Help fund treatments for Zoé
Donation protected
UPDATE 2019
It's now 3 years post diagnosis for Zoe. She and her family are true fighters.
Zoe and her family have made multiple trips over the last few years to Mexico for pioneering treatment, in part thanks to your kind donations. Though the treatments are very new and there is no proof, they seemed to help Zoe enormously in terms of the size of her tumour and improved the quality of her life. They also met many wonderful friends along the way. Of course, sadly there is no cure for DIPG.
Zoe is currently in Naomi House Hospice in England and though the effects of DIPG are truly awful, they are still looking for the positives - currently that the hospice staff are suggesting 5 days of treats for Zoe's upcoming birthday. Yesterday some members of staff dressed up as princesses which seems so appropriate for Princess Zoe! I'm sure most of you who see this page are also following 'association princesse zoé atteinte de dipg' on Facebook. If not, there is a lot of information on there - Emilie knows that lots of friends and family want to know as much as possible about the situation in order to be as supportive as possible so she updates it most days.
Thank you so much to all of you for your generous donations. The support means so much to them. Sadly, 'treatments' are no longer an option for Zoe. She is now being cared for at the hospice who are managing her medication in the best way possible to try and eleviate as much of the pain and suffering as is possible. I will continue to transfer any contributions made here to Zoe's family for them to use in any way they see fit.
Many thanks to you all.
Libby
IMPORTANT UPDATE 5th July 2017
https://www.allwithzoe.com
is a new website where you can donate via Virgin Money Giving. Through this service you can add gift aid to your donation which adds a substantial amount to each donation.
It is also possible to donate directly into a bank account set up for Zoe:
Zoe Donneaud
Sort code: 40 42 18
Account number: 72862727
It's also possible to raise money for Zoe when shopping online at lots of retailers like Sainsburys, John Lewis and Amazon.
https://www.easyfundraising.org.uk/causes/allwithzoe/
Thank you to all of you for your generosity!
______________________________________________________
Update 15th June
Wow -things are moving so fast! Zoe has had her first treatment in Mexico! For the most recent updates with lots of pictures, please see Association Princesse Zoé atteinte de DIPG.
https://www.facebook.com/associationprincessezoe/
Thanks so much for all your generous contributions!
Libby
_________________________________________________________
Update 10th June: Zoe has been accepted for treatment in Mexico and as time is of the essence, things have moved quickly and they are off on Monday! Emilie and Sylvain do not yet have enough money to pay for the treatments. If there is any way you can contribute to help them, I know it will be appreciated so much! Libby
___________________________________________________________
Our little Zoé, who will soon be 6, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an incurable & inoperable cancer, on the 22nd May 2016. A ‘rare’ disease, it is estimated to affect around 1 in 40 children per country per year, equivalent to 1 diagnosis every 9 days. Life expectancy post-diagnosis is generally around 9 months. The survival rate is 0%… Neil Armstrong’s daughter lost her life to it, and 60 years on, there is still no cure.
Radiotherapy is the only treatment known to yield results (temporary relief of symptoms & increased life expectancy) and it is available on the NHS. We will soon be starting our second round of radiotherapy, after which no further treatments will be offered…
Having researched a range of clinical trials and other treatments, often as intense as they are costly, we are hoping to go to Monterrey, in Mexico, as it is the current destination and ‘hope’ for children & families affected by DIPG. The treatments there combine intra-arterial chemotherapy (c. £13,000 per injection) and immunotherapy (c.£12,000 per injection). The side effects are apparently less pronounced than for all other current clinical trials. We’re looking at c.£64,000 for the first 2 courses of treatment.
We have contacted the professors at the private clinic and are awaiting their response.
We want to fight for our little Zoé and we will do everything possible to keep her with us as long and as well as possible. More than ever, we once again need your support and generosity as we take on this challenge. Thank you in advance!
Emilie & Sylvain
For Zoe's story and updates, please like our Facebook page:
Association Princesse Zoé atteinte de DIPG
https://www.facebook.com/associationprincessezoe/?fref=ts
It's now 3 years post diagnosis for Zoe. She and her family are true fighters.
