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Stay hopeful and optimistic. Hoping for the best.

    Noah Passed away on 9/17/26 in his mama's arms at 12:51pm. Noah ended up with a inoperable booklet in his aorta which was causing lack of blood flow to his gut which ended is perforations that were untreatable due to his stability as well as having a VAD. Noah was exactly 13 months old. He put up one hell of a fight. He also has made a huge impact not only on his family but his team down at CHOP as well. Noah, mommy and daddy will miss you greatly. Leaving a giant peice of our hearts unfilled. It's a feeling that will never leave but have to learn to live with. Services will be private. Thank you all for the love and support during this time. Toni,Joe,and Lukas
    Noah will be undergoing a extremely risky surgery Thursday. This is hopes to get rid of the hardware with the fungal infection on it. So they will pull his VAD, and pacemaker. Go in and do a modified starnes procedure and close his ebsteins anomoly. Whether noah comes out without VAD, or Ecmo to VAD. Depends on him. And his needs. There is a plan going in bit the way it ends depends on noah. This is hoping he can become listed as 1a again or be fine without it and be a single ventricle. I am ok with any path but death at this moment. Thank you all for the love and support. Love, Toni,Joe,Lukas, Noah