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Warrior Wesson

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Hello Friends & Prayer Warriors! As many of you know The Eaves family has been facing a lot of challenges over the last month, making sure to help support their sweet baby boy, Wesson, in the NICU fighting EB, all while making sure to be loving and supportive parents to their sweet daughter, Rylee.


The means behind this gofundme is to help support The Eaves family in the upcoming months. With the extensive stay in the NICU, many trips to and from the hospital which call for much needed gas and caffeine, eating out, bouncing between hotel and home, the cost can add up. Along with the special needs clothing that Wesson will need and also the entire family will need to change around their living to give this boy the best life for him and Rylee. We wanted to help to lessen their load and allow the Eaves family to focus more on their growing and changing family, instead of worrying about the finances.


Here is a little back story as to what is going on… (written by Sarah Hanson)


Wesson was born on July 15h and on July 16, 2021, the night before he was supposed to come home, Wesson was abruptly admitted to the NICU where testing was immediately started. He started developing skin lesions/blisters all over his body, which were initially thought to be a viral infection.


Several days later, after much advocating from his previous NICU doctor, Wes was transferred to Texas Women’s NICU in hopes of obtaining a definitive diagnosis, as he continued to develop new skin lesions despite all of his initial tests being normal.


He has undergone extensive lab work, an eye exam, a PICC line placement, a spinal tap, and skin cultures. They have met with multiple providers, including an infectious disease doctor, and a dermatologist. Little Wesson has undergone dressing changes daily to protect his skin, and has handled all of them like a champ! He truly is a warrior!


After many prayers for Wes to have a diagnosis, God again was faithful and answered those prayers. Wesson has a rare skin disease caused by a genetic mutation, called EB (Epidermolysis Bullosa), which is characterized by marked fragility of the skin. Any trauma, no matter how minimal it may seem, is likely to cause the skin of an EB child to tear or blister. Currently, there is no cure for EB, and treatment options for EB are being studied.


Since there is no cure for EB, treatment aims to relieve symptoms and prevent complications from developing, such as infection. Wesson was to be discharged to come home on August 6, but he developed a gram-negative blood infection, sending his little body into shock, which required him to be resuscitated and placed on oxygen. Since then, he has undergone more testing, placed on different meds, and has been receiving his feedings through total parenteral nutrition.

Yesterday, August 10, Wes’ feeding tube was removed and he was taken off of the ventilator! PRAISE GOD! So many answered prayers! Today, August 11, he just had an oxygen hood put on, due to the doctors believing he has some extra swelling in his throat, which is super normal after being extubated. He will receive a localized steroid and a diuretic to get the swelling in his throat to go down, and to remove some fluid off of his lungs.


We are praying this works to give him some relief today. The doctor said he does not foresee having to intubate Wes again, and that the oxygen hood is not a step back, but completely normal!

Continued prayers for the Eaves’ family as they have been through it all over the past few months! Prayers for little Wesson to continue to be a warrior and fight with all of his might! Prayers that even though this is a lifelong diagnosis, that he will be completely healed both now and in the future! Our God is an Almighty God, and he has certainly been faithful despite a few setbacks! We are trusting that this is God’s Will, and cannot wait to see how God continues to use Wesson for His Kingdom!


From Jordan herself: “I am determined to make Wes’ diagnosis be a difference in this world, while not letting EB define us as a family because he and we are SO much more than EB, but we will be an educational source and light for those who do not know what EB is, or are going through a diagnosis themselves! And I feel like this is the first step.”


All praise and thanks be to our almighty Savior!



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Amanda Vahey
Organizer
Woodbury Heights, NJ

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