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jimmys wellness fund

$61,084 of $85,000 goal

Raised by 747 people in 10 months

About Jimmy Carbone’s urgent health crisis,  from Jimmy’s brother Christopher:
Overview as of July 11, 2018
Jimmy Carbone just made it through 2 major emergency spinal surgeries in late June 2018, after a 9 month battle with a serious staph infection that had originally gone undiagnosed, eventually wreaking havoc on his spinal cord and overall health.  Jimmy is now still facing several months of hospitalization with slow painful rehabilitation.
He cannot stand or walk. 
They do not know about his long-term chances for him being able to walk again,
and at this moment it is a very difficult time for him and his family.
Jimmy continues to need everyone's help.

Here is the updated GoFundMe page for "Jimmy's Wellness Fund",
to help him cover ongoing expenses while he strives to recover.
Any help with donations and in sharing the word will make a difference for him.

——
Background :
As many of you know, since the Fall 2017
Jimmy Carbone has been going through an arduous ordeal with his health:
Amongst other issues, Jimmy suffered through a full-blown knee infection that landed him in the hospital in October, and then over time it grew to be an intense, pervasive pain in all his joints, with fatigue and weakness.
Along the way, he was forced to close his business “Jimmy’s 43” in the East Village.
His other work opportunities also suffered as he did not have the physical stamina to keep going. 

Jimmy put his best efforts into dealing with this:
With his wife Pixie’s help, he began making strong lifestyle changes,
including purposeful and dedicated care with food and overall wellness practices,
and that indeed helped his overall health.
(As part of that, Jimmy lost 40 pounds of weight!)
He dealt with his un-treated diabetes and was able to bring his blood sugar down to manageable levels.  With encouragement and support from friends, he got long-needed appointments with specialists including orthopedic physicians and eye-doctors (his vision has suffered as well).   
The GoFundMe page was originally created for Jimmy in November 2017,
to help get him some help while he visited specialists and sought additional treatment.
That helped him to bear some of the emotional and financial stresses of this ordeal.
Thank you to all who have been of support thus far, it has meant so much to Jimmy.


During that time, there were moments where he was hopeful for improvements.
Yet even with these lifestyle shifts and medical visits,
his fatigue and painful joint issues continued to plague him over time.
He experienced mysterious chills and pains and exhaustion,
while trying just to walk, to work, and in daily life. 
Yet Jimmy pushed on to try to get through it all.

His condition got so bad this June 2018,
after pushing himself to get through a catering job through intense pain,
that same night afterwards, his legs stopped functioning,
and he couldn’t even stand up.
Jimmy was hauled to the Emergency room down 3 flights of stairs by 4 EMT’s. 

There at NYU Langone Hospital,
after myriad tests and an MRI on his spine,
infectious disease specialists there joined his team,
and they found an important part of the puzzle:
that Jimmy had been dealing with a serious Staph Infection. 
The Staph infection had gone into his spine. 
That Staph infection had been causing damage internally in his body and nervous system for months and unfortunately had been going undiagnosed.
It is now suspected to be related to the original knee infection
that occurred back in October 2017. 
Since then, the Staph had gone deep into his system, it was not caught,
and over these 9 months, it had been slowly wreaking havoc on his body from the inside out.

So, the first goal was to stop the infection,
and to help restore the spinal cord that had been compromised.
To begin the process, he went through 2 emergency surgeries
 and now is undergoing ongoing intensive antibiotic treatment to treat the infection.
This was all done in the hopes of regenerating the nerve ­connections there in time,
to improve his chances of his lower spinal cord and body working,
for basic life skills such as standing and walking again someday.

Since the surgeries, Jimmy was moved from the ICU to an acute hospital rehab in New York:
(to the NYU Acute Care ­Rusk Rehabilitation hospital ­
on 2nd Avenue and 17th Street.)

Update July 10, 2018: The Marathon of Rehabilitation ahead:

Here in the Acute Rehab Hospital,
Jimmy is receiving ongoing treatment and evaluation,
to continue to ascertain what “route” this marathon will take,
to see how difficult the terrain will be,
and how long it will take.

While on this path,
a primary focus is to do everything possible heal up from the surgeries,
and also participate in ongoing neuro­muscular re­training:
forms of deep physical and occupational therapy
with the immediate goals to help re­develop neural connections,
muscle strength and whatever functionality is possible.
Depending on how things go,
The long-term goal will be to get Jimmy to be able to stand and walk again someday
and live a more full life again.

