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"Rock Out For Jack" Fundraiser

$270 of $20,000 goal

Raised by 7 people in 21 months
The Brown Boys Fundraiser



Dear Friends,

 

I am writing to you on behalf of my 7 year old brother and my Dad. I would love to share our storied journey with you.

 

Jack was born in June of 2009 with many severe disabilities and life-limiting conditions. He is medically fragile and requires 24 hour nursing care. Jack was born with an uncommon syndrome named CHARGE. This syndrome is the leading cause of blind-deafness in children.  Jack is deaf, with some vision impairment. He has a tracheostomy and a feeding tube. And he is mostly confined to a wheelchair (although he took his first unassisted steps last year at school. We never knew if Jack would ever be able to walk). Jack was also recently diagnosed with severe autism; less than the first percentile. We have never heard Jack’s voice. I cannot wait for the day I hear his first words. We’ve never been able to snuggle with Jack at night. He is hooked up to 4 machines periodically throughout the night. Jack’s mom has not been employable since Jack’s birth as she is not only his mom, but his nurse who has been trained by the staff at CHEO to care for Jack and to use life-saving measures if necessary.

 

Jack was admitted to CHEO on November 8th for his 19th surgery. He has unfortunately spent over 2 years at CHEO altogether. CHEO has been like a 2nd home for our family.

 

Exactly 3 months after Jack was born my dad was diagnosed with guarded, high risk Melanoma, with a 6 month prognosis. Jack was in the midst of a 3 month hospital stay when Dad was diagnosed. Since both his mom and dad were trained to care for Jack they split 24 hour rotating shifts at his bedside. That was the toughest, most emotional few months that we have ever endured. My dad tried not to break down as he held Jack, but knowing he would grow up without a father was too much to grasp. The CHEO team saw our emotional struggles, and set us up with a social worker at the hospital. We’ve been met with love and compassion throughout our entire experience with CHEO.

 

My dad remained in hospital for 3 weeks after his first surgery. The good thing was that the 2 hospitals were connected by a tunnel. Jack’s mom spent her days running back and forth between the two hospitals.

 

In December 2015 my dad was hit with a major depression disorder (Doctors expected it to happen much sooner). Walking on eggshells with his health and his son’s fragilities, the recent passing of his father, added pressure at work, and a marital breakdown with Jack’s mom resulted in a significant decline in his mental health. On a positive note, the duration Dad has remained at home helped him develop a bond with Jack that is much stronger than we could ever pray for. He has truly enjoyed being a stay-at-home dad for this exact reason. Unfortunately Dad has had to resign from work as a result of the physical and emotional scars left behind by cancer, which left him broken, beat, and scarred. Unfortunately he will never be in remission, but he made a promise to us that he will continue to fight!

 

To our friends, we are graciously hoping for your support for an upcoming benefit fundraiser for father and son, and we are gratefully accepting donations, or donations in-kind, to help support a silent auction during the event.

Please join us for an evening of live music, dancing, pool, and silent auction

Saturday April 15th, 2017

7pm – 2am

Hosted by

The Brass Monkey

Ottawa’s coolest live music venue!

250 Greenbank Road, Ottawa

                                            www.themonkey.ca

If you have any questions, comments or concerns please feel free to contact me at your convenience. Thank you for reading.

 

Elizabeth Brown and family (Greg, Susan, and Jack)

419 Montserrat Street

Stittsville ON K2S 0L6

613-808-2169

Elizabeth.brown1@hotmail.com
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Take a peek and bid on our Silent Auction items.
Check out our Facebook event:
"Rock Out For Jack Fundraiser"
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Less than 3 months out until our big event on April 15th at The Brass Monkey!
Check out our Facebook event:
Rock Out For Jack Fundraiser
And keep up to date, or even bid on a silent auction item
- With love, Greg & family
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Please visit our Facebook event:
Rock Out For Jack Fundraiser
For regular updates of silent auction items posted.
With love,
The Brown Family
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$270 of $20,000 goal

Raised by 7 people in 21 months
Created January 3, 2017
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$20
Renee Bernstein
18 months ago

You have been through a lot and you have a lot of courage. Continue to be strong and enjoy every day with Jack.

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