Zoe and her family have made multiple trips over the last few years to Mexico for pioneering treatment, in part thanks to your kind donations. Though the treatments are very new and there is no proof, they seemed to help Zoe enormously in terms of the size of her tumour and improved the quality of her life. They also met many wonderful friends along the way. Of course, sadly there is no cure for DIPG.
Zoe is currently in Naomi House Hospice in England and though the effects of DIPG are truly awful, they are still looking for the positives - currently that the hospice staff are suggesting 5 days of treats for Zoe's upcoming birthday. Yesterday some members of staff dressed up as princesses which seems so appropriate for Princess Zoe! I'm sure most of you who see this page are also following 'association princesse zoé atteinte de dipg' on Facebook. If not, there is a lot of information on there - Emilie knows that lots of friends and family want to know as much as possible about the situation in order to be as supportive as possible so she updates it most days.
Thank you so much to all of you for your generous donations. The support means so much to them. Sadly, 'treatments' are no longer an option for Zoe. She is now being cared for at the hospice who are managing her medication in the best way possible to try and eleviate as much of the pain and suffering as is possible. I will continue to transfer any contributions made here to Zoe's family for them to use in any way they see fit.
Many thanks to you all.
Libby
IMPORTANT UPDATE 5th July 2017
https://www.allwithzoe.com
is a new website where you can donate via Virgin Money Giving. Through this service you can add gift aid to your donation which adds a substantial amount to each donation.
It is also possible to donate directly into a bank account set up for Zoe:
Zoe Donneaud
Sort code: 40 42 18
Account number: 72862727
It's also possible to raise money for Zoe when shopping online at lots of retailers like Sainsburys, John Lewis and Amazon.
https://www.easyfundraising.org.uk/causes/allwithzoe/
Thank you to all of you for your generosity!
______________________________________________________
Update 15th June
Wow -things are moving so fast! Zoe has had her first treatment in Mexico! For the most recent updates with lots of pictures, please see Association Princesse Zoé atteinte de DIPG.
https://www.facebook.com/associationprincessezoe/
Thanks so much for all your generous contributions!
Libby
_________________________________________________________
Update 10th June: Zoe has been accepted for treatment in Mexico and as time is of the essence, things have moved quickly and they are off on Monday! Emilie and Sylvain do not yet have enough money to pay for the treatments. If there is any way you can contribute to help them, I know it will be appreciated so much! Libby
___________________________________________________________
Our little Zoé, who will soon be 6, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an incurable & inoperable cancer, on the 22nd May 2016. A ‘rare’ disease, it is estimated to affect around 1 in 40 children per country per year, equivalent to 1 diagnosis every 9 days. Life expectancy post-diagnosis is generally around 9 months. The survival rate is 0%… Neil Armstrong’s daughter lost her life to it, and 60 years on, there is still no cure.
Radiotherapy is the only treatment known to yield results (temporary relief of symptoms & increased life expectancy) and it is available on the NHS. We will soon be starting our second round of radiotherapy, after which no further treatments will be offered…
Having researched a range of clinical trials and other treatments, often as intense as they are costly, we are hoping to go to Monterrey, in Mexico, as it is the current destination and ‘hope’ for children & families affected by DIPG. The treatments there combine intra-arterial chemotherapy (c. £13,000 per injection) and immunotherapy (c.£12,000 per injection). The side effects are apparently less pronounced than for all other current clinical trials. We’re looking at c.£64,000 for the first 2 courses of treatment.
We have contacted the professors at the private clinic and are awaiting their response.
We want to fight for our little Zoé and we will do everything possible to keep her with us as long and as well as possible. More than ever, we once again need your support and generosity as we take on this challenge. Thank you in advance!
Emilie & Sylvain
For Zoe's story and updates, please like our Facebook page:
Association Princesse Zoé atteinte de DIPG
https://www.facebook.com/associationprincessezoe/?fref=ts
Organizer
Libby Terraz
Organizer