The past weeks in post-surgical rehabilitation have been physically challenging every day for Jimmy ­
as he has been doing assisted “sitting up” sessions,
needing to wear a full back brace for a few hours at a time to build up his strength.
Any sense of progress is small and only with tremendous effort.

It’s difficult, to be clear:
Serious life questions are hovering overhead:
For example, with a spinal cord affliction,
Will he actually be able to regain use of his legs and mid/lower body functions?
If so, how long will it take for that to happen?
If not, and if dealing with long­term spinal injury and potential paralysis,
what would that mean for his livelihood, long­term health and life issues?

As mentioned, this has become a long­-distance healing trek for Jimmy,
whatever the route and outcome,
it’s looking that it will take much longer than originally expected…
and every bit of support along the slow miles helps so much.

For local NYC folks,
he is open to visitors when able:
just keep in mind that he will be involved in the therapeutic work quite intensively along with recuperating afterwards,
at this rehab hospital, so the best times for visits
will be in the 5pm suppertime, and early evening til 8pm.

Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
Any help that you can give means so much right now. 
https://www.gofundme.com/jimmywellnessfund 

Thank you
Christopher Carbone on behalf of brother Jimmy Carbone

------------------------------

Follow the "updates" tab  for what's most current.
Jimmy's original out-reach story from November 2017,
before he knew that on top of everything else,
he was also dealing with a serious Staph Infection,
that original is  still here below:

---
I've been fighting diabetes for 7 years, not being public about it, not taking very good care of myself. I've also had a lot of business stress the past few years that has made it worse. My work has suffered and now I have a health crisis.

Early October 2017, i had a high fever for 2 days. the 3rd day, my knee started to swell up, i couldnt sleep nor walk. Next day i was in Beth Israel hospital for 2 days.
i was on crutches for 2 weeks, fatigued for a month. 

back story on work stress.
march 2015, i was directly  adjacent to the east village gas explosion when it happened. 
my business was closed for 3 weeks, i was stressed out of my mind, fought the city to reopen, dealt with 5 months of building renovations.
http://bedfordandbowery.com/2015/04/brewmuda-triangle-back-in-business-after-east-village-explosion-closure/

http://bedfordandbowery.com/2015/03/updates-on-the-east-village-explosion-48-hours-later/

Since then , my health went downhill. while i struggled to re open then survive as a business. my blood sugar levels were too high, i slept little, i drank too much.....

2 years later, the business was forced to close .

this article best tells the story
http://gothamist.com/2017/08/28/rip_jimmys_no_43.php

2 months later, i was in the hospital, unable to walk. waking  every hour to go to the bathroom.

i  wasnt able to work, nor focus on re opening my business or finding a  business partner, now i am in a difficult financial situation, need to pay my bills, rent, support my wife and high school age daughter. but i need to rest, seek further treatment, eat a special diet. the lifestyle change alone to treat my diabetes is taking my time and attention. 

my knee still swells up and it's been hard to find answers - no one can figure out what is happening -  have not had a proper diagnosis yet regarding the knee injury.

i  need the money to cover living expenses while i get better, sort out a job or re open my business with a partner. but i will not get my health back without the funds to take the time to do this and to afford  proper medical treatment.

the funds are needed to cover upcoming months of living expenses, medical treatment, and debts that have been incurred the past months while i have been ill.

my situation is urgent.

i contribute regularly to my community, have supported many arts, school, theater, food start up groups,

now im asking for help, to get healthy .

 cheers, jimmy carbone

+ Read More
About Jimmy Carbone's ongoing health situation, Update as of September 21, 2018
from Jimmy’s brother Christopher:
Jimmy making progress: “HOMEWARD Bound?!?”

Review: As you know, Jimmy had been in the hospital since June2018, where they found spinal staph infection and had 2 emergency surgeries. Since then he had been in and out of ICU and the Acute Rehabilitation wing of the hospital for recovery and rehab. As recently posted Jimmy was shifted to a less intensive facility and

NOW as of This week:
Jimmy is on the “homeward bound” part of the journey…
and will continue to need help getting back on his “feet” both physically and metaphorically as he transitions to this next stage. Here’s what’s happening.

So, as of September 21, 2018 additional updates
1. After 3 months in hospital / nursing / in-patient care, after working his way over so many hills, Jimmy has moved to Outpatient Care, which means he has been moved HOME into his apartment with family in the East Village! An amazing moment!
Still fighting off the lingering spinal infection, still recovering from the surgery and lack of feeling in his legs, but making progress day by day, week by week.

