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Claire Wineland Needs Our Help

$267,837 of $225,000 goal

Raised by 9,020 people in 5 months
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Created June 12, 2018
Team Claire

Rest in peace dearest Claire ❤
As most of you know, September 2, 2018 at 6:00pm, Claire Wineland passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.

She was surrounded by love and with her mother Melissa Yeager and father John Wineland; they saw her into this world for her first breath and were with her for her last.

She suffered a massive stroke on August 26th after a successful double lung transplant. The stroke was caused by a blood clot. After a week of intensive care and various life saving procedures, it became clear that it was Claire’s time to let her go according to her Advance Directive.

In Claire fashion, she is an organ donor. Claire’s remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. They had been on the receiving end of that call just one short week ago.

We know Claire was loved all over the world. Your prayers, support and encouraging words, have been a huge source of strength for her and her family. Thank you from the bottom of our hearts for your massive amazing out pouring of love.

In lieu of donations here, the family is asking for donations to be made to  Claire's Place Foundation which Claire founded at 13 years old.  Her foundation is committed to upholding Claire’s legacy by assisting Cystic Fibrosis families in need.

In the words of our precious founder Claire Wineland: “Death is Inevitable. Living a life we can be proud of is something we can control.”

You sure made the whole world proud of you Claire!

She was one red hot spark of inspiration and joy, wasn’t she? Rest In Peace Sweet Warrior Claire, we will continue where you left off.

Hug your loved ones close,

Laura McHolm
Chairman of the Board
Claire's Place Foundation

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We have been blown away by the amazing outpouring of love and support you have shown to Claire..deeply humbled in fact.  Friends have encouraged us to raise the goal to meet the demand but I want everyone to know that our transplant finances have been covered in full.  Anything additional you choose to donate will be to show Claire your love and to help her do something amazing post transplant.  She is full of wonderful ideas but first new lungs, then look out world! :) <3 

"Death is inevitable, but living a life we are proud of is something we can control". ~ Claire Wineland

Some of you may have heard one of Claire Wineland's  many inspirational speeches at events such as PTTOW, THRIVE: Make Money Matter, WORLDZ, Zappos, Klick Health, TEDx, OMED and AARC or possibly you follow her on Facebook , Twitter , Instagram   or YouTube  but one thing about her is she never asks for help for herself, she is a stubborn little force of nature and determined to  live her life to the fullest despite her failing health and is always, always of service to others and shares her message far and wide. This last year, her decline due to having Cystic Fibrosis  (CF) has been drastic.  She is unable to do the work that she loves, which is traveling the world to share her message with thousands of people, she is using a wheelchair due to shortness of breath to walk more than 100ft and her quality of life has become just about staying alive. 

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This is not the Claire we all know and love.   She has recently been placed on the UCSD Lung Transplant list and is anxiously awaiting the call for new lungs.  A new start, a new chapter #metamorphosis.  

Again, we want to make sure that everyone knows this money will not be used for the transplant itself, we do have medical insurance. But the ancillary costs  and medication co pays before, during and after can be considerable, and as you know, she is already struggling to make ends meet and is unable to work. Full recovery can take approximately 6 months post transplant, barring any complications or rejection.

We hope that she has inspired you with her endless positivity, sense of humor and charitable work through a non profit she founded at 13 years old, Claire's Place Foundation which ironically helps other CF children and families in the way that she herself needs now.  If you don't know Claire, please take a minute to Google  her name and see some of her videos on line and on social media as well as a beautiful episode on The CWs "My Last Days, Season 1 " Directed by Justin Baldoni  and Wayfarer Entertainment. 

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CNN  has done 2 stories covering her journey for 2 years now and will continue to cover her experience pre and post lung transplant to spread awareness about the process and what people with Cystic Fibrosis go through. Even as her lungs fail, she is still willing to share her experience in the hope of helping another young adult with CF who may be considering a lung transplant.

Claire was recently named Glamour Magazine's College Woman of the Year Grand Prize Winner 2018   for her work in advocacy and charity.  Behind the scenes, she struggles for breath and is currently in end stage lung disease, but that is not the face she shows the world. 

Please, consider making a donation today so that we can relieve the stress she is feeling about not being well enough to continue working until transplant and possibly up to a year post transplant. What would be most helpful is if  you could make a 10 - 30 second video about how you have been inspired by Claire and then share that video along with this link to your community and social media following.  I am sure with your help, we can reach and maybe even beat this goal.  https://www.gofundme.com/teamclaire with hashtag #TeamClaire

Thank you so much for your support!  Please do share with followers, friends and family that you feel might be inspired to support as well.

Your donations will be deposited in to a private account for Claire and used to pay her rent and expenses over the next 6 to 18 months so she can simply focus on this next huge step while she is so ill.  Specifically travel money, hotels, medications, apartment rental pre transplant here in Los Angeles and post transplant in San Diego, food and other necessities for Claire.

