Making Dreams Come True
When: 10 Days from Nov 6-16th.
Goal: Raise $300,000
How: 4,000 supporters donating $77 each (although every bit helps)
Saving Children's Lives is one of the most noble efforts in the world. If you've been one of our supporters who has given or shared over the years, you've directly been part of this effort and we THANK YOU again immensly. Our daughter Eliza and other children now have a chance at LIFE, thanks to you! There are MANY MORE kids that need this chance, before its too late, as they are taken away from their parents in front of their eyes. Sanfilippo Syndrome, is like a rapid childhood Alzheimer's. As a parent, you just begin to start getting to know your beautiful child's personality around age 3-4, and then it is all taken away. The disease is terminal with no current cure or treatment, but HOPE exists in these clinical trial paths, which lack funding. That is the HOPE you gave my daughter Eliza as she was treated in a clinical trial. We must save these children, and it must be NOW for chidren like Sawyer, Rylan, Keira, Spencer, Carter & Abigail...just to name a few.
If you've never heard of Sanfilipo Syndrome, please watch the 3 minute video here:
Eliza’s “Cinderella themed” birthday is going to be incredible this year! We are fortunate to be able to place that 7th candle on her cake with tears of joy and hope, instead of only dread and fear for what her future would hold. For Sanfilippo parents, the truth is that without a treatment, birthdays are terribly difficult reminders of what is to come. Watching your child go backward and lose more and more skills each year is unbearable. It is like taking candles off the cake each year as your child slips away. There are so many little Sanfilippo princes and princesses that are hoping for a chance at LIFE. There is no better gift for Eliza’s birthday, than to help give her friends a chance at LIFE, by being one to donate $77…and for these children, it must be NOW before it is too late
This year is a celebration of LIFE and a CALL TO ACTION for Sanfilippo children everywhere.
Our goal is to raise $300,000 in 10 DAYS, from November 6-16th. How? We need 4,000 supporters donating $77 by Eliza's 7th Birthday! We need you to #Give77 and help this to go #viral by sharing. And please don't just share, but if you would validate this cause with some comments about the importance and how you've helped already.
The funding goes directly to Cure Sanfilippo Foundation toward urgent research and treatment options for children (and is tax-deductible). This degenerative disease Sanfilippo Syndrome, like a 'Childhood Alzheimer's', CAN be stopped in children.
We must save them and we can't do it without EACH of you. BE ONE of our 4,000 donors and help Eliza's freinds have a chance at LIFE. These precious Sanfilippo princes and princesses need your help. #Give77 today!
Our deepest THANKS!
The O'Neill Family and Cure Sanfilippo Foundation
PS: By helping here, you are continuing to save children's lives. Every child pictured (and many more) are just hoping for a chance at life.
Cure Sanfilippo Foundation is a 501c3 non-profit (Tax ID: 46-4322131). All donations are tax deductible. Visit www.CureSFF.org for more information on the Foundation.
Thusfar, supporters, freinds and families like you have allowed Cure Sanfilippo Foundation to drive Sanfilippo research forward at an unprecedented pace. You've helped fund 8 research grants, one treatment center, and one project which is now in clinical trial and treating children. We race forward urgently as we continue to hear the heart-wrenching stories of pain, suffering, and loss from Sanfilippo. We have much more work to do.
Thank you for another great Birthday campaign to help the urgent efforts to Cure Sanfilippo for children! Your support means so much to us and other Sanfilippo families. Thank you for helping again.
Life as a Sanfilippo sibling is not easy, but these kids are strong. They grow up so kind, understanding and caring. What these siblings wouldn't give to be able to grow up with their brothers and sisters <3. We can help make that happen. If you are compelled again to help more families have this chance, please visit www.Give77.com. We can't express how much every bit helps. Our thanks.
Thank you for your incredible support. Sharing today is how we can reach many more. Please share our birthday image below on social media. Consider making it your Facebook profile picture (just for today through midnight) These things do help reach more people.
THANK YOU in advance.
Follow the latest, support and share www.Give77.com #Give77
If you'd help us spread the word with the WORLD today! Miracles happen, thanks to people like you!