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jimmys wellness fund

$75,000 of $85,000 goal

Raised by 876 people in 20 months

About Jimmy Carbone’s ongoing health challenges,  fighting against
a MRRS Staph Infection that went tohis spine and the complications from that.

from Jimmy’s brother Christopher:
Overview notes:
Jimmy Carbone continues to need everyone's help.

Here is an article about Jimmy's recovery and physical therapy 
http://evgrieve.com/2019/02/jimmy-carbone-on-long-recovery-ahead.html 

Jimmy continues to need financial support. 

See UPDATE tab  for current notes...

Here is the overview GoFundMe page
for "Jimmy's Wellness Fund",

to help him cover ongoing expenses while he strives to recover.
Any help with donations and in sharing the word will make a difference for him.
——
Background :
As many of you know, since the Fall 2017
Jimmy Carbone has been going through an arduous ordeal with his health:
Amongst other issues, Jimmy suffered through a full-blown knee infection that landed him in the hospital in October, and then over time it grew to be an intense, pervasive pain in all his joints,
with fatigue and weakness.
Along the way, he was forced to close his business “Jimmy’s 43” in the East Village.
His other work opportunities also suffered as he did not have the physical stamina to keep going. 

Jimmy put his best efforts into trying to figure out the possible causes, to deal with it all:
With his wife Pixie’s help, he began making strong lifestyle changes,
including purposeful and dedicated care with nutrition and overall wellness practices,
and that indeed helped his overall health.
(As part of that, Jimmy lost 40 pounds of weight!)
 With encouragement and support from friends, he got long-needed appointments with specialists including orthopedic physicians and eye-doctors (his vision has suffered as well).   

The GoFundMe page was originally created for Jimmy in November 2017,
to help get him some help while he visited specialists and sought additional treatment.
That helped him to bear some of the emotional and financial stresses of this ordeal.
Thank you to all who have been of support thus far, it has meant so much to Jimmy.


During that time, there were moments where he was hopeful for improvements.
Yet even with these lifestyle shifts and medical visits, he was concerned:
his fatigue and painful joint issues continued to plague him over time.
He experienced mysterious chills and pains and exhaustion,
while trying just to walk, to work, and in daily life. 
Yet Jimmy pushed on to try to get through it all.

His condition got so bad this June 2018,
after pushing himself to get through a catering job through intense pain,
that same night afterwards, his legs stopped functioning,
and he couldn’t even stand up, he had lost all strength and mobility in his legs:
he found himself essentially paralyzed from the waist down.

Jimmy was hauled to the Emergency room down 3 flights of stairs by 4 EMT’s. 

There at NYU Langone Hospital,
after myriad tests and an MRI on his spine,
infectious disease specialists there joined his team,
and they found an important part of the puzzle:
that Jimmy had been dealing with a serious MRRS Staph Infection. 
The Staph infection had gone directly into his spine. 
That Staph infection had been causing damage internally in his body and nervous system for months and unfortunately had been going undiagnosed.
It is now suspected to be related to the original knee infection
that occurred back in October 2017 or even longer than that.
Since then, the Staph had gone deep into his system, it was not caught,
and over those 9 months,
it had been slowly wreaking havoc on his body from the inside out.

So, the first goal was to stop the infection,
and to help restore the spinal cord and verterbrae that had been compromised.
To begin the process, he went through 2 emergency surgeries in June
 and then began undergoing ongoing intensive antibiotic treatment to treat the infection.
This was all done in the hopes of regenerating the nerve ­connections there in time,
to improve his chances of his lower spinal cord and body working,
for basic life skills such as standing and walking again someday.

Since the surgeries, Jimmy was moved from the ICU to an acute hospital rehab in New York:
(to the NYU Acute Care ­Rusk Rehabilitation hospital ­
on 2nd Avenue and 17th Street.)
Then in September 2018, was able to be moved from hospital
to at-home rehab treatment.

Update October 21, 2018 

As of October 21, 2018 Jimmy says:
“Past couple weeks I've had a chance to reflect on what has happened to me health-wise the past year. With doctor follow-ups: the neurosurgeon who operated 2 times on my spine, the infectious disease doctor who identified and treated my spine infection, and the rehab doctor who is managing my recovery… My spine infection went undiagnosed for quite a long time. It caused considerable spinal cord and vertebrae damage. The two surgeries putting in two 10-inch metal rods in my spine also created additional strain, and recovery from these kinds of spinal cord injuries is not completely understood.
It’s not over, I have a long road of recovery ahead.
I need your support more than ever, with mounting medical bills, cost of medications, food and shelter, debts. I can now walk with a walker, but will need much more outpatient therapy and time for the nerves in my feet and legs to fully recover, if ever......I don’t know if I will ever regain full mobility and range of motion with my back. The infection is still there in my spine, I will be taking antibiotics for many years to keep it at bay.”

