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Support Jessica through Surgery
0% complete
$3,202 raised of $5.7K CAD
65 donations
I don’t know how to start this. To be honest it feels scary to put this all out there and ask for help but I’m struggling so I'm pushing through that fear & I appreciate everyone taking the time to read, share and support <3
The TLDR Version:
I’ve had my period since JANUARY and its been so abnormally brutally heavy that my blood loss nearly killed me ( my hemoglobin reached 56 and bloodlabs called me at 10pm the same day I had blood drawn to tell me to go to ER immediately. Vital organs start to malfunction at 70-80 and I was feeling it) and I ended up needing 3 blood transfusions, a large Iron Infusion, alot of IV TXA, a bunch of tests/ultrasounds/Pelvics/Biopsy and have been put into Chemical Menopause and on Visanne and TXA tablets to control some of the bleeding (that is lighter but still ongoing). My Endometrial Biopsy showed no cancer but we would have to keep an eye on things due to the abnormally thickened endometrial lining.
Latest thing is that we have to get my hemoglobin from critical to 120-130 so surgery can happen and I can have a Total Laparoscopic Hysterectomy in Feb & then Uterus will be sent off for testing to see WTF is going on! I have been unable to leave my house much due to soaking through Diva cup + Pad combo anywhere from every 10mins to every hour because of this I haven't been able to take on fall photoshoots and my editing jobs fell through leaving me without an income while my husband takes off more time to help me. Your sincerely appreciated donations will help with the cost of meds ($1200+), Loss of Income/living expenses, Surgery prep/recovery items, resting during recovery time (3-4weeks) and any other needed support that comes up as we navigate this.
Anything is apricated, YOU are apricated <3
The long detailed Version ( Shares on my posts on FB and IG throughout allllll this) :
My name is Jessica & I have had my period since JANUARY 2023. Heavy, debilitating periods aren’t new to me. It has been that way as long as I can remember but this constant abnormally heavy bleeding has been going on for almost 11 months and the clotting went from large clots to massive often golf ball to small softball sizes and frequent. I decided I’ll share the social media post I’ve shared detailing all of this since Aug for those that want alllll the info.
Aug 2023- I got in to see a new Dr who was concerned about heart issues, chest pain, a heart rate that averaged 120-180 from merely standing to walking a few feet, struggling to breathe, dizziness and this constant bleeding with clotting the size for gold balls to small baseballs. He order EKG and Bloodwork ASAP.
Aug 18th he called me 23hrs after blood work to tell me that My Hemoglobin is critically low (at 61 ) and as was my ferritin which was 3. When a hemoglobin is 80 or lower your vital organs can begin to malfunction.
He sent in an urgent request to figure out why and get me iron infusions/ blood transfusions to help boost those levels but my continuous intense blood loss was the main culprit so we need to stop the bleeding. But because I have Chronic Migraine with Aura I can't take a lot of the options (Birth control ) available because they can cause stroke in patients with Aura. So an emergency appointment with GYN to get me into Ultrasound asap to figure out root cause of the severe bleeding and clotting and where to go from there.
Aug 21st I Heard from the Internal Medicine Specialist at the Hospital that my new Dr sent Urgent request into, and she wants me in at the hospital a couple days later to figure it all out, at this point nothing had changed but my lips and skin were slightly blue.
Aug 23rd we went to the hospital for my appointment with internal medicine specialists. They confirmed pills won't help me at this point (and that GYN has to figure out what's causing such rapid constant blood loss because they won't be able to keep up BUT they had to ask the hospital to approve and cover Infusions ,which she said the hospital did end up approving (they didn't i had to pay for that when it eventualllllly happened and it was almost $600) but I have to wait to hear from the department that does infusions for treatment)
We leave a little defeated as they say it could take a couple weeks to a month despite it being urgent/critical.
***at this point we are frustrated and struggling because I'm not hearing from anyone about my infusions***
September 26th
My husband and I walked downtown to pharmacy. Its a quick walk but takes me much longer now because my HR is always 150-180 when I move around and I feel like I am going to faint. I went to the bathroom right before we left and 10mins later I bled through diva cup and passed a clot the size of 2 golf balls and it pushed diva cup partially out. Then 10mins later started bleeding through cup again and felt diva cup start to push out while I bled through it down thighs to right above my knees. The blood so thoroughly saturated my pants it was frothing. Passed another massssive clot And bled as if I was peeing. Cleaned up and 5mins later passed a golf ball sized clot.
I'll spare you all the photos I've had to take in hopes of being taken seriously but they are incredibly telling that something isn't f**king right. This is why I don't leave the house it happens every time.
I've been bleeding for so many months, brutally. Friday is the day I go for more bloodwork to see how the infusion helped with my critically low red and white blood cells, ferritin and hemoglobin only the infusions haven't happened because I haven't heard from anyone at this point yet. It's been a months since specialist told me i needed infusions and despite me calling them and asking why it hasn't happened yet because they told me it was critical and I feel like I am dying they all say they will look into it and call me back but no-one ever calls me back.
