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jimmys wellness fund

$48,789 of $65,000 goal

Raised by 623 people in 7 months

About Jimmy Carbone’s urgent health crisis,  from Jimmy’s brother Christopher:
Overview as of July 11, 2018
Jimmy Carbone just made it through 2 major emergency spinal surgeries in late June 2018, after a 9 month battle with a serious staph infection that had originally gone undiagnosed, eventually wreaking havoc on his spinal cord and overall health.  Jimmy is now still facing several months of hospitalization with slow painful rehabilitation.
He cannot stand or walk. 
They do not know about his long-term chances for him being able to walk again,
and at this moment it is a very difficult time for him and his family.
Jimmy continues to need everyone's help.

Here is the updated GoFundMe page for "Jimmy's Wellness Fund",
to help him cover ongoing expenses while he strives to recover.
Any help with donations and in sharing the word will make a difference for him.

——
Background :
As many of you know, since the Fall 2017
Jimmy Carbone has been going through an arduous ordeal with his health:
Amongst other issues, Jimmy suffered through a full-blown knee infection that landed him in the hospital in October, and then over time it grew to be an intense, pervasive pain in all his joints, with fatigue and weakness.
Along the way, he was forced to close his business “Jimmy’s 43” in the East Village.
His other work opportunities also suffered as he did not have the physical stamina to keep going. 

Jimmy put his best efforts into dealing with this:
With his wife Pixie’s help, he began making strong lifestyle changes,
including purposeful and dedicated care with food and overall wellness practices,
and that indeed helped his overall health.
(As part of that, Jimmy lost 40 pounds of weight!)
He dealt with his un-treated diabetes and was able to bring his blood sugar down to manageable levels.  With encouragement and support from friends, he got long-needed appointments with specialists including orthopedic physicians and eye-doctors (his vision has suffered as well).   
The GoFundMe page was originally created for Jimmy in November 2017,
to help get him some help while he visited specialists and sought additional treatment.
That helped him to bear some of the emotional and financial stresses of this ordeal.
Thank you to all who have been of support thus far, it has meant so much to Jimmy.


During that time, there were moments where he was hopeful for improvements.
Yet even with these lifestyle shifts and medical visits,
his fatigue and painful joint issues continued to plague him over time.
He experienced mysterious chills and pains and exhaustion,
while trying just to walk, to work, and in daily life. 
Yet Jimmy pushed on to try to get through it all.

His condition got so bad this June 2018,
after pushing himself to get through a catering job through intense pain,
that same night afterwards, his legs stopped functioning,
and he couldn’t even stand up.
Jimmy was hauled to the Emergency room down 3 flights of stairs by 4 EMT’s. 

There at NYU Langone Hospital,
after myriad tests and an MRI on his spine,
infectious disease specialists there joined his team,
and they found an important part of the puzzle:
that Jimmy had been dealing with a serious Staph Infection. 
The Staph infection had gone into his spine. 
That Staph infection had been causing damage internally in his body and nervous system for months and unfortunately had been going undiagnosed.
It is now suspected to be related to the original knee infection
that occurred back in October 2017. 
Since then, the Staph had gone deep into his system, it was not caught,
and over these 9 months, it had been slowly wreaking havoc on his body from the inside out.

So, the first goal was to stop the infection,
and to help restore the spinal cord that had been compromised.
To begin the process, he went through 2 emergency surgeries
 and now is undergoing ongoing intensive antibiotic treatment to treat the infection.
This was all done in the hopes of regenerating the nerve ­connections there in time,
to improve his chances of his lower spinal cord and body working,
for basic life skills such as standing and walking again someday.

Since the surgeries, Jimmy was moved from the ICU to an acute hospital rehab in New York:
(to the NYU Acute Care ­Rusk Rehabilitation hospital ­
on 2nd Avenue and 17th Street.)

Update July 10, 2018: The Marathon of Rehabilitation ahead:

Here in the Acute Rehab Hospital,
Jimmy is receiving ongoing treatment and evaluation,
to continue to ascertain what “route” this marathon will take,
to see how difficult the terrain will be,
and how long it will take.

While on this path,
a primary focus is to do everything possible heal up from the surgeries,
and also participate in ongoing neuro­muscular re­training:
forms of deep physical and occupational therapy
with the immediate goals to help re­develop neural connections,
muscle strength and whatever functionality is possible.
Depending on how things go,
The long-term goal will be to get Jimmy to be able to stand and walk again someday
and live a more full life again.

The past 2 weeks in post-surgical rehabilitation have been physically challenging every day for Jimmy ­
as he has been doing assisted “sitting up” sessions,
needing to wear a full back brace for a few hours at a time to build up his strength.
Any sense of progress is small and only with tremendous effort.

It’s difficult, to be clear:
Serious life questions are hovering overhead:
For example, with a spinal cord affliction,
Will he actually be able to regain use of his legs and mid/lower body functions?
If so, how long will it take for that to happen?
If not, and if dealing with long­term spinal injury and potential paralysis,
what would that mean for his livelihood, long­term health and life issues?

