Most children with SMA type 1 are too severe a neuromuscular disease to reach the age of two.
But there's hope.
In order to provide her with a future, she needs to receive gene therapy called Zolgensma, which is approved for babies under 2 years of age (and 13 kilos) and costs $2.1 million. The amount of donations that need to be collected, along with other costs such as transportation, accommodation and consultation, amounts to $2.4 million.
Esma is now 2 years old and unfortunately our time is very limited.
Any donation you make more or less is very valuable to Esma.
- MEHMET EMİN DADA
- Miri Karadag
- Gulsum Kucukgoncu
- Karen Kocak
- Ceylan Hunte
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