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Lifeline for Juniper

€63,832 of €30,000 goal

Raised by 815 people in 2 months
Created December 26, 2018
***Updated***
Thank you so much to everyone who has donated, we are overwhelmed to see how quickly we have far exceeded our original target. We plan to keep fundraising, so as to help as many families affected by SCID as possible. We have already been able to help another family, whose child is in the process of receiving stem cell therapy and who were in financial difficulties. 

Please remember to sign and keep sharing the petition, in the hope that we can increase survival rates for children with SCID in Ireland. 

https://my.uplift.ie/petitions/simon-harris-please-save-lives-introduce-screening-for-scid-at-birth?fbclid=IwAR1jB0b9ePtQI8MNMEkroSz_viZSQxlxWGiAJVr_kEmxDgnEAujLu3ryKbA

Thank you all for your support!

****************************************


Just before Christmas, 6-month-old baby Juniper, was diagnosed with a rare and life-threatening genetic condition known as SCID, or Severe Combined Immunodeficiency. This has left Juniper with no immune system, therefore the inability to fight off infection. Specialists in Crumlin hospital have explained to her parents, Jessica and Sean, that she will need to travel to the UK for a bone marrow transplant. The treatment plan to save Juniper’s life will require the family to stay in the UK for up to six months. During this time, as family and friends, we want to alleviate any financial pressure for her parents while they embark on this difficult journey.

 

How we plan to Help

As there are no charities or supports for families of children with SCID in Ireland, we have set up this GoFundMe to alleviate financial pressure for Juniper’s parents. The costs that will be incurred during the next year will be extensive, while they remain close to their daughter’s hospital bed 24/7. To support them during this extremely difficult time you can donate to this cause through this page, by hosting a fundraiser, saying a prayer, sending positive energy and sharing this fundraiser far and wide.

The target we have set aims to provide accommodation, flights and living costs for the family.  However, should they not require all that is fundraised, the remaining funds will be donated to support other families affected by SCID.

We also endeavour to raise awareness about this rare condition, as early intervention is key. We will keep this page updated with Juniper’s progress, fundraiser’s in the area and how you can help to campaign. 


*** If you would like to get in touch, please contact lifelineforjuniper@gmail.com *****

 

A note from Juniper’s parents

We’d like to acknowledge how devastating it was to receive the diagnosis and while our focus is on getting Juniper better, we would also like to create awareness about SCIDs, as the earlier it is diagnosed the better the outcome.

It’s not going to be an easy journey but we have such an amazing family and friends to help us through this. Juniper is also a fighter, with the biggest character and we have no doubt she will be the one keeping us going throughout.

We would like to thank everyone for their support so far and will keep you updated as much as possible. Keep sending those positive vibes xxx
+ Read More
We would like to give you all a little update on Juniper.

Her neutrophils are slowly increasing which is the first sign the treatment is starting to take. Last Thursday, three weeks post transplant, she moved from red isolation to purple which meant we were able to kiss her again and take her out for walks. This was the best feeling ever.

She's been going from strength to strength and we are hoping to be allowed out to the halfway house soon. This means we stay in Newcastle in our own place where we attend the hospital twice weekly so they can keep a very close eye on her progress.

The next milestone is where we begin to see her T cells. This will happen at 3/4 months post transplant. Then the B cells at 6 months. These are the mature immune system and it will be very exciting to see her make these cells as she was not able to do this before.

Thanks again to everyone for your support, in whatever way it was given, it all means so much to us. Jessica and Seán x
+ Read More
We would sincerely like to thank everyone for their kind and encouraging comments. Apologies that we have not been able to reply individually - we hope you understand.

Juniper starts the next stage of her journey to recovery tomorrow, 15th of February.
The treatment involves taking stem cells from Jessica on the 20th and then they will be transplanted into Juniper on Thursday the 21st.

The next month is going to be tough as she will probably get worse before she gets better. Towards the end of march things will begin to pick up and we will see the first signs of her new immune system. While we are here with her, knowing that we have so many people thinking of us really helps us as a family.

Please keep Juniper in your thoughts and prayers. The positive vibes, energy and love is definitely making a difference.

Lots of love Sean, Jess and Juniper.
+ Read More
Evening everyone,

For anyone that was planning to come to the park run for Juniper tomorrow, it has unfortunately had to be cancelled due the weather, the roads are treacherous. Will keep you posted when its rescheduled.

Thanks!
+ Read More
Hi again,

Apologies for sending two emails in the same day! I made a mistake in the dates of the events (more haste less speed!).

The auction will take place on FRIDAY the 8th, and the Live Music on SAT 9th.

Thanks again!
+ Read More
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€63,832 of €30,000 goal

Raised by 815 people in 2 months
Created December 26, 2018
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