Saving Eliza Continued

$2,113,250 of $3.0M goal

Raised by 345 people in 4 months
Thank you for visiting this new campaign to help us continue our efforts.   Orginal Story is down below.

Happy 8th Birthday Eliza!!   A 10 day, $100,000 goal to help save and better the lives of innocent children.  If the new goal set here is reached, we will do it!

You never stop fighting for your child.  Ever.  I'll be honest, I'm nervous this year.  It's hard to know how many supporters are out there, still following...still fighting with us to help Cure Sanfilippo Syndrome.  We have only a few more days to reach our Annual Drive goal to fund urgent research* for children, in honor of Eliza's 8th Birthday on Nov 16th.

We think Eliza is doing well overall, and can't believe our little girl will be 8 years old.  She is happy most of the time.  We cherish every second of time with her, and her loving big brother.  The HOPE we have is thanks to your support!  A VIDEO update is below and we hope you'll take a few minutes to watch.   

And after you do, would you be one of our $100 donors this year (although every amount helps)? 

The truth is, we will need YOUR support to reach this goal.  Literally, children's lives hang in the balance.

* There are 3 current projects in need of urgent funding, with a path to clinical trials for more children: 1) for enzyme replacement,  2) gene therapy, and 3) mesenchymal stem cell to repair the brain. 

You can support here, or by sending a check made out to Cure Sanfilippo Foundation, PO Box 6901 Columbia, SC 29260. 

Thank you for your kindness, compassion, and empathy.  Our humble and deepest thanks is from all Sanfilippo families.

Glenn O'Neill (Eliza's Dad)
Cure Sanfilippo Foundation www.CureSFF.org
curesff@gmail.com (anytime)
Latest Foundation update: www.CureSFF.org/update


1,000 supporters at $100 = GOAL REACHED!  Will you be one?


As always, all funds go toward the mission of our non-profit 501c3 Cure Sanfilippo Foundation (Tax ID: 46-4322131), which is to advocate for and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome.  Donations are tax deductible.

Our Story

It all started back in 2014, with this 3 minute video:  

Now, we truly believe we are witnessing a miracle.  What else can explain more than 36,000 people already donating more than $2 million dollars, over the past 2 years, to fund a chance at life for our daughter Eliza and other children. Diagnosed 3 years ago with Sanfilippo Syndrome —a terminal disease sometimes called “Childhood Alzheimer's”— Eliza has now become the first child in the world to have been given this new treatment!  The second child has also been treated and in the coming months & through next year, a few handful more children around the world will be part of this groundbreaking gene therapy clinical trial that is already showing promising results.

The WORLD decided to rally around our little girl for this greater cause, and she’s become the face of this disease…a symbol for Sanfilippo parents everywhere not to give up HOPE.

 And we’re not giving up on them either.

Many more children are still fighting, and we won’t stop until every last one of them is afforded a chance at life. There are more children that need this treatment than there are available spots in clinical trials, and these precious little ones can’t wait. Given the rapidly degenerative nature of Sanfilippo Syndrome, not receiving a treatment, and soon, is a death sentence.  Can you imagine being one of these parents?

Since treatment, we see a new light in Eliza’s eyes— she is connecting with us in a way we thought was gone forever. She is working to regain the skills the disease stripped away in the 6 and half years it tore through her body.  She is a fighter!  Other Sanfilippo children deserve this chance too. At this stage, funding is one of the only things that will accelerate research to give these children a chance. Money doesn’t make the world go round, but it does bring medical treatments faster to children who are dying.

Our goal is to reach $4M here to help make this happen. Please donate TODAY to give these beautiful Sanfilippo children a rightful chance at life.  Please share so the world can hear their collective voices.

Our hearts are forever thankful for giving our daughter Eliza and others a chance at life.  We are reminded of one quote from a special supporter that has helped us through the hard days: “Keep the faith, and the faith will keep you”.  We believe!

