Hi, my name is Maisie and I’ve been diagnosed with a very rare genetic syndrome called GALLOWAY-MOWAT SYNDROME 6. It means that I have developmental abnormalities, physical abnormalities and early

onset kidney disease. I have very little vision, however I am fascinated by soft sensory lights which I need in able to neurologically develop. So I am asking for you to help my mummy and daddy to help raise funds to help enable Me

to have these very essential aids to make me smile as these are the only things that seem to make me

smile and aware of my surroundings present. This money will also help me make beautiful memories with my family.  Unfortunately I do not have a long life expectancy, but we are making every moment count and treasuring every day.

thank you so much for considering helping me and looking at my page.

lots of love, Maisie x