2. Legs & Spine: LEGS are MOVING and with WALKER/CRUTCHES able to STEP/WALK with support, a few feet at a time. Next goal: From home, he’s aiming to be able to get downstairs and walk 1 block right now, to get to café or health club, etc. As noted earlier, Doctors report that Jimmy is very lucky that he was finally diagnosed in June 2018. He was very close to being permanently paralyzed in his legs. From all the work he put in during his in-patient rehab, he has built up strength with sweat.
Getting up 3 flights of stairs in the building seemed impossible a month ago. Now with focused attention on preparing for that, it still feels like a mountain, takes a long time, and is exhausted at the end of it, but is possible and he is seeing a chance to keep growing stronger from that grind.

3. Living & Getting out: He’s now moved back home. And with special car-service and accompanying physical therapist one day, He even went out to attend a Food Event created years ago to help generate interest in local food and farmers and foodies ( PIG ISLAND event) where he had his walker (with practical built-in seat!) so that he could be there… He made it out this week to the Heritage radio studio for one of his radio shows!

And Listen here for a special Radio story from the week before while he was getting ready back in the rehab-hospital: http://heritageradionetwork.org/podcast/you-cant-keep-jimmy-carbone-down/

4. This was all HUGE to be able to even imagine getting out to these places/events. What people may not know is that after one of these outings, he has to rest for a recuperation day afterwards as the amount of energy that it takes to sit-up and move through a full day - it is a massive effort on his spine, legs and body, he’s sore all over afterwards, but he loves it and wants to keep building strength to be able to envision getting back into some activities again.

5. Infection: Unfortunately: despite the initial gains, there is still bacteria lingering in the spine where the rods were installed that can't be cleared out due to the sensitive area in the spine. He will need to be on antibiotics and medications for at least another year, probably for years to come, to keep that clear, with the hope there is no relapse. It is taking a toll on his energy levels but he’s doing the best he can to stay upbeat about it all.

6. Overall Health – As mentioned, Through all this, since last fall, Jimmy has made major lifestyle changes as well which is helping in general… he’s lost weight bringing him down to an average weight now, his diabetes is being well-managed mostly through sharp attention to food with low medication, and now that he’s home he’s able to watch his food even more closely (and Pixie is amazing with bringing on the home-goodness natural food, veggies and healthy options at home! After the time with so much “institutionalized” food settings, Jimmy LOVES having FRESH home-food again and feels the benefit of it too.)

So for now Jimmy is doing the Home-care approach,
with additional outside support: visiting Nurse to check on his surgery recovery and overall wellbeing… and outside appointments with specialists to make sure he keeps making progress…
He’s also awaiting the opportunity to return to more intensive rehab workouts and he’s hoping to be able to get into that NYU outpatient rehab system for regular visits there each week starting in a couple weeks.

As mentioned in previous weeks, even though he’s made progress beyond even what was originally considered realistic, we see that it will still take a long while,
it will continue to be an arduous path, but there are now GREATER moments of hope in that direction of being able to have greater health and independence again someday…

It will be many months ahead, even years of ongoing Rehabilitation –
but now the vision is even more clear of the possibility…
In the metaphor of the “Marathon” that we’ve used in the past,
now he’s getting up past the major hills in the road,
and beginning to see a more clear path -
which take him closer and closer to his destination of WHOLE HEALTH.

For all who also have shared positive messages and donated over these months:
THANK YOU for your generous and kind spirit,
it all helps so much to relieve the difficulties for Jimmy going through this.

He continues to need everyone’s help as he recovers and gains strength.
via the GoFundMe page for "Jimmy's Wellness Fund",
to help him cover ongoing expenses while he strives to recover.
Any help in sharing the word will make a difference for him.
https://www.gofundme.com/jimmywellnessfund
——

Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
Any help that you can give means so much right now.
https://www.gofundme.com/jimmywellnessfund

Thank you
Christopher Carbone
+ Read More
About Jimmy Carbone’s ongoing health situation, Update as of September 5, 2018
from Jimmy’s brother Christopher:
Jimmy making progress, theme: “Step by Step”

Review: As you know, Jimmy had been in the hospital since June2018,
where they found spinal infection and had 2 emergency surgeries.
Since then he had been in and out of ICU and the Acute Rehabilitation wing of the hospital for recovery and rehab. As recently posted Jimmy was recently shifted to a less intensive facility:
NYU Gouverneur Medical Rehab on the Lower East Side.