Glenn, Cara, Beckham and Eliza (The O’Neill Family)

Learn more about Sanfilippo Syndrome here  www.CureSFF.org/about-sanfilippo

Meet just some of the Sanfilippo families here:  www.CureSFF.org/meet-the-families

Baby Sadie
Paisleigh and the Butler Family
Rowen and the Fernandez Family
Izzy and the Jurado Family
Keira and the Esposito Family 
Parker and the Talbert Family
Abby Grace and the Ferguson family
All funds go toward the mission of our non-profit 501c3 Cure Sanfilippo Foundation (Tax ID: 46-4322131), which is to advocate for and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome.  We are out to end this disease and help ensure treatments for as many children as possible along the way.  We must reach our goal and mission before it is too late for these beautiful children. With a donation and a share, you can make the difference!  Action saves lives.  Action brings miracles.  Our daughter Eliza is proof of that. 

 Donations are tax-deductible.  

Other donation options: 
--  www.CureSFF.org (click Donate)
--By check: Cure Sanfilippo Foundation, PO Box 6901, Columbia, SC 29260

 Follow the latest at  www.facebook.com/ElizaOStory

Special thanks to the artists, who worked free of charge to help us:
Video by the amazing Benjamin Von Wong
Photograpy by the talented Anna Tenne Photography
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$90,000 raised for Eliza's Birthday campaign, thanks to you!!

Eliza had a wonderful and happy day on her birthday. Well, in reality we celebrated three different times, but that's OK...more cake! Lots of smiles and laughs.

You helped us raise over $90,000 in just 10 days! Again just truly humbled at your loyalty and support for our cause. These dollars will go to research projects with a path to clinical trial treatments for children. We truly appreciate it, in the efforts to Cure Sanfilippo Syndrome. Thank you so much for caring! Cara, Glenn, Beckham and Eliza!
Big Brother loves his sister
At the Apple Orchard
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Earlier today, a supporter commented "The miracle happens in the moment".  That's such a great reminder.  This video below is from just last week. We are blessed and soak in every single second. 

Happy 8th Birthday today to Eliza!  $75,000 has already been raised and our final push is to reach $80,000 for her 8th birthday before midnight.

Tonight our hearts overflow, and we are strengthened and inspired thanks to you.

This is our final update on the campaign. Goodnight and thank you for your kindness, compassion, and empathy.

The O'Neill Family

#HOPE #SavingEliza #CureSanfilippo #SaveChildren #GivingFamiliesHOPE You are making a difference. 
Happy 8th Birthday Eliza!
+ Read More
New video: TODAY is Eliza's 8th Birthday!

We might actually do it! Already, over $65,000 raised toward our $100,000 goal. 13 HOURS left. Now is a great time to donate to reach the goal, and sharing really helps too. THANK YOU!

We wanted to share this NEW video with you. Over the past 3 months, Eliza has learned to do this! It's hard to describe how amazing this is, and it's thanks to you!

#HOPE #Amazing #SavingEliza #CureSanfilippo #SaveChildren #GiveFamiliesHOPE
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I'd like to share this memory of the night before Eliza's Birthday with you. The post is below and was hard to write. The video, beautiful and emotional to watch back.

…and so now we are just a day away. Tomorrow, November 16, 2014..Eliza will turn 5.

This year 2014 has been the hardest year for our family, but Eliza has had it the toughest. The disease catches up eventually. By mid-year she was still gaining new skills. Now though, she is working to maintain those same skills. It is hard to say, just a day before her 5th birthday, but it is unlikely she will move forward from this point on. But maybe, just maybe she is on a “pause” for a time here….holding onto what she has until a medicine can help her move forward again. That is the HOPE we speak of. Yes, it will happen. It must. Her birthday gift tomorrow is part of that race to a treatment for these children.

The words in this song “Nobody said it was easy….no one ever thought it would be this hard” That sums up the last year, but thanks to YOU...we see BRIGHTER days ahead for Eliza in 2015! Thank you! #SavingEliza

You've helped us raise $60,000 already for Eliza's Birthday Drive this year in 2017, and Eliza's Birthday is tomorrow Nov 16th. The goal is within reach, with your help.
My Angel
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Read a Previous Update

$2,113,250 of $3.0M goal

Raised by 345 people in 4 months
Funds raised will benefit:
Cure Sanfilippo Foundation
  Certified Charity
+ Learn More
Columbia, SC
EIN: 464322131
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