Noah’s hope
Don protégé
Friends and family,
My little nephew was diagnosed with niemann pick type C, a terrible progressive, irreversible, chronically debilitating and ultimately fatal genetic disease. If you have researched this, you know that there is no cure. However through the grace of God, doctors are researching a drug called VTS-270 that has been discovered to significantly slow down the disease progression. Noah is the second baby in the country to be admitted in a clinical research trial where he is being infused with the drug for 7 weeks for phase one. Then moving on to phase two where he will be infused every two weeks. Right now this is the only hope Larissa and Justin have of giving their son the best life possible and saving him from this fatal disease. From the moment Noah was born God has been providing and there is no doubt that He will continue to provide. Noah’s mommy has stopped working for the time being to provide this resource for her son. Noah’s daddy will be traveling back and fourth from Miami to Missouri to work and come back to see his son. In this time of difficult trial we are asking friends and family to please donate funds for Noah. Anything will help. Most of all we are asking for fervent prayers for Noah. We know that nothing is imposible for God. We thank you from the bottom of our hearts. Please follow Noah’s NPC journey at http://noahsnpc.com
“God is our refuge and strength, always ready to help in times of trouble.”
Psalms 46:1 NLT
My little nephew was diagnosed with niemann pick type C, a terrible progressive, irreversible, chronically debilitating and ultimately fatal genetic disease. If you have researched this, you know that there is no cure. However through the grace of God, doctors are researching a drug called VTS-270 that has been discovered to significantly slow down the disease progression. Noah is the second baby in the country to be admitted in a clinical research trial where he is being infused with the drug for 7 weeks for phase one. Then moving on to phase two where he will be infused every two weeks. Right now this is the only hope Larissa and Justin have of giving their son the best life possible and saving him from this fatal disease. From the moment Noah was born God has been providing and there is no doubt that He will continue to provide. Noah’s mommy has stopped working for the time being to provide this resource for her son. Noah’s daddy will be traveling back and fourth from Miami to Missouri to work and come back to see his son. In this time of difficult trial we are asking friends and family to please donate funds for Noah. Anything will help. Most of all we are asking for fervent prayers for Noah. We know that nothing is imposible for God. We thank you from the bottom of our hearts. Please follow Noah’s NPC journey at http://noahsnpc.com
“God is our refuge and strength, always ready to help in times of trouble.”
Psalms 46:1 NLT
Organisateur et bénéficiaire
Georgina Lugo
Organisateur
Key Largo, FL
Justin Andrews
Bénéficiaire