So, as of September 5, 2018 additional updates
1. Infection: generally stable, but there is still bacteria lingering in the spine where the rods were installed that can't be cleared out due to the sensitive area in the spine. He will be taking antibiotics for at least another year with the hope there is no relapse.

2. Legs & Spine: Doctors report that Jimmy is very lucky that he was finally diagnosed in June 2018. He was very close to being permanently paralyzed in his legs. Now with ongoing rehab work, he is getting stronger with sitting up with back brace for longer periods of time – and LEGS are BEGINNING to MOVE and get STRONGER!!! Now Jimmy is STANDING with Support for brief periods and Taking SUPPORTED STEPS as well -
with Walker / Crutch-support to walk in the future:
seeing a chance to cross a finish line, even if it takes a long time…
One day, One week at a time.

3. Overall Health – Through all this, since last fall, Jimmy has made major lifestyle changes as well which is helping in general… he’s lost weight bringing him down to an average weight now, his diabetes is being well-managed mostly through sharp attention to food with low medication, he’s exercising with his rehab workouts twice daily and he looks brighter than he’s been in a long time!

As mentioned, Jimmy has been shifted to a less intensive facility:
NYU Gouverneur Medical Rehab on the Lower East Side.

There he can still receive basic medical treatment,
but with the challenge and blessing of less medical intervention and greater movement towards self-sufficiency…
So he continues with with neuro-muscular workouts and physical therapy
to help him regain greater mobility and functionality in his lower body and legs.

As mentioned in previous weeks,
it will take a long while,
it will be an arduous path,
but there are now GREATER moments of hope in that direction of being able to have greater health and independence again someday…
It will be many months, even years of rehabilitation –
but now the vision is more clear of the possibility…
In the metaphor of the “Marathon” that we’ve used in the past, now he’s getting up past the major hills in the road, and beginning to see a more clear path - which take him closer and closer to his destination of HOME and HEALTH.

For all who also have shared positive messages and donated over these months:
THANK YOU for your generous and kind spirit,
it all helps so much to relieve the difficulties for Jimmy going through this.
Fortunately he's receiving excellent care and attention at the NYU Medical and Rehab sites..

He continues to need everyone’s help
via the GoFundMe page for "Jimmy's Wellness Fund",
to help him cover ongoing expenses while he strives to recover.
Any help in sharing the word will make a difference for him.
https://www.gofundme.com/jimmywellnessfund
——

For local NYC folks,
he is open to visitors when able:
just keep in mind that he will be involved in the therapeutic work
quite intensively along with recuperating afterwards, at this rehab hospital,
so he’s busy and tired out during the day…
and the best times for visits will be 5pm to 7:30pm or weekends…
NYU Gouverneur Medical Rehab on the Lower East Side.
(227 Madison street - Lower East Side (specifically near Seward Park, Chinatown)

Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
Any help that you can give means so much right now. 
https://www.gofundme.com/jimmywellnessfund

Thank you
Christopher Carbone
+ Read More
About Jimmy Carbone’s ongoing health situation, Update as of August 15, 2018
from Jimmy’s brother Christopher:
Jimmy has been more stabilized again in the past two weeks, and he has made some progress too!

Review: As you may know, Jimmy had been in the hospital since June,
where they found spinal infections and had 2 emergency surgeries to save the use of his lower body and regain his health.
Since then he had been in and out of ICU and the Acute Rehabilitation wing of the hospital for recovery and rehab. The primary concerns have been
1. Whether he could fight off the invasive staph infections?
2. Making sure the spinal area / back is holding up and healing up properly post-surgery?
3. Whether he could regain neuro-muscular connection / prevent paralysis and generate movement in his lower body?

So, good news: as of August 15, 2018 some progress has been made:
1. Infection now being kept at bay, now he has gone from intensive IV antibiotics to oral antibiotics, will continue for weeks as needed to make sure that there is no recurrence. Being monitored for signs of recurrence, as this type of infection can go dormant and come back at a future point, but after multiple struggles with it, (now on his 5th different antibiotic!) he’s doing much better with that!
2. Spinal surgeries showing themselves to holding up successfully at this point – wounds are beginning to heal up more….back strength is coming back, able to sit up more fully… will be limited in spinal movement and will need to wear a back brace for a while, but meanwhile is developing strength again there.
3. Very importantly: for Legs and lower body: more signs of nerve activation in legs and lower body…and yes Jimmy is beginning to move his legs again! While it’s looking like he has long-term nerve damage in his feet, and it’s questionable how much sensation he’ll have there long-term, he is beginning to be able to bear weight on his feet and legs. So he has begun standing up supported with a walker and pushing on that taking a few “steps” at a time - supporting his body with his arm strength and pushing forward so that his legs can practice holding the weight. That is incredible and very encouraging! He's working out with this, working hard every day. As part of that, he's developing his upper body strength which also helps with transferring to wheelchair as he's able to use that too.

