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Samuel Weidenhofer

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Heather Mollett

<div>Lily is a sweet blonde haired, blue eyed 5 year old that’s undergone anesthesia EVERY. THREE. MONTHS. since she was only 8 months old.

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<div>This will continue for a lifetime UNLESS we can get her to Italy - that is her BEST hope to becoming VM FREE!

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<div>25x under anesthesia before her 5th birthday.

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<div>I’m fighting with everything in me to make sure she doesn’t have to face 25 more.

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<div>19 treatments, 5 debulking surgeries, tonsils and adenoids removed, and an emergency appendix removal at only 3 years old.

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<div>Lily was born with a Venous Malformation on the inside of her entire left cheek and part of her lip.

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<div>(A venous malformation is a RARE condition where veins grow incorrectly, creating a tangled cluster that continues to grow as the child grows. It causes pain, swelling, and serious complications — especially in the face.)

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<div>We’ve been told over the years —

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<div>3 days old - “It’s just busted blood vessels.”

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<div>-local pediatrician.

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<div>1 month old - “It’s a hemangioma” and she will never be a candidate for surgery or treatment.

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<div>- New Orleans

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<div>8 months old - “Venous Malformation” and she’ll need treatment and surgeries all her life.” -Arkansas

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<div>5 years old - “Venous Malformation” and she will only need about 2 treatments and MAYBE one more in 5-10 years then she’ll be VM FREE.

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<div>-Italy

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<div>The treatment that Lily so desperately needs to become VM FREE is called ‘Electro Sclerotherapy.’

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<div>And this treatment is ONLY available in Italy. Unfortunately, it’s not cheap.

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<div>The total cost for 1 treatment is about $50,000.

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<div>That includes the procedure cost, flights,

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<div>10-14 day hotel stay, follow up visit, transportation, food, and funds to keep us afloat so I don’t have to choose between bills and my baby’s care.

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<div>Lily’s 2nd procedure in Italy will be in June or July 2026. 3-4 months after the 1st procedure.
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<div><span>I’m setting our goal to $100,000 — to cover both treatments, start to finish, so Lily can FINALLY get the care she deserves!</span><br />
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<div>We absolutely cannot do this without you.

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<div>I know we can pull this off - TOGETHER.

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<div>I promised her that oneday she wont have this on her mouth or lip anymore. 

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<div>The day I stop pushing is the day I stop breathing!

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<div>DID YOU KNOW??

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<div>Only 0.01% of people worldwide are born with a Venous Malformation.

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<div>Only a small number of children with venous malformations ever receive access to the specialists they truly need.

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<div>We refuse to let Lily fall into those statistics!!

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<div>Follow Lily’s Story and walk this journey by her side.

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<div>FB page —

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<div>‘Lily’s Journey with Venous Malformation’

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<div>Please help get Lily to Italy

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Lily’s fight to END Venous Malformation

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Heather Mollett

Heather Mollett

What Heather cares about

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Lily’s fight to END Venous Malformation