Chloe's journey (MDS)
Donation protected
Hello everyone.
We have set this page up to raise awareness about Myelodysplastic Syndrome and hopefully help our friends little girl Chloe with a special memory when she has recovered from her treatment.
The money raised, however big or small will go towards making a memory for Chloe and her family. We will also donate a percentage to the charity "Clic Sergeant" who help family's with children fighting cancer.
Here is the story so far.
Chloe is an amazing, happy, 9 year old girl without a worry in the world. She loves unicorns and scooting around the place in her Heelies! She loves playing with her 3 other sisters and helping her mum and dad out. Her favourite colour is pink and her favourite band is Little Mix
Early November, we noticed that Chloe wasn't able to keep up with certain physical activities that she was taking part in. Also we noticed that she was very pale and had small strange coloured bruises all over her body. Within a few days of noticing this we got Chloe to the doctors where they checked her blood.
Within a few hours, we received a call to tell us that her blood results have come back and that they were concerned and they wanted to do a re-test. Not long after the second blood test came back, we were told that they suspected chloe to have Leukemia and she would need to be taken to Raigmore hospital for more tests. After the ambulance ride, and a few more tests they were still unsure and we needed to be transfered to Aberdeen Children's hospital.
When we got there, they took fresh blood samples and told us they needed a bone and a bone marrow sample. This was all done while chloe was asleep and only took 1 hour or so. While the tests were being carried out, we were told that they didn't think it was Leukemia and it could be 1 of 2 things...
Myelodysplastic syndrome or Aplastic Anemia. After this was done we were told to go home for a week and come back to receive the diagnosis.
When we got back they told us that Chloe has a super rare condition called Myelodysplastic Syndrome or MDS for short. This condition is a type of blood cancer that is rare in children and effects only 4 in every 1,000,000 children.
Because her bone marrow isn't producing enough healthy white cells, red cells or platelets, she is in need of an intense course of chemotherapy and a bone marrow transplant.
In the mean time Chloe needs regular Platelet transfusions and blood transfusions while we wait for a suitable doner. We understand that the treatment won't be nice, but we are more than hopeful that everything will go smoothly especially with her family around her.
If you can donate anything, that would be amazing! The money raised, as said above will help us and other families going through the same thing.
Thank you for your support. Info on Myelodysplastic Syndrome below.
Background
Myelodysplastic syndrome (MDS) in childhood encompasses a diverse group of bone marrow disorders that share a common clonal defect of stem cells and that result in ineffective hematopoiesis with dysplastic changes in the marrow. These disorders are characterized by one or more cytopenias despite a relatively hypercellular bone marrow. MDS disorders have been referred to as “preleukemias” because of their tendency to transform into acute myeloid leukemia(AML).
MDS is rare in childhood and may have a rapidly progressive course with an extremely poor prognosis without hematopoietic stem cell transplantation (HSCT). The disease can arise in a previously healthy child; in this case, it is referred to as de novo or primary MDS. MDS may develop in a child with a known predisposition (eg, previous cytotoxic chemotherapy); this is referred to as secondary MDS (see Etiology). The disease is most common in adults, especially elderly people, and the course varies, ranging from an acute, rapidly fatal illness to a chronic, indolent illness
We have set this page up to raise awareness about Myelodysplastic Syndrome and hopefully help our friends little girl Chloe with a special memory when she has recovered from her treatment.
The money raised, however big or small will go towards making a memory for Chloe and her family. We will also donate a percentage to the charity "Clic Sergeant" who help family's with children fighting cancer.
Here is the story so far.
Chloe is an amazing, happy, 9 year old girl without a worry in the world. She loves unicorns and scooting around the place in her Heelies! She loves playing with her 3 other sisters and helping her mum and dad out. Her favourite colour is pink and her favourite band is Little Mix
Early November, we noticed that Chloe wasn't able to keep up with certain physical activities that she was taking part in. Also we noticed that she was very pale and had small strange coloured bruises all over her body. Within a few days of noticing this we got Chloe to the doctors where they checked her blood.
Within a few hours, we received a call to tell us that her blood results have come back and that they were concerned and they wanted to do a re-test. Not long after the second blood test came back, we were told that they suspected chloe to have Leukemia and she would need to be taken to Raigmore hospital for more tests. After the ambulance ride, and a few more tests they were still unsure and we needed to be transfered to Aberdeen Children's hospital.
When we got there, they took fresh blood samples and told us they needed a bone and a bone marrow sample. This was all done while chloe was asleep and only took 1 hour or so. While the tests were being carried out, we were told that they didn't think it was Leukemia and it could be 1 of 2 things...
Myelodysplastic syndrome or Aplastic Anemia. After this was done we were told to go home for a week and come back to receive the diagnosis.
When we got back they told us that Chloe has a super rare condition called Myelodysplastic Syndrome or MDS for short. This condition is a type of blood cancer that is rare in children and effects only 4 in every 1,000,000 children.
Because her bone marrow isn't producing enough healthy white cells, red cells or platelets, she is in need of an intense course of chemotherapy and a bone marrow transplant.
In the mean time Chloe needs regular Platelet transfusions and blood transfusions while we wait for a suitable doner. We understand that the treatment won't be nice, but we are more than hopeful that everything will go smoothly especially with her family around her.
If you can donate anything, that would be amazing! The money raised, as said above will help us and other families going through the same thing.
Thank you for your support. Info on Myelodysplastic Syndrome below.
Background
Myelodysplastic syndrome (MDS) in childhood encompasses a diverse group of bone marrow disorders that share a common clonal defect of stem cells and that result in ineffective hematopoiesis with dysplastic changes in the marrow. These disorders are characterized by one or more cytopenias despite a relatively hypercellular bone marrow. MDS disorders have been referred to as “preleukemias” because of their tendency to transform into acute myeloid leukemia(AML).
MDS is rare in childhood and may have a rapidly progressive course with an extremely poor prognosis without hematopoietic stem cell transplantation (HSCT). The disease can arise in a previously healthy child; in this case, it is referred to as de novo or primary MDS. MDS may develop in a child with a known predisposition (eg, previous cytotoxic chemotherapy); this is referred to as secondary MDS (see Etiology). The disease is most common in adults, especially elderly people, and the course varies, ranging from an acute, rapidly fatal illness to a chronic, indolent illness
Organizer and beneficiary
Nikki Fish
Organizer
Lea Purvis
Beneficiary