With this progress,
As of this week August 15, 2018, Jimmy has been shifted to a less intensive facility:
NYU Gouverneur Medical Rehab on the Lower East Side.

There he can still receive basic medical treatment,
but with the challenge and blessing of less medical intervention and greater movement towards self-sufficiency…
So he continues with with neuro-muscular workouts and physical therapy
to help him regain greater mobility and functionality in his lower body and legs.

As mentioned in previous weeks,
it will take a long while,
it will be an arduous path,
but there are now at least GREATER glimmers of hope in that direction of being able to have greater health and independence again someday…
It will be many months, even years of rehabilitation – but now the vision is more clear of the possibility…
In the metaphor of the “Marathon” that we’ve used in the past, now he’s in the 2nd half – getting past the grueling opening hills , having lost and caught his breath along the way… now looking to begin to see the next roads ahead which take him closer and closer to his destination of HOME and HEALTH.

For all who also have shared positive messages and donated over these months:
THANK YOU for your generous and kind spirit,
it all helps so much to relieve the difficulties for Jimmy going through this.
Fortunately he's receiving excellent care and attention at the NYU Medical and Rehab sites..

He continues to need everyone’s help
via the GoFundMe page for "Jimmy's Wellness Fund",
to help him cover ongoing expenses while he strives to recover.
Any help in sharing the word will make a difference for him.
https://www.gofundme.com/jimmywellnessfund
——

For local NYC folks,
he is open to visitors when able:
just keep in mind that he will be involved in the therapeutic work
quite intensively along with recuperating afterwards, at this rehab hospital,
so he’s busy and tired out during the day…
and the best times for visits will be 5pm to 7:30pm
NYU Gouverneur Medical Rehab on the Lower East Side.
(227 Madison street - Lower East Side (specifically near Seward Park, Chinatown)

Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
Any help that you can give means so much right now.
https://www.gofundme.com/jimmywellnessfund

Thank you
Christopher Carbone
+ Read More
About Jimmy Carbone’s ongoing health situation,
from Jimmy’s brother Christopher: Overview as of August 1, 2018
As mentioned, Jimmy had gone through another bout in the ICU, after fighting off a setback for about 2 weeks with another round of infection / fevers / weakness…
Fortunately as of this week, they got him more stabilized again, and now he's been moved back down to the Acute Rehabilitation wing of the hospital there this week. (NYU-Rusk)

There he can still receive all the medical treatment needed but he also gets the opportunity to re-commence with the more “working-it” part of it:
the necessary deep neuro-muscular work and physical therapy after these spinal infections and surgeries…
to help him regain hope of mobility and functionality in his lower body and legs.

Envisioning being able to continue onwards on the journey... Still watchful of what may be possible:
As of August 1st:
He’s now getting a little more sensation and some movement in his lower body / legs...
which is a relatively positive sign for the potential of at least partial recovery down the road –
it will take a long while,
it will be an arduous path,
but there are now at least glimmers of hope in that direction!
So progress is being made, small moments:
being able to develop more strength for sitting up, getting legs underneath him
to see if standing and walking will happen…
will take a while for everything to see how it moves forward, but it is moving forward….

For all who also have shared positive messages and donated over these months: THANK YOU for your generous and kind spirit, it all helps so much to relieve the difficulties for Jimmy going through this.

Fortunately he's receiving excellent care and attention at NYU-Rusk
to attend to what's needed, very grateful for that.

He continues to need everyone’s help
via the GoFundMe page for "Jimmy's Wellness Fund",
to help him cover ongoing expenses while he strives to recover.
Any help in sharing the word will make a difference for him.
https://www.gofundme.com/jimmywellnessfund
——

For local NYC folks,
he is open to visitors when able:
just keep in mind that he will be involved in the therapeutic work
quite intensively along with recuperating afterwards, at this rehab hospital,
so he’s busy and tired out during the day…
and the best times for visits will be 5pm to 7:30pm

Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
Any help that you can give means so much right now. 
https://www.gofundme.com/jimmywellnessfund

Thank you
Christopher Carbone
+ Read More
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