It's officially Breast Cancer Awareness Month and I can really use some help.
I received a travel stipend for the METAvivor Summit & Stampede on Capitol Hill, October 5th-6th, but I still need $350-500 for hotel costs, gas, food, tolls, and poster supplies to show up and fight for stage 4 research funding and faster clinical trial access.
Very soon I'll find out whether Xeloda is actually working. I've been on this oral chemo for two months now, and I've had nonstop progression all year. If this new line of treatment shows that it's NOT working, we move straight into a more aggressive IV chemo and everything changes again. The fear before scan results never gets easier. My scan results are currently sitting in my portal as we speak, but I don't have the courage to open them. Usually I do. But after the nonstop blows these past couple of years, I just don't have the strength today. So I'm waiting to hear the final answer directly from my NYP oncologist tomorrow, Friday, Oct 2nd.
Along with my liver, the cancer has continued to spread throughout my bones and several vertebrae, and last week I learned I have new areas of bone marrow deterioration. As my body weakens with treatment, it's making my severe scoliosis and spondylolisthesis deformities worse — which needless to say has been increasingly painful. I'll soon start physical therapy and rehabilitation for my spine along with other integrative medicine. Without it, I'm looking at another spinal fusion, which would require pausing cancer treatment, and I'm fighting to avoid any part of that saga.
Ongoing funding for: copays and out-of-pocket costs including, but not limited to — required in-office treatment injections, infusions, PT and rehab, parking, gas, tolls, several new specialists, manual lymphatic drainage, and other integrative medicine.
SSDI at $2500 per month does not cover even basic living needs, let alone all a mountain of medical costs.
Things I hope for in the future: $2,500 for a specialist consultation with Dr. Kennisha Reynolds, a naturopathic and functional medicine physician in San Diego, to review my case and build real nutrient and strength support into this treatment — not the standard hospital nutritionist, but targeted care to help my body withstand this chemo.
The stage 4 community has pushed back on pink-washing for years. That pink ribbon doesn't show the reality — the scans, the bone deterioration, the chemo, the fear. It's a marketing color, not our lives. So I ask that you keep following my stories this month as I try to advocate and educate for a better and healthier country.
If you can give $10, $20, or $50 toward the D.C. trip right now — tap the donate button. It adds up faster than you think.
Follow along as I document this fight in real time:
Instagram: @cjvscancer @thepeoplevscancer