
Please help Noah an Us during these hard times!
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Hello, I’m Cassie.. i’ve made one of these for a different reason before. This time My son Noah who’s 5 was diagnosed back in November of 2022 with Bcell leukemia. We spent 2 weeks in the hospital a was sent home receiving outpatient chemo a medication at home. He was considered in maintenance treatment until March of 2024. He presented with back pain a leg pain. We underwent more treatment impatient until the end of April. May 9th-11th noah was set up on a clinical trial til June 4th. In that time he developed leukemia in his brain and sinus cavity a throughout this bone marrow.. So we did more chemo and this time radiation to his eye to shrink it. We then qualified for another clinical trial where we had to go the philadelphia for 3 days for a Tcell collection. A during that time Noah got so much worse. He was in so much pain he couldn’t walk, or eat or barely could sleep.. I immediately changed our flights to come home a day early because nope he’s not suffering nor being inpatient somewhere other then home… We came back an was Inpatient from mid june til labor day when we went back to Philadelphia for the Tcell infusion an was gone from September 1st to October 9th just in time for his birthday… When we went for his follow up he again was not cancer free an didn’t qualify for the Bone Marrow transplant. We then were impatient again to try another Tcell collection. Waited 3-4 weeks an the was re admitted an impatient during Thanksgiving! We pushed so hard to get discharged for Christmas and New Years and made it happen!! He was eligible for a transplant an we got readmitted January 17 2025.. He received his transplant an everything was going great. He responded well and like they wanted him too. We have been inpatient ever since. We got a spinal tap and Bone marrow biopsy to see where he stood after that. The first 3 test came back negative back for leukemia but the last one had a small trace of it.. In the meantime his cheek swelled up an begun to hurt him. So we scheduled an MRI. We got the results an it wasn’t good news. His leukemia was back an more aggressive an it’s beginning to eat away at his jaw an cheek bone. The amount of testing an transplants an trials Noah has gone thru has be a lot in him an us…We were informed mid may that he is now not eligible for anything as it would do more harm then good an he has most just weeks left to be here with us. We have since just made him as comfortable as we can an keep going up an adding on pain medication to keep him comfortable.. During this time we have spent pretty much almost all of this current go fund me on things he’s wanted an all the snacks an take out he’s wanted. Any toys he has seen an mentioned i’ve got. Not to mention we have been out of work since April so bills have needed paid as well. We still aren’t working an i’m not starting to worry about out finances again an just making sure we are okay during this. We need a cushion for when he does pass an we need more time off to grieve. This is the hardest thing we have ever been thru an i can’t thank you all enough for the support you continue to give us. Prayers an always welcomed!! JUNE 15,2025 we will be having a prayer vigil outside Pittsburgh children’s hospital at 1pm!! Please join us!! If love was enough to save him he would be here forever
Organizer

Cassandra DiPippa
Organizer
Pittsburgh, PA