mark, and his fiancée, through a consult with doctors, have discovered Proton Therapy: a type of radiation therapy that uses protons rather than x-rays (traditional radiation) to treat various cancers.  Proton therapy poses far less risk than traditional radiation yet has proven results in treating cancers including the solid mass brain cancer Mark is a victim of.  <strong>Proton Therapy is not available in Canada</strong><br /><br /><br /><br />HISTORY<br />Mark has had to overcome many hurdles during his 14-year fight with brain cancer. Early into his battle, he had to sell his beloved snowboarding business in the Rocky Mountains of BC; unwell, having seizures, suffering stress and anxiety as related to cancer, associated surgeries and recovery periods, all cumulatively forced him to part with his dream career.<br /><br />Mark's focus became his fight with brain cancer.  He became fearful of having seizures in public and, being a humble individual; he didn’t want to burden those around him as he faced this most critical of complex battles.  <strong>Mark moved to the mountains of BC to enjoy the outdoor lifestyle which for him included snowboarding, snowmobiling, and hunting. With the fear of cancer-related seizures occurring in the backcountry, Mark was forced to give up the very essence of his life; spending time in the mountains. </strong> To add insult to injury, his seizures resulted in the loss of his driver’s license for extended periods of time taking with it, his independence and sense of dignity.<br /><br /><img src="https://d2g8igdw686xgo.cloudfront.net/45452772_1581997003830841_r.jpeg" width="100%" media_type="3" alt="45452772_1581997003830841_r.jpeg" /><br />Mark has endured the 14 years of constant stress and anxiety that comes with having a terminal disease. The stress of MRI's every 3 months, <strong>the 40th MRI</strong> 10 days ago, all the unknowns, the constantly needed blood work labs, the travel and costs involved with getting to and from surgeries abroad, bounced from doctors in Alberta to Vancouver to Kelowna.  As if the battle could not get more complex, he discovered his case had been accidentally dropped by all health authorities with the constant shuffling of his case from one authority to another.<br /><br />Mark and his fiancée Jodi were hoping to get married this spring and, Jodi has been planning Mark's 50th birthday in May; those dreams and celebrations are now on hold as they buckle down once again to fight this exhausting battle.  Jodi will put her career on hold as a means to fight alongside Mark, to advocate for him and, to support him as he moves on to treatment and recovery. <br /><br /><strong>The tumor is not backing down, and the outlook on survival is grim without treatment. Mark is not known for asking for help, but help is needed to get the right treatment.<br /><br /><img src="https://d2g8igdw686xgo.cloudfront.net/45452772_1581914863197250_r.jpeg" alt="45452772_1581914863197250_r.jpeg" width="100%" media_type="3" /></strong><br /><br />HOW YOUR FUNDS WILL HELP<br />The hope comes from the US, the closest place to have Proton Therapy, readily available in many states. Mark and Jodi have been in contact with many different Proton Centers in the US, medical charts and MRIs have been sent to from the east coast to the west coast. Mark’s case has been reviewed and he qualifies for Proton Therapy. <strong>Proton therapy would have the potential to extend Mark’s life without the serious consequences associated with IMRT</strong>. Mark and Jodi have most recently booked a consult for treatment at the closest facility, Seattle, for late Feb 2020, however, <strong>the estimated cost for treatment is $140,000.00</strong>. Treatment would need to be daily for 6-8 weeks.<br /><br /><strong>Time is running out!</strong>  The treatment can take place as soon as the consult is complete and funding is in place, so each passing day is of the essence!<br /><br />To make it possible for Mark to access this treatment we need to raise $100,000.00. Unfortunately, Mark and Jodi’s personal finances won’t cover all the costs involved with treatment. We are, on their behalf, requesting financial support to allow Mark to get the treatment he desperately needs.  <strong>We recognize that the goal here is high however we have faith that even the smallest gesture will make a difference and that there is strength in numbers and community.</strong> We ask that you consider making a donation and, to share Mark’s story far and wide.<br /><br />Thank you SO MUCH for your generosity and support.<br /><br />Gibb’s Support Team<br /><br /><br /><img src="https://d2g8igdw686xgo.cloudfront.net/45452772_1581558115931065_r.jpeg" alt="45452772_1581558115931065_r.jpeg" width="100%" media_type="3" /><br /><img src="https://d2g8igdw686xgo.cloudfront.net/45452772_158191545215155_r.jpeg" alt="45452772_158191545215155_r.jpeg" width="100%" media_type="3" />

Ignite Mark Carver Gibb's Battle Against Cancer

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Help Stichting Zorgfuik officieel van start

Ignite Mark Carver Gibb's Battle Against Cancer

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