Southampton, Kent & London Marathons 2024

Hi, my name is Tom. I will be running the Southampton marathon on the 7th April, Kent marathon 14th April and the London marathon on the 21st April 2024.

For those who don’t know my amazing sister Elizabeth, suffers with the rare neurological condition ‘Angelmans Syndrome.’

Angelman syndrome is a complex genetic disorder that primarily affects the nervous system. Characteristic features of this condition include delayed development, intellectual disability, severe speech impairment, and problems with movement and balance, and it’s also very common to suffer from seizures.

Anyone who knows someone who suffers from AS knows how hard it can be on families and how it requires 100% care at all times.

There are many amazing charities that help AS in the uk but the one I am choosing to raise money for is, ‘AngelmanUk.’

AngelmanUK are a volunteer-led registered charity based in the UK. Who currently have no paid staff and are run by a dedicated team of trustees who are all parents or siblings of someone with Angelman syndrome. They help support people with AS and their families as well as carers of people with Angelman Syndrome. They also provide support to professionals working with a person with AS, who may have met very few or no other individuals with Angelman Syndrome in their professional career.

They aim to educate and raise awareness of this rare neurological condition and the issues that surround it. As with many such conditions, Angelman Syndrome is not just about a simple diagnosis, but requires parents and carers to adapt as situations change and the individual grows older.

They assist many organisations and individuals in carrying out research into Angelman Syndrome and its many related areas. Much of this research has already provided great benefit to families and carers around the world.

They are one of the founder members of the international Angelman Syndrome Alliance – a cross border research initiative that is allowing smaller groups to pool resources for the benefit of all.

I really appreciate just the time you’ve taken to read this page already, and it would be amazing if you could contribute anything at all to my goal.

If you can’t contribute at this time please could you pass it on to anyone at work, friend groups or family members.

Once again thankyou for taking the time to read this.