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Hi ,
I am Sam, just one of the teachers that works with Adina along with Kalli, Lucy and Petra at the dance school and we desperately want to keep her performing ! The brace and the necessary appointments to have it made will total 4k and so we are asking for your help to fundraise towards this .
A few weeks ago Adina was diagnosed with scoliosis, a curvature of the spine.
Unfortunately Adina’s double curvature, the cob angle on her X-rays is already at 29 degrees. We need to act quickly as this will escalate and worsen extremely quickly.
We were told bracing would be required but unfortunately it is extremely likely that due to the nature of idiopathic scoliosis it will be at the point of surgery when she gets to see a consultant. This surgery is invasive and has a very long recovery. She would need to learn to walk and dance again. The possibility of surgery will restrict her movement, flexibility, and jeopardise her love for dance therefore we want to try everything we possibly can to avoid this.
This has come obviously as a massive shock and is extremely upsetting and left her family researching alternatives to avoid Adina’s condition progressing to the point of surgery.
We are so lucky with advice and lots of researching to have found a specialist scoliosis clinic in London.
Adina had had a phone call assessment with the specialist and she is very hopeful of correction with a specially made 3d brace and specialist scoliosis physiotherapy.
Adina will hopefully be off to London in the next few weeks to have a consultation, physio and brace fitting. This is an independent clinic and all funds raised will go towards, consultation, her specially made 3d brace, physiotherapy, scans and X-rays and ongoing clinical review.
The specialist Over-corrective brace actively reduces the curvature by off-loading the spinal bones 3 dimensionally to change their
shape or stop progression of the curves whilst growth completes. Bracing can also
help reverse the curvature and correct it and help with pain management, reduce the need for surgery later.
Most important thing for Adina was that she would be able to continue to dance, as this is her happy place, with this specialist treatment she will be able to continue her dance as normal.
Review appointments are every 3-6 months
She will also need to attend regular physiotherapy sessions each month in London alongside her brace reviews they will assess growth and her brace will need to be replaced at every 5cm of growth. Therefore we will keep pushing forward with fundraising as this is an ongoing process until she stops growing and growth plates are mature.
This is a very long road ahead for Adina and her family, but we know she has the best friends and dance family to keep her spirits high throughout this long difficult process.
Organizer and beneficiary
Helen Fuller
Beneficiary


