Fight For Kaldyn

$12,937 of $25k goal

Raised by 146 people in 19 months
Rene Hentges Eichberg
on behalf of Ryan Eichberg
 LAPORTE, MN


On May 18 of this year we found out our son had a mass of fluid as well as a brain tumor. We were immediately flown to a neuro surgeon in Fargo where he was given a shunt right away to relieve pressure.( We didn't know bringing him in for the shunt that we wouldn't hear our son speak again for two weeks. That he would have a breathing tube in for days. That our son would be in ICU round the clock nurses. ) We were told he needed a 4-6 hour surgery to remove the tumor. It took that plus a bit more. After surgery our doctor told us the different textures to his tumor. We soon found out was due to it being a rare type of brain cancer. They rate brain cancers 1-4, four being the worst. We were told our son was a 3. We then were introduced to chemotherapy and radiation doctors. They told us our five year old boy would need to have 6-7 weeks of treatment. That the risks were possible deafness, blindness, IQ impairment, loss of motor skills, hair loss, infertile, even death. We watched our son daily being sick, not able to speak, sad, mad, unable to walk or even hold a cup without help. We were released from the hospital just 10 days after learning of his tumor. We were told to go home and let him try and heal. Look into our other options, facilities, and doctors. Our son had fevers daily, still threw up daily, couldn't speak, couldn't get around without help, could hardly even feed himself. In many ways was like having a large infant.

With time he has progressed. He can talk again! Doesn't sound the same and even sounds a bit monotone at times. He can walk on his own, but gets tired easily and is still very unbalanced. Even now he still throws up, has fevers, won't eat, will cry because his head is swollen and hurts. He can still get over stimulated, have spurts of frustration and anger. Doctors say it could take a year or more before he is back to "normal". After much debate we drove to Memphis Tennessee to St. Judes children's hospital for Kaldyns 1 month follow up MRI. To see if anything was showing up yet and see if doctors there believed he needed treatment now or if he could wait. We wanted to wait until Kaldyn could be older and able to handle the treatment better. We were blessed. MRI still said he looked good and our doctor said we could wait on treatment and monitor it closely. Every few months we need to go back for a MRI to make sure it isn't coming back.

As of right now we need to drive to Fargo again this week, swelling in the incision area is pretty severe and causing him a lot off pain and discomfort. We aren't sure at this time if his doctor is going to just put a shunt in or if he is going to need more surgery.

We want to thank everybody for all your well wishes, gifts, prayers and support.

As of now MRI results look good, but he will have this for life. We will be traveling for Kaldyns care and follow ups for many years. With this rare brain cancer past results have it coming back in 1-3 years. In many cases adulthood isn't always achieved. We don't know what we have ahead of us. We just know to try and take it day by day and be thankful for what we have.
+ Read More
Update 26
Posted by Rene Hentges Eichberg
8 days ago
   Share
Update: Kaldyn has stayed the same this past week. He is comfortable and resting, we have everything here to give him ourselves. He hasn't spoken for 15 days, hasn't opened his eye's for 14 days. I can't express enough how much it hurts to hold our boy daily but not feel him hold us back. To tell him we love him but not hear his sweet voice tell us he loves us. Please keep Kaldyn in your prayers, through out the evening his oxygen has dropped many times. This roller coaster keeps us up and on our toes.
+ Read More
Update 25
Posted by Rene Hentges Eichberg
26 days ago
   Share
1
1
Kaldyn returned home last night via ambulance with mom and dad. He woke up, sat at the table and ate more then he has for days. Then during the night his tremor turned into a full blown seizure and he has become totally unresponsive.
We are on the road trying to get home
Please pray for Kaldyn and our family.
+ Read More
Update 24
Posted by Rene Hentges Eichberg
27 days ago
   Share
1
1
We are getting Kaldyn as stable and comfortable as possible. Our hopes and plans are to be able to go home tomorrow with hospice. Kaldyns tumor is pushing on the brain stem causing his body to react in many ways. The steroids have given us a small window to get home and try to have or last goodbyes in the best environment for Kaldyn. Doctors don't have a crystal ball, but think we are limited to days maybe weeks. Please pray for our family
+ Read More
Update 23
Posted by Rene Hentges Eichberg
29 days ago
   Share
Kaldyn was all set to be released to drive home when he started body tremors so they would not release him. The kids are now trying to get a med flight home. We are all staying in an RV park at 100.00 per day, there is no free parking here.
+ Read More
Read a Previous Update
Tim Kurowski
1 month ago
4
4

My son died at 22 months old . I wish I could change what you are going through , but I cant just remember GOD is with you all the time, and even that wont take the pain away. My prayers are with you to make it through this. I am at a loss for words. God Bless All Of You.

+ Read More
Ryan Eichberg
19 months ago
4
4

Thank you all so much... It makes all the diffrence in the world to be across the nation and know we have great support. Bless every one of you. Thanks

+ Read More
Kris Rech
1 month ago
2
2

My prayers to your family as you navigate through this journey. I am a childhood cancer Mom. I am on the advisory council for an organization called Spare Key. https://www.sparekey.org/ They could help you with a mortgage or rent payment during this difficult time. Sending strength and prayers!

+ Read More
Marcia Green
25 days ago
1
1

Prayers for all of you ...It's in God's hands and he is holding all of u in his..m

+ Read More
Leora Jean Johnson Smith
24 days ago

Kaldyn, Earth Angel

+ Read More

$12,937 of $25k goal

Raised by 146 people in 19 months
Created September 10, 2015
Rene Hentges Eichberg  
on behalf of Ryan Eichberg
NR
$100
Naylor Heating & Refrigeration
9 days ago

Our thoughts and prayers are with you!

SJ
$300
Saad Javed
10 days ago

Ryan, your a great person and you have always been calm and collective even though you have so much going on. It moves us to tears hearing this. Stay strong. Our prayers are with you and the family. MS Team

$100
Anonymous
20 days ago
$10
Anonymous
22 days ago
EP
$50
Erin, Brody, and Evie Peterson
22 days ago

Your family will continue to stay in our thoughts and prayers.

TN
$10
Tonya Nethery
22 days ago

Praying for this beautiful little boy. My heart absolutely breaks for him and your family. #KaldynStrong

$50
Anonymous
22 days ago
GJ
$50
Gail Jones
23 days ago
ES
$20
Erin Snyder
24 days ago
$30
Mike & Leora 25 Smith
24 days ago
Tim Kurowski
1 month ago
4
4

My son died at 22 months old . I wish I could change what you are going through , but I cant just remember GOD is with you all the time, and even that wont take the pain away. My prayers are with you to make it through this. I am at a loss for words. God Bless All Of You.

+ Read More
Ryan Eichberg
19 months ago
4
4

Thank you all so much... It makes all the diffrence in the world to be across the nation and know we have great support. Bless every one of you. Thanks

+ Read More
Kris Rech
1 month ago
2
2

My prayers to your family as you navigate through this journey. I am a childhood cancer Mom. I am on the advisory council for an organization called Spare Key. https://www.sparekey.org/ They could help you with a mortgage or rent payment during this difficult time. Sending strength and prayers!

+ Read More
Marcia Green
25 days ago
1
1

Prayers for all of you ...It's in God's hands and he is holding all of u in his..m

+ Read More
Leora Jean Johnson Smith
24 days ago

Kaldyn, Earth Angel

+ Read More
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now

This campaign needs your support

Any amount helps!
Donate Now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.