Lifeline for Juniper

€54,966 of €30,000 goal

Raised by 772 people in 23 days
Created December 26, 2018
FF
Friends And Family
on behalf of Friends and Family
Just before Christmas, 6-month-old baby Juniper, was diagnosed with a rare and life-threatening genetic condition known as SCID, or Severe Combined Immunodeficiency. This has left Juniper with no immune system, therefore the inability to fight off infection. Specialists in Crumlin hospital have explained to her parents, Jessica and Sean, that she will need to travel to the UK for a bone marrow transplant. The treatment plan to save Juniper’s life will require the family to stay in the UK for up to six months. During this time, as family and friends, we want to alleviate any financial pressure for her parents while they embark on this difficult journey.

 

How we plan to Help

As there are no charities or supports for families of children with SCID in Ireland, we have set up this GoFundMe to alleviate financial pressure for Juniper’s parents. The costs that will be incurred during the next year will be extensive, while they remain close to their daughter’s hospital bed 24/7. To support them during this extremely difficult time you can donate to this cause through this page, by hosting a fundraiser, saying a prayer, sending positive energy and sharing this fundraiser far and wide.

The target we have set aims to provide accommodation, flights and living costs for the family.  However, should they not require all that is fundraised, the remaining funds will be donated to support other families affected by SCID.

We also endeavour to raise awareness about this rare condition, as early intervention is key. We will keep this page updated with Juniper’s progress, fundraiser’s in the area and how you can help to campaign. 


*** If you would like to get in touch, please contact lifelineforjuniper@gmail.com *****

 

A note from Juniper’s parents

We’d like to acknowledge how devastating it was to receive the diagnosis and while our focus is on getting Juniper better, we would also like to create awareness about SCIDs, as the earlier it is diagnosed the better the outcome.

It’s not going to be an easy journey but we have such an amazing family and friends to help us through this. Juniper is also a fighter, with the biggest character and we have no doubt she will be the one keeping us going throughout.

We would like to thank everyone for their support so far and will keep you updated as much as possible. Keep sending those positive vibes xxx
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Update 5
Posted by Friends And Family
1 day ago
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A message from Jessica and Sean;

Yesterday we received the news that our journey in the UK will start on Monday. Juniper is doing so well and is in great condition for the transplant.

She must be picking up on all the positive vibes being sent her way from all of you. The plan is to use Jessica as her donor which is also amazing news. We are both thrilled that it has worked out this way.

As you know we have to find our own accommodation over there. Thanks to all of you for your generous donations we were able to rent a small flat quite close to the hospital.

As we have said before we would like for any extra money to assist other families who are in the same position as us. Through the hospital we heard about another family that are currently over in the UK for a transplant who are having some financial issues. Today we transferred €2000 to them. Thank you all again for making this possible as the family really needed it.

While we know this is going to be one of the hardest things we will have to do, knowing that we have the support and positive energy of so many people behind us is going to make it that much easier.

❤Positive Vibes❤
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Update 4
Posted by Friends And Family
6 days ago
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Thanks you so much to everyone who has donated! The love and support is so encouraging to Sean, Jessica and Juniper during this difficult time.

Please keep sharing the petition - let's work together to raise awareness and get this out to every corner of the country. SCID is a condition affecting 1-2 babies every year in Ireland. Early screening would mean much higher chances of survival for children just like Juniper.

https://my.uplift.ie/petitions/simon-harris-please-save-lives-introduce-screening-for-scid-at-birth?fbclid=IwAR1jB0b9ePtQI8MNMEkroSz_viZSQxlxWGiAJVr_kEmxDgnEAujLu3ryKbA

You can also hear Juniper's aunties talk about all things Juniper here https://m.facebook.com/story.php?story_fbid=10156431602599079&id=38510254078

Thanks again!
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Update 3
Posted by Friends And Family
15 days ago
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1
Hi again all,

Apologies, the link to the petition we sent in the last email doesn't seem to be working, please try this one https://my.uplift.ie/petitions/simon-harris-please-save-lives-introduce-screening-for-scid-at-birth?fbclid=IwAR3xyjGmaTel8_Rq97hXRxnG5a9Q9fx0UJB9FldCoqaTFfNJNM9Sjr6M3Fo

Thanks again!
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Update 2
Posted by Friends And Family
15 days ago
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Hi everyone. Thank you all so much for you support, generosity, prayers and positive energy. We appreciate it all so much.

We have just launched a petition that will be delivered to Simon Harris asking him to introduce testing for SCID in the newborn screening programme, or heel prick test. Please sign the petition here https://my.uplift.ie/petitions/simon-harris-please-save-lives-introduce-screening-for-scid-at-birth.

Thank you!
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€54,966 of €30,000 goal

Raised by 772 people in 23 days
Created December 26, 2018
FF
Friends And Family
on behalf of Friends and Family
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