Warmly, #TeamClaire


"Truly honored to have lived, failed and accomplished in the ways I have" ~ Claire WIneland 

A message from Claire :)

Claire Wineland, Keynote Speaker at Zappos All Hands Meeting 2017   

Claire Wineland, Keynote Speaker at PTTOW 2016
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Hello beautiful people ~ this is Melissa, Claire's Mother. Thank you to everyone who supported this campaign for her. Things did not go as we had hoped, you can read an update below and a beautiful story on CNN here: https://www.cnn.com/2018/09/03/health/claire-wineland-obit/index.html

In light of her passing, we would like to offer you a refund of your donation if you wish. I know you all donated hoping to support her through transplant and maybe even through physical therapy to recover from the stroke if that had been possible. In fact, you supported her in ways you may never understand.
The outpouring of love shown by your donations made a lasting impression on her and she was so very grateful.

Your refund will be fully confidential and can be done here through Go Fund Me.

With the remaining funds, we will cover costs associated with her hospital stay and then make a donation to Claire's Place Foundation. It was her greatest wish that her foundation would continue on with or without her. Knowing Claire, she was all about being of service to others and your donations will support her in that. A continuation of her legacy.

Thank you all, she loved each one of you and we hope you share her message of positivity and live a life you are proud of!

************************
From Laura McHolm, Chairman of the Board

Last night at 6:00pm, Claire Wineland our inspirational founder passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.

She was surrounded by love and with her mother Melissa Yeager and father John Wineland; they saw her into this world for her first breath and were with her for her last.

She suffered a massive stroke on August 26th after a successful double lung transplant. The stroke was caused by a blood clot. After a week of intensive care and various life saving procedures, it became clear that it was Claire’s time to go.

Yesterday, Claire’s family and a few very close friends came to say their final farewells and offer their support to the family.

In Claire fashion, she is an organ donor. Claire’s remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. They had been on the receiving end of that call just one short week ago.

We know Claire was loved all over the world. Your prayers, support and encouraging words, have been a huge source of strength for her and her family. Thank you from the bottom of our hearts for your massive amazing out pouring of love.

We are asking to please give the family privacy at this time. They have so generously shared their lovely Claire’s remarkable journey with us all, but now is the time to give them some peace from the public spotlight. They will emerge eventually, but please give them the time to come to terms with their family member's passing.

In lieu of flowers, the family is asking for donations to be made to Claire’s foundation.

Claire’s Place Foundation is committed to upholding Claire’s legacy by assisting Cystic Fibrosis families in need.

In the words of our precious founder Claire Wineland: “Death is Inevitable. Living a life we can be proud of is something we can control.”

You sure made the whole world proud of you Claire!

She was one red hot spark of inspiration and joy, wasn’t she? Rest In Peace Sweet Warrior Claire, we will continue where you left off.

Hug your loved ones close,
Laura

Laura McHolm
Chairman of the Board
Claire's Place Foundation
Photo Credit: Larissa Perroux
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It's 2:45am and I am sitting here in Claire's ICU room watching this incredible staff use Herculean efforts to keep Claire moving in the right direction. For those of you who don't know, Claire suffered a massive stroke the day after a very successful ling transplant. It's quite amazing what is possible with an adept team of nurses and doctors and still, I believe Claire will be the one to make the final decision on whether she wishes to press on or not. Already today, I have run the gamut of hopeful, hopeless, acceptance, advocate, student and of course, always, mother. My girl is almost unrecognizable to me amidst so many tubes and devices but I have faith in her and her relationship with God. This is typical Claire fashion, to throw a curveball and leave all of us guessing. Her condition remains very unstable but we are praying the swelling decreases in her brain enough to get an MRI so we can know exactly what extent of damage was done by the stroke and make a decision based on what she would view as quality of life. The neurologist tells us that the brain is a magical organ with the ability to heal and compensate in ways we cannot comprehend. I am fighting my impulse to think all is lost and hoping she shows us a glimmer of hope. She needs up to 7 days to pass through the acute phase of brain injury and we are now entering day 4. God, grant me the ability to act as her medical agent, I pray that I make the right choice for her or that she declares her wishes to the doctors in a way that is obvious. She is on full life support, in a deep coma to keep her brain calm and yet they tell me she really does have a chance at full recovery. Mind blowing! God, I pray to know the next steps and hold a space for her, whichever way this goes. Her lungs are holding up beautifully and her youth makes a recovery even more possible. Praying for guidance and strength to make sure I follow her advance directive and her wishes. Hopefully the answer will be clear, this is the most difficult position I have ever been in and I hope I do right by her. She trusted me to act on her behalf and I take that is an incredible honor. Best case scenario is Claire will survive this and move in to a period of intense physical rehab. Not what we signed up for and a longer process but still, there is hope! #hopeful #confused #scared #waiting #believing
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Hi everyone!! Great news to share :) Claire got THE CALL at 5:30am today saying that they had a potential match for new lungs. We drove down here to UCSD as quick as we could to wait for the final word. Sometimes, you get the call for lungs but then when they arrive, the surgeon doesn't like them and you het sent home. But, these are absolutely PERFECT! Docs gave the green light at 1:45pm and she is in surgery right this minute.
Such a dream come true! Thank you to everyone who supported this campaign, we wouldn't be here without you <3
The surgery takes about 10 hours so I will be sure to update you when she gets out.
Sending prayers and comfort to our donor family in their time of loss. So grateful for this priceless opportunity :)
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"For the first time during this whole process, I am actually excited about my future!"
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$267,837 of $225,000 goal

Raised by 9,020 people in 5 months
No Longer Accepting Donations
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Created June 12, 2018
Team Claire
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