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Help Us To Help Jack

£5,465 of £25,000 goal

Raised by 183 people in 9 months
Our little grandson Jack has been diagnosed with a very rare condition called Pelizaeus-Merzbacher Disease (PMD for short), which is a genetical disorder.

This disease has been passed down through the females in our family and it predominantly affects little boys but can affect little girls mildly.

There is no cure for this disease - this is not to say in the future there may well be.  We are positive and are waiting for Jack to start trials with Professor Rowitch next year (2019).   This will more than likely involve having to go to America for this treatment.

This is where we need your help.

We have now decided that we need to start fundraising to send Jack to America for stem cell treatment, modify his home, so it will be easily accessible for him, and to purchase any equipment he may need, and to fund opportunities and experiences which will allow Jack to enjoy his life to the full.

We will try to raise as much as we can so we have the funds ready to send Jack to America.  We will be doing lots of sponsored runs, and events.

We appreciate all the help and support that we receive.
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It’s been nearly a year since we got the diagnosis that Jack has got PMD and I’m thrilled to tell you that we’ve hit our first £25,000 target!!! From the bottom of our hearts myself and the rest of Jack’s family would like to say a huge huge thank you to everyone who has donated, supported and been there for Jack over the past year. Jack is a very lucky little boy to have such wonderful family and friends who are a big part of his life. He continues to be a very happy little boy who amazes us everyday with his determination and hard work to succeed in everything he attempts. He uses a Kaye walker and has learnt to turn it all the way round to go where he needs to. He can walk long distances alongside his friends which he is thrilled about. We are so proud at how far he has come in the past year. Onwards and upwards to the next £25,000 target!!!
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Thank you all so so much we have broken through the £2000 mark! We really appreciate all your support and we can’t put into words what this means to us all .
See picture of our little Jack today in the garden.
Jack in the garden today!
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Hi everyone Jack was 2 this weekend! See photos of him in his first Ipswich Town kit! He had a lovely birthday and really enjoyed himself.
Thank you all for your continued support and good wishes and for all the donations. We will be transferring the funds we have raised so far , in the next few days to Jacks fundraising account. Please if you can, keep donating and sharing as it does mean so much to us all.
Jack in his kit!
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Hi everyone thank you again for donating . We all appreciate your support so much . See our adorable Jack enjoying the sunshine with his daddy today .
What a beautiful boy!
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£5,465 of £25,000 goal

Raised by 183 people in 9 months
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PM
£10
Paul Martin
23 hours ago
£10
Dennis Harris
1 day ago
YS
£10
Yvonne Scott
1 day ago
JP
£20
Janet Pemberton
1 day ago
PM
£45
Paul Morris
1 day ago
£20
Dennis Harris
2 days ago
NW
£5
Nick Watchman
2 days ago
£10
Kathleen Blott
3 days ago
£10
Dennis Harris
3 days ago
£10
Dennis Harris
3 days ago
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