Fight For Kaldyn

$10,114 of $25k goal

Raised by 107 people in 18 months
Rene Hentges Eichberg
on behalf of Ryan Eichberg
 LAPORTE, MN


On May 18 of this year we found out our son had a mass of fluid as well as a brain tumor. We were immediately flown to a neuro surgeon in Fargo where he was given a shunt right away to relieve pressure.( We didn't know bringing him in for the shunt that we wouldn't hear our son speak again for two weeks. That he would have a breathing tube in for days. That our son would be in ICU round the clock nurses. ) We were told he needed a 4-6 hour surgery to remove the tumor. It took that plus a bit more. After surgery our doctor told us the different textures to his tumor. We soon found out was due to it being a rare type of brain cancer. They rate brain cancers 1-4, four being the worst. We were told our son was a 3. We then were introduced to chemotherapy and radiation doctors. They told us our five year old boy would need to have 6-7 weeks of treatment. That the risks were possible deafness, blindness, IQ impairment, loss of motor skills, hair loss, infertile, even death. We watched our son daily being sick, not able to speak, sad, mad, unable to walk or even hold a cup without help. We were released from the hospital just 10 days after learning of his tumor. We were told to go home and let him try and heal. Look into our other options, facilities, and doctors. Our son had fevers daily, still threw up daily, couldn't speak, couldn't get around without help, could hardly even feed himself. In many ways was like having a large infant.

With time he has progressed. He can talk again! Doesn't sound the same and even sounds a bit monotone at times. He can walk on his own, but gets tired easily and is still very unbalanced. Even now he still throws up, has fevers, won't eat, will cry because his head is swollen and hurts. He can still get over stimulated, have spurts of frustration and anger. Doctors say it could take a year or more before he is back to "normal". After much debate we drove to Memphis Tennessee to St. Judes children's hospital for Kaldyns 1 month follow up MRI. To see if anything was showing up yet and see if doctors there believed he needed treatment now or if he could wait. We wanted to wait until Kaldyn could be older and able to handle the treatment better. We were blessed. MRI still said he looked good and our doctor said we could wait on treatment and monitor it closely. Every few months we need to go back for a MRI to make sure it isn't coming back.

As of right now we need to drive to Fargo again this week, swelling in the incision area is pretty severe and causing him a lot off pain and discomfort. We aren't sure at this time if his doctor is going to just put a shunt in or if he is going to need more surgery.

We want to thank everybody for all your well wishes, gifts, prayers and support.

As of now MRI results look good, but he will have this for life. We will be traveling for Kaldyns care and follow ups for many years. With this rare brain cancer past results have it coming back in 1-3 years. In many cases adulthood isn't always achieved. We don't know what we have ahead of us. We just know to try and take it day by day and be thankful for what we have.
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Update 22
Posted by Rene Hentges Eichberg
4 hours ago
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March 26, 2017.
Happy Birthday to Kaldyn!!
Urgent prayers needed!!! Kids had a tough time waking Kaldyn up this morning.
Prayers please!! Hoping for a miracle!! Feeling defeated
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Update 21
Posted by Rene Hentges Eichberg
5 days ago
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March 21, 2017
Kaldyn had a bad day yesterday he threw up 3 times, and pretty much slept the day away. When he was awake he was bright and cheery.
We were at a Walmart and we found Kristen crying because she said this is "probably the last birthday card she is going to buy for her son" Kaldyn turns 7 on Sunday March 26.

We are traveling as a family to California to the Redwoods
He enjoyed the first trip we made and wanted to return.

Trying to make memories. Please continue to pray for our boy.
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Update 20
Posted by Rene Hentges Eichberg
15 days ago
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Ryan called a little while ago with news that no one wanted to hear. Kaldyn's tumor is coming back and the cancer appears to have spread thru out his brain. Met with Dr Ann at this point there is nothing left to do. She estimates that he has 4-6 months left. We will spend this time with family making as many memories as possible. Ryan and Kristen are trying to plan a family trip this includes their parents and siblings (whoever can go) Kaldyn would like to go to Disney Land in Florida then a cruise. Allot of planning today as we want to make the trip for early in April his tumor is growing fast so we have to act fast. Before the headaches start and he will be unable to travel. Please continue to pray for our family.
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Update 19
Posted by Rene Hentges Eichberg
16 days ago
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1
1
Ryan called a little while ago with news that no one wanted to hear. Kaldyn's tumor is coming back and the cancer appears to have spread thru out his brain. Met with Dr Ann at this point there is nothing left to do. She estimates that he has 4-6 months left. We will spend this time with family making as many memories that we can. Please continue to pray for our family.
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Read a Previous Update
Tim Kurowski
14 days ago

My son died at 22 months old . I wish I could change what you are going through , but I cant just remember GOD is with you all the time, and even that wont take the pain away. My prayers are with you to make it through this. I am at a loss for words. God Bless All Of You.

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Kris Rech
14 days ago

My prayers to your family as you navigate through this journey. I am a childhood cancer Mom. I am on the advisory council for an organization called Spare Key. https://www.sparekey.org/ They could help you with a mortgage or rent payment during this difficult time. Sending strength and prayers!

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Ryan Eichberg
18 months ago

Thank you all so much... It makes all the diffrence in the world to be across the nation and know we have great support. Bless every one of you. Thanks

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$10,114 of $25k goal

Raised by 107 people in 18 months
Created September 10, 2015
Rene Hentges Eichberg  
on behalf of Ryan Eichberg
JO
$25
Jenny O'Brien
3 hours ago

Praying for you and everyone who knows and loves you ❤️

AW
$10
April Wheeler
3 days ago

Saw you driving down the Oregon coast today. Sending our love ❤️

LB
$25
Linda Baggett
5 days ago
MM
$25
Melissa Miller
5 days ago

Hugs and love to you Kaldyn and family. Stay strong!

SB
$50
Sue Blume
7 days ago
CK
$50
Christine Kennedy
8 days ago
WM
$100
wade mickelson
12 days ago
OM
$100
Owen Murphy
12 days ago
$100
Anonymous
12 days ago
JF
$500
John Farrington
12 days ago
Tim Kurowski
14 days ago

My son died at 22 months old . I wish I could change what you are going through , but I cant just remember GOD is with you all the time, and even that wont take the pain away. My prayers are with you to make it through this. I am at a loss for words. God Bless All Of You.

+ Read More
Kris Rech
14 days ago

My prayers to your family as you navigate through this journey. I am a childhood cancer Mom. I am on the advisory council for an organization called Spare Key. https://www.sparekey.org/ They could help you with a mortgage or rent payment during this difficult time. Sending strength and prayers!

+ Read More
Ryan Eichberg
18 months ago

Thank you all so much... It makes all the diffrence in the world to be across the nation and know we have great support. Bless every one of you. Thanks

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