As mentioned, this has become a long­-distance healing trek for Jimmy,
whatever the route and outcome,
it’s looking that it will take much longer than originally expected…
and every bit of support along the slow miles helps so much.

For local NYC folks,
he is open to visitors when able:
just keep in mind that he will be involved in the therapeutic work quite intensively along with recuperating afterwards,
at this rehab hospital, so the best times for visits
will be in the 5pm suppertime, and early evening til 8pm.

Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
Any help that you can give means so much right now. 
https://www.gofundme.com/jimmywellnessfund 

Thank you
Christopher Carbone on behalf of brother Jimmy Carbone

------------------------------

Follow the "updates" tab  for what's most current.
Jimmy's original out-reach story from November 2017,
before he knew that on top of everything else,
he was also dealing with a serious Staph Infection,
that original is  still here below:

---
I've been fighting diabetes for 7 years, not being public about it, not taking very good care of myself. I've also had a lot of business stress the past few years that has made it worse. My work has suffered and now I have a health crisis.

Early October 2017, i had a high fever for 2 days. the 3rd day, my knee started to swell up, i couldnt sleep nor walk. Next day i was in Beth Israel hospital for 2 days.
i was on crutches for 2 weeks, fatigued for a month. 

back story on work stress.
march 2015, i was directly  adjacent to the east village gas explosion when it happened. 
my business was closed for 3 weeks, i was stressed out of my mind, fought the city to reopen, dealt with 5 months of building renovations.
http://bedfordandbowery.com/2015/04/brewmuda-triangle-back-in-business-after-east-village-explosion-closure/

http://bedfordandbowery.com/2015/03/updates-on-the-east-village-explosion-48-hours-later/

Since then , my health went downhill. while i struggled to re open then survive as a business. my blood sugar levels were too high, i slept little, i drank too much.....

2 years later, the business was forced to close .

this article best tells the story
http://gothamist.com/2017/08/28/rip_jimmys_no_43.php

2 months later, i was in the hospital, unable to walk. waking  every hour to go to the bathroom.

i  wasnt able to work, nor focus on re opening my business or finding a  business partner, now i am in a difficult financial situation, need to pay my bills, rent, support my wife and high school age daughter. but i need to rest, seek further treatment, eat a special diet. the lifestyle change alone to treat my diabetes is taking my time and attention. 

my knee still swells up and it's been hard to find answers - no one can figure out what is happening -  have not had a proper diagnosis yet regarding the knee injury.

i  need the money to cover living expenses while i get better, sort out a job or re open my business with a partner. but i will not get my health back without the funds to take the time to do this and to afford  proper medical treatment.

the funds are needed to cover upcoming months of living expenses, medical treatment, and debts that have been incurred the past months while i have been ill.

my situation is urgent.

i contribute regularly to my community, have supported many arts, school, theater, food start up groups,

now im asking for help, to get healthy .

 cheers, jimmy carbone

+ Read More
Overall note: The MAIN PAGE for Jimmy is updated to better show the whole story now: easier to see and share with people who are just learning about Jimmy's health crisis and situation. It is still a critical time for Jimmy. All help in sharing and support means so much.
https://www.gofundme.com/jimmywellnessfund

Update July 11, 2018 from Jimmy Carbone's brother Christopher:
The Marathon of Rehabilitation ahead:
It will be a hard journey and a long one.
Jimmy is here in the NYU Acute Rehab Hospital and will be not be able to go home for a while:
Jimmy is receiving ongoing treatment and evaluation,
to continue to ascertain what “route” this marathon will take, to see how difficult the terrain will be,
and how long it will take.

While on this path,
a primary focus is to do everything possible heal up from the surgeries, and also participate in ongoing neuro¬muscular re¬training:
forms of deep physical and occupational therapy
with the immediate goals to help re¬develop neural connections,
muscle strength and whatever functionality is possible.
Depending on how things go,
The long-term goal will be to get Jimmy to be able to stand and walk again someday
and live a more full life again.

The past 2 weeks in post-surgical rehabilitation have been physically challenging every day for Jimmy ¬
as he has been doing assisted “sitting up” sessions,
needing to wear a full back brace for a few hours at a time to build up his strength.
Any sense of progress is small and only with tremendous effort.

It’s difficult, to be clear:
Serious life questions are hovering overhead:
For example, with a spinal cord affliction,
Will he actually be able to regain use of his legs and mid/lower body functions?
If so, how long will it take for that to happen?
If not, and if dealing with long¬term spinal injury and potential paralysis,
what would that mean for his livelihood, long¬term health and life issues?

As mentioned, this has become a long¬-distance healing trek for Jimmy,
whatever the route and outcome,
it’s looking that it will take much longer than originally expected…
and every bit of support along the slow miles helps so much.

For local NYC folks,
he is open to visitors when able:
just keep in mind that he will be involved in the therapeutic work quite intensively along with recuperating afterwards,
at this rehab hospital, so the best times for visits
will be in the 5pm suppertime, and early evening til 8pm.

Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
Any help that you can give means so much right now.
Note: The MAIN PAGE is updated to better show the whole story now: easier for people to see the overview, for people who are just learning about Jimmy's health crisis.
https://www.gofundme.com/jimmywellnessfund

Thank you
Christopher Carbone on behalf of brother Jimmy Carbone
+ Read More
Update Sunday July 1, 2018 -
from Jimmy's brother Christopher:
Now Jimmy is approaching the next “hill” of this marathon:
with ongoing monitoring of his status,
and the beginning of what will be a long-term journey,
with a need for long-term support.
Next mile: NYU Acute Care Rehabilitation hospital.

As many of you know, last week,
Jimmy went through 2 emergency surgeries on his spine,
to deal with an deep spinal Staph infection there
which had attacked his spine
and nervous system.
The first goal was to stop the infection,
and to help restore the spine that had been injured,
in the hopes of regenerating the nerve-connections there in time,
to improve his chances of his lower spine and body working,
for life skills such as standing and walking again someday.

Since the surgeries, Jimmy has made some progress:
he was moved from the ICU to regular hospital status,
and now as of this weekend has been moved now
to the NYU Acute Care - Rusk Rehabilitation hospital -
on 2nd Avenue and 17th Street.
Here he will be receiving additional evaluation
to better ascertain what “route” this marathon will take,
how difficult the terrain will be,
and how long it will take.
While on this path,
a primary focus is to rest, heal up from the surgeries,
and also participate in ongoing neuro-muscular re-training:
forms of physical and occupational therapy
with the goals to help re-develop neural connections, muscle strength and functionality.
So the past 2 days have been both physically challenging and positive for Jimmy -
as he has been doing assisted “sitting up” sessions,
needing to wear a full back brace for a few hours at a time,
and it was the first time he’d tried sitting-up (in a wheelchair) and was working at that.

It’s difficult, to be clear:
Serious life questions are floating overhead:
For example,
Will he be able to regain use of his legs and lower body functions?
If so, how long will it take for that to happen?
If not, and if dealing with long-term paralysis,
what would that mean for his livelihood, long-term health and life issues?

As mentioned, this has become a long-distance trek for Jimmy,
whatever the route and outcome,
it’s looking that it will take even longer than originally expected…
and every bit of support along the slow miles helps so much.

For local NYC folks, he is open to visitors when able:
just keep in mind that he will be involved in the therapeutic work quite intensively
along with recuperating afterwards,
at this rehab hospital, so the best times for visits
seem to be now in the late afternoon, suppertime…

Please continue to share this story and help.
Jimmy will need everyone’s support for a while.
https://www.gofundme.com/jimmywellnessfund
Thank you.
+ Read More
Update Tuesday June 26, 2018 - from Jimmy's brother Christopher: Jimmy and Pixie are grateful for all the support. The outpouring of kind words, helpful shares, and donations means so much while going through this very difficult time.

Jimmy has just gone through his 2nd surgery on his spine in 5 days.
On Sunday, they saw that Jimmy was not able to move his legs, and followup tests and scans were done.
The damage from the deep Staph infection had been significant enough that it warranted a followup surgery.
In this followup surgery they added a rod to his spinal column as additional support, in the hopes of protecting the spinal column and regenerating the nerves there in time, to improve the chances of regaining use of his legs.

After 2nd spinal surgery, the doctors said the procedure went well, and he's recovering from that now.
On a positive note: Jimmy was able to raise his left leg a little today. Monitoring right leg now for movement gains.

Please continue to share.
This has become a long-distance marathon for Jimmy,
and every bit of support along the miles helps so much.
+ Read More
Important UPDATE June 24, 2018 - from Jimmy's brother Christopher- at NYU Langone Hospital : Emergency Spinal Surgery due to deep spinal infection. Still recovering, officially in ICU status til he gets stabilized.

Infectious disease specialists here have joined his team, and from the spinal infection they have now learned that the infection is Staph. That Staph infection had been causing damage internally in his body and unfortunately had been going undiagnosed.

Today, the Staph infection has now been identified, and it is now suspected to be related to the original knee infection that occurred back in October 2017.
Since then the Staph went into his system, it was not caught, and over these 9 months, it has been slowly wreaking havoc on his body from the inside out.

The infection then went into Jimmy's spine.

Over the past 9 months, Jimmy began making strong lifestyle changes, purposeful and dedicated care with food and overall wellness practices, and that indeed helped his overall health. (As part of that, Jimmy lost 40 pounds of weight and his blood sugar levels are much better managed ).

But this Staph infection under the surface now explains why his fatigue and joint issues did not go away, even though they were happening without obvious orthopedic causation. That underlying infection also explain the chills and weakness and fatigue and exhaustion while trying to walk, work, and in daily life.

Along with the surgery, now they are aggressively treating the staph infection to make sure they stop it now before it moves anywhere else in his system.

Meanwhile, the infection has eaten away at his spine. Serious issues about the nerves in his spine, his legs, and about his future mobility await. This is a serious moment in his life, with very difficult implications even more serious than originally expected. There is hope that they are stopping this infection now, but seeing the spinal and systemic damage already done: the path of recovery is not clear.

Any help that you can give means so much right now.
+ Read More
Read a Previous Update

$48,789 of $65,000 goal

Raised by 623 people in 7 months
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