***PLEASE NOTE: This page has been closed as a new, updated page will be started with the next steps in Wesson's journey. Please follow along on the new page: Wesson's journey to Ohio ***
In early December during an anatomy scan, doctors detected what they believed to be a mass in Wesson’s pelvis. This was the first of many times that Kyle and Deja were forced to be patient and left with countless questions without many answers. Fast forward through exams and MRI and more waiting without answers. Words like heart failure, teratoma, neuroblastoma were all thrown around but no definitive diagnosis. Nothing could or would be confirmed until he was born. How much can one mama’s heart handle? Deja managed to handle this situation with such grace as we all know she internalized so many emotions. They scheduled her induction so that a team of pediatric surgeons would be present to potentially operate right away. On February 15th, (after having her “scheduled” induction pushed back) Deja headed into the hospital with hopes to soon have some answers to all the unknowns. Deja had a lot of pain during delivery due to the epidural not working. She was told she would only have minutes with Wesson but was given an hour. Her other children were able to see him and pray over him. During surgery, they did not find the mass that they were anticipating. Instead, they found that at some point his intestines had twisted causing the tissue of his intestines to die on each side of the "knot". They had to remove that portion of his intestines. There was too much damage to be able to reattach them immediately and so each side was brought up on either side of his tummy. They created a stoma on one side that will eventually drain into a colostomy bag. His intestines needed to be trained to work which would take at least 6 weeks. At that point they would reattach the intestines. Shortly after progressing to double feeds Wesson had a small set back and was back to no breastmilk and being fed through an IV. During all this time in the hospital, Kyle and Deja took turns in the NICU with him and being home with their other two children. At just 7 weeks old, Wesson underwent his second surgery to reattach his intestines. On April 9th he was extubated and back in Deja’s arms. Things were looking up. Shorty after, they were told that Wesson would be heading to radiology for another test for something completely different which could mean another surgery and more time in NICU. Days later they received the news that they would in fact be staying in the hospital longer. He was having unexplainable complications that they believed were either caused by Hirschprungs Disease or issues at the surgery site. Fingers were crossed for the latter of the two. Again, they would have to wait.
Then they received terrible, life altering news. What Wesson has is extremely rare. Only 20 documented cases ever. He is number 21 and it is life threatening.
I don’t know that there is much worse news that parents can receive. No one can begin to imagine the helplessness they must be feeling. While still having to hold it together for their two young children. Deja would never be one to ask for help so I am asking for her.
We are asking for help with meals. Because the family is split between both home and the Fisher House and the Fisher House supplies meals from time to time, we think that gift cards would be the better choice rather than cooked meals. We can provide a mailing address if you’d like to mail gift cards. Otherwise, please consider donating on here. Money will go toward meals and anything else that the family might need during this terrible time. Thank you in advance and we will continue to update his progress. Please refrain from bombarding Deja with too many texts. She is understandably overwhelmed and needs space to process everything.
- Jeri Lundy
- Roger Bock
- Darlene Messick
- Nayip ramos
- Pam and Alan Gipson