Saving Mila — Time is Running Out!

$771,862 of $1.0M goal

Raised by 4,524 people in 13 months
In January 2017, we set out on a mission to find a cure for our daughter Mila’s devastating condition, Batten Disease— a disorder that rips abilities, and then life, away from children.

After fighting for Mila's life day and night for one year, it seems unreal that we are telling you that Mila has started receiving an experimental and potentially LIFE-SAVING  TREATMENT.  This would not have been possible without the help of thousands of incredibly kind and generous people around the world. But the story doesn't end here...




There’s no other way to put it—my 7-year-old daughter, Mila, is dying. I lie by her side every night when she sleeps and my heart bleeds. My face burns from the tears. 

Mila could be your child. She splashed in the pool, begged for chocolate ice cream, and sang her favorite songs. She rode bikes. She skied. But at 4 years old, she started to fall over, to bump into things. She pulled books in close, got stuck on words. She was finally diagnosed with Batten Disease, a rare fatal genetic condition that robs normal children of everything. They end up bedridden, on a feeding tube, with seizures, and cognitively impaired. There is no cure... yet.

We were given no hope. But we discovered that scientists are just now able to STOP and even REVERSE genetic diseases like Batten. So we fought day and night and have raised over $1.5M to fund the science that could lead to a cure.

Our tireless work and YOUR incredible support have paid off. Mila has started receiving a new and potentially LIFE-SAVING treatment. It seems unreal.

Our team of scientists and doctors are still working around the clock to perfect this new and experimental genetic treatment to give Mila the very best chance. Mila's future is still unknown, but she is fighting hard and we have great hope.
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YOU can continue to help us fight for her life!
1) GIVE whatever you can. No donation is too small (tax-deductible)
2) SHARE on social media (#SavingMila)
3) EMAIL this page - gofundme.com/savingmila - to your family + friends. 
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Mila's story doesn't end here!

With gratitude,
Julia, Alek, Mila, and Azlan



















WHERE YOUR MONEY IS GOING
Mila's Miracle Foundation, Inc. is a 501(c)(3) nonprofit organization.  Our mission is to fund research and treatments for Batten Disease and other devastating  neurodegenerative conditions in children. But saving lives is expensive. Mila and other children like her deserve the chance that recent genetic breakthroughs now offer. We CAN save children's lives together! 



Recent press:

Fox News

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GoFundMe Blog Post
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Azlan never ceases to keep Mila entertained! Even after a long day, Mila lights up at bedtime when he tells elaborate stories with made-up words.

We continue to be grateful for every smile and laugh that Mila shares with us!

With giggles and HOPE,
Julia, Alek, Mila + Azlan
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Mila's video has reached 1 MILLION VIEWS.

Over 10,000 people view her video every day. Mila's story has gone viral because of YOU. Thank you for continuing to share her journey. We are humbled and amazed by how many people are following our little fighter.

By sharing Mila’s video, we hope her story shines light where there was once only darkness. We hope it helps parents of this devastating disease identify with what they see and speed up their child's diagnosis. We hope that our fight continues to inspire other parents of children with rare disease to fight alongside us. And we hope that Mila's story and her treatment open the door to helping many more kids like her who are given no hope.

https://www.youtube.com/watch?v=Rt8aJuOLvZE

Keep spreading Mila's story! Our fight doesn't end here...

With determination and HOPE,
Julia, Alek, Mila + Azlan
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After 4 months of patiently waiting for his belated “Colorado Birthday”, Azlan finally got to celebrate with his sister and favorite buddies from home. Mila was just as excited as Azlan to feel the balloons, taste the cake and sing happy birthday. We spent a great day with friends playing in the creek and catching up. We’re all very happy to be home!

With cake and HOPE,
Julia, Alek, Mila + Azlan
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Mila is happy to be back at yoga after many month away! She lights up when she hears her teacher, Laura’s voice. Some positions are more relaxing, and others make her work. But Laura always makes it fun, brining Elsa from Frozen into the imaginative stories she tells.

Although we’re still not able to talk about Mila’s treatment, we gave a brief update on Mila to our small local paper. We feel so grateful for the love and support we continue to feel from our Colorado community!

http://www.lhvc.com/news/mila-s-family-is-hopeful-after-experimental-therapy/article_cd9b4a9e-758f-11e8-a6d9-ff292f0fa75b.html

With yoga and HOPE,
Julia, Alek, Mila + Azlan
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$771,862 of $1.0M goal

Raised by 4,524 people in 13 months
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