Notes on Jimmy Carbone's ongoing health crisis
from Jimmy’s brother Christopher: as of October 21, 2018
Jimmy still in pain and his mobility still very limited – and needs help and support.

Review: Jimmy had been in the hospital since June2018,
where they found spinal staph infection eating away at his spine, and did 2 emergency spine surgeries to save him. Since then he had been in and out of ICU and the Acute Rehabilitation wing of the hospital for recovery and rehab.
Jimmy has been at home for 4 weeks now, doing at-home rehab.
He has another 1 to 2 years of rehabilitation ahead.
He needs help financially getting back on his “feet” too.

Here’s what’s happening now
Jimmy’s feeling grateful to be home but it’s not easy
and doctors say that his recovery process will continue to take at least another 18 months to 2 years.
He will have limited mobility for the rest of his life, his career and job prospects must change.

Jimmy continues to need everyone’s help as he recovers and gains strength.
via the GoFundMe page for "Jimmy's Wellness Fund",
to help him cover ongoing expenses while he strives to recover.
Any help in sharing the word will make a difference for him.
https://www.gofundme.com/jimmywellnessfund )

---------------------------------------

So for now Jimmy is doing the Home-Rehab approach,
with visiting therapists to check on his surgery recovery and overall wellbeing…
and outside appointments with specialists to make sure he keeps making progress…

He’s also awaiting the opportunity to return to more intensive rehab workouts
and he’s hoping to be able to get into that NYU outpatient rehab system
for regular visits there each week starting in a couple weeks.

It will be many months ahead,
even years of ongoing Rehabilitation –
but now the vision is even more clear of the possibility…

In the metaphor of the “Marathon” that we’ve used in the past,
now he’s getting up past the major hills in the road,
and beginning to see a more clear path -

For all who also have shared positive messages and donated over these months:

THANK YOU for your generous and kind spirit,
it all helps so much to relieve the difficulties for Jimmy going through this.
He continues to need everyone’s help as he recovers and gains strength.
via the GoFundMe page
for "Jimmy's Wellness Fund",
to help him cover ongoing expenses while he strives to recover.
Any help in sharing the word will make a difference for him.
https://www.gofundme.com/jimmywellnessfund

——
Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
Any help that you can give means so much right now.
https://www.gofundme.com/jimmywellnessfund

Thank you
Christopher Carbone on behalf of brother Jimmy Carbone

------------------------------

Follow the "updates" tab  for what's most current.

Jimmy's original out-reach story from November 2017,
before he knew that on top of everything else,
he was also dealing with a serious MRRS Staph Infection.  
Notes from that original, here below:

----------------------------------
from Jimmy's original posts:

Been dealing with a lot - I've also had a lot of business stress the past few years that has made it worse. My work has suffered and now I have a health crisis.

Early October 2017, i had a high fever for 2 days. the 3rd day, my knee started to swell up, i couldnt sleep nor walk. Next day i was in Beth Israel hospital for 2 days.
i was on crutches for 2 weeks, fatigued for a month. 

back story on work stress.
march 2015, i was directly  adjacent to the east village gas explosion when it happened. 
my business was closed for 3 weeks, i was stressed out of my mind, fought the city to reopen, dealt with 5 months of building renovations.
http://bedfordandbowery.com/2015/04/brewmuda-triangle-back-in-business-after-east-village-explosion-closure/

http://bedfordandbowery.com/2015/03/updates-on-the-east-village-explosion-48-hours-later/

Since then , my health went downhill. while i struggled to re open then survive as a business...

2 years later, the business was forced to close .

this article best tells the story
http://gothamist.com/2017/08/28/rip_jimmys_no_43.php

2 months later, i was in the hospital, unable to walk. waking  every hour to go to the bathroom.
my knee still swells up and it's been hard to find answers - no one can figure out what is happening -  have not had a proper diagnosis yet regarding the knee injury.

i  need the money to cover living expenses while i get better, sort out a job or re open my business with a partner. but i will not get my health back without the funds to take the time to do this and to afford  proper medical treatment.

the funds are needed to cover upcoming months of living expenses, medical treatment, and debts that have been incurred the past months while i have been ill.

my situation is urgent.

i contribute regularly to my community, have supported many arts, school, theater, food start up groups,

now im asking for help, to get healthy .

 cheers,

jimmy carbone

+ Read More
Father's Day update.
Father's day means a lot to Jimmy's family.
1 year ago , June 16 was the day he was no longer able to walk.
June 19, his first spine surgery.
He is thankful for everyone's support.
He has come a long way since then.

He still needs to finish off the Go Fund Me campaign to get through this year.
6 more months of medical follow ups, back to fighting with specialists and insurance to continue his treatments, physical therapy etc

He is a fighter and he'll keep recovering.
Please post and share to help Jimmy close out this campaign.

