Noah will be undergoing a extremely risky surgery Thursday. This is hopes to get rid of the hardware with the fungal infection on it.
So they will pull his VAD, and pacemaker. Go in and do a modified starnes procedure and close his ebsteins anomoly. Whether noah comes out without VAD, or Ecmo to VAD. Depends on him. And his needs. There is a plan going in bit the way it ends depends on noah.
This is hoping he can become listed as 1a again or be fine without it and be a single ventricle.
I am ok with any path but death at this moment.
Thank you all for the love and support.
Love,
Toni,Joe,Lukas, Noah