Everything that was Found on Transvaginal Ultrasound came back abnormal. They found:
- Abnormally thickened endometrium (18.5mm)
- Uterine Fibroids
- bulky Cysts
- PCOS
-Enlarged Uterus
Dr told me " all of this can cause abnormally heavy bleeding" and to tell the OBGYN I see in October.
At this point I'm not living my life, I'm merely existing begging for help to be ignored. I am weak and this just keeps taking from me.
Sept 29th + 30th
Had bloodwork in the morning and Lifelabs called me at 10pm on the 29th to tell me to go to ER because my hemoglobin was at 56 and I was at risk of my heart giving out. Brain and vital organs start to malfunction at 70- 80. (Meaning a month ago when it was 61 I should have been getting this treatment right away not all this waiting)
ER did their own bloodwork and was given 2 blood transfusions, IV TXA to control my bleeding and
a postpartum diaper for this unending heavy AF period
Oct 1- GYNE decided to admit me to the hospital and after 2 nights at the hospital, I was discharged and am finally home.
As you all know, I've been battling constant severe/abnormal menorrhagia since January with severe clotting. My excessive blood loss led me to severe iron deficiency anemia , a ferritin level of 3, and a hemoglobin level of 61. 70-80 being at risk for malfunctioning brain and vital organs. Internal Medicine said I needed intravenous iron and then bloodwork. IV clinic never called to get me in for treatment, and bloods were done Friday morning. Friday after 10 p.m., the Blood lab called me worried and stressed that I needed to get to the ER because my hemoglobin dropped 56. Everyone at the hospital was amazing. Triage was like, "You're a mess, Jess," lol. They brought me back and got me a Blood Transfusions of 2 units/bags of Blood and started me on IV TXA. GYN came down to do pelvic with speculum, order a couple of ultrasounds, and then admitted me to gynecology for the night. After the US, I got my own room where I stayed until this morning. They did an Endometrial Biopsy because of the thickened endometrial lining, enlarged uterus, and abnormal bleeding to check for abnormal cells/malignancy. Those results will take up to 2 weeks. Then, I had Lupron shot and IV TXA 4 more times through the day/night to treat excessive blood loss. It has brought my bleeding down significantly to last until the Lupron shot they gave me to help with the bleeding kicks in and hopefully helps for up to 3 months while we figure out why its happening.
During the pelvic they couldn't see anything and my ultrasounds showed the same as the others, enlarged uterus, fibroid, cysts, polyps which all can cause some bleeding but aren't a definitive answer to this excessive prolonged bleeding/hemorrhaging I am having. We will know more once we get the results of the endometrial biopsy back.
Had bloodwork this morning, and my hemoglobin is 72, up from 56. It's not the best, but it's better. My ferritin is still low at 3 because I am still waiting on IV Iron from Internal Medicine to happen. Hospital confirm she would call me on Oct 3rd about all that and go from there.
They gave me a few prescriptions that Shawn and kids have gone to get with my inlaws.
I also have GYNE appointment on the 19th and a follow up at the hospital in 6 weeks and go from there. If bleeding increases from where it's at RN then I have to go back in so plz send vibes that it doesn't plz.
Oct 11th
Iron Infusion finally happening! 1500mg of monoferric IV Iron for ferritin level of 3 and severe anemia due to constant severe and on going blood loss! Here's hoping it helps
0ct 16th
Ended up back at the hospital because bleeding got insane again and was given Another Blood Transfusion and more TXA in hopes to stop the bleeding that got even heavier over the last 24+ hrs (bleeding through diva Cup + Heavy flow pad combo every hour for over 24hrs straight) Which will again be temporary until we find the cause.
Oct 18th - GYNE at the hospital called and want me to after the weekend.
oct 25th
I was called last week to come into GYNE at the hospital for Biopsy results and next steps today. Biopsy came back benign for cancer!!! I would need to come back to keep eye on the abnormally thickened endometrial lining because it could eventually develop to cancer. At this point, I asked when a hysterectomy can happen because this 10+months of non-stop bleeding is ruining my life.
She was amazing and said she would do it right now if she could BUT because of how dangerously low my hemoglobin was (56) and is now (76) they need it higher so I don't die during surgery . It needs to be 120-130 for surgery, so she came up with a plan right then and there to prescribe me another Lupron shot in Dec, more meds and TXA tablets to attempt to get the bleeding under some control so my body can work on raising my hemoglobin and THEN if all does well with blood work in December I will be having TOTAL LAPAROSCOPIC HYSTERECTOMY in February!!
Then, the uterus will be sent off for testing to find out WTFFFFF.
NOV 8th- Since my last update my bleeding is less heavy but still bleeding, just more manageable. I am very dizzy all the time so I sit alot. I have blood work on Friday to see where we are at on reaching that 120-130 for surgery!!
I haven't been able to work outside the home and my editing jobs fell through leaving me without an income while my husband takes off more time to help me. Your sincerely appreciated donations will help with the cost of meds ($1200+), Loss of Income/living expenses, Surgery prep/recovery items, resting during recovery time (3-4weeks) and any other needed support that comes up as we navigate this.
Anything is appreciated, YOU are appreciated <3