Sincerely
Jimmy's brother, Christopher
+ Read More
Thanks Chris. I never get discouraged. I'm appreciating my new life, with its limitations
Cheers jimmy
+ Read More
Intro from brother Chris 
Update
As you read this go fund me campaign, know that it goes back to fall 2017, now it is a journal of jimmy's struggles through the health care system, not knowing what was wrong with him, being misdiagnosed..
Looking back , now we know
-- jimmy had a staph infection for over a year that wasn't properly diagnosed
-- it went into his spine
-- by June 2018 he was paralyzed below the waist, suffered great neurological damage, had 2 emergency spine surgeries
--only then did he have the specialists who pieced it all together...



Here is an article about Jimmy's recovery and physical therapy 
http://evgrieve.com/2019/02/jimmy-carbone-on-long-recovery-ahead.html 




Now as you read through this site, know that jimmy went through this journey of misdiagnosis,
..etc


Updates from jimmy


May 2019
Note to k.t.

Thanks. It's been 21 months since health shit started or longer, all from some crazy staph infection that wasn't properly diagnosed. Ending up in the hospital last june was a relief in some way, since I knew that something REAL had happened to me, that wasn't just going to be ongoing pain and uncertainty

Now?
I spend a lot of my time on health related matters
Daily Exercise, physical therapy
Doctor Follow ups, monitoring  reactions to changes in medicine, blood tests
Making sure I dont over schecule and I get enough rest




Recent Notes



Oh that’s really great to hear!!  Onward…. Right? ; ) L.




I think you were very brave in hospital. 
I’m sorry you have gone through all this but glad you are healing and making the most of life.....C.
+ Read More
April 28, 2019 notes
18 months later, 10 months since 2nd spine surgery

Physical therapy is improving month to month. You will see me walking around with just a cane:)
The big concern is the infection that is still in my spine.
A week ago the Infectious Disease doctor reduced my antibiotic from twice a day double dose, down to one dounble dose per day.
The big question is : will I get better or worse on a lower dose?
it's worth a shot. My inflammatory levels and other blood tests are constantly being monitored .
Early March I was back in the hospital and my medicine levels were doubled up , but that was too intense, now we're trying to see how I respond to a lower dose.

Most days I don't think about it . I'm thinking about it today.

But I know what I've been through. I don't know if I'll ever be back to full strength. I don't know if I will ever have full Mobility.
When I'm outside, I'm upbeat , walking with just a cane now.
In physical therapy , my mobility is improving.

I have to stay positive and know that there will be set backs.
I've learned a lot about the neurological damage that has happened to me.
The prick test? I can feel a sharp point on my hips, thighs now. Below the legs, not yet.

I'm just going to focus on my day today .
I'm lucky I have family and friends , who have been very supportive.
Thank you all.

This article in EV grieve is good recap of my story, as of February 2019. Please continue to post, share, as I need all of your continued support through the end of this year.

https://evgrieve.com/2019/02/jimmy-carbone-on-long-recovery-ahead.html

April 28, 2019
Physical therapy , medicine updates
Right leg, right side recovery is behind the left.

Stopped using Walker end february, walking outside with a cane only.

Pain meds, off since winter!

Antibiotics, down to 1 double dose per day, as a test.

Pray for me, please:) that my recovery continues.

Continuing physical therapy,  exercises, walking, core work every day.
It's spine recovery, but the neurological damage was severe , maybe for life.

Notes from friends:

Primary care?
Thumbs up for EMT's, and physical therapists.........

Hello Jimmy - I have a medical problem that doctors have no answer for, tests have been taken and the journey continues. I may hijack this journey to find the "right" diagnosis by going to the emergency room. 
My response:
" Yeah that works, emergency room. The EMT's on my 911 call were the only sensible people , who instantly figured out I had a serious spine issue, (fyi:)"

From C.
"I think you have an impressive capacity and attitude for resilience.
Glad we’re friends. We were so worried when you became sick."

From Bill M.
" you got this!"

Keep posting your comments:)

It's amazing
The people I've met who have had spine injuries.......paralyzed in car crashes, subway accidents, surfing....everyone has a story.
And football players who have recovered from paralysis:
Dennis Byrd of the Ny jets , 1992.
Ryan shazier, Pittsburgh steelers 2017.
Others with diseases like,
Sudden paralysis syndrome GBS...thanks for the visit, Greg B.!
People tell me their stories

All of them, and me....
It's a big change in our life.
Work?
Can we work again?
What can we do for work?
Will anyone hire us?
Thanks for the love and support.
I need to keep up my physical therapy, ongoing medical treatment through the end of this year 2019 to give my recovery a full chance.
Peace, hugs, high five!
Jimmy
+ Read More
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