Hi my name is Darren and me and couple friends will be doing a charity walk from Eastbourne pier to Hastings pier on sunday 25th january 2026 starting 10.30am. My sister in law has this condition and recently had to have brain surgery. Her brother also has this condition along with her mother who is blind from this condition. I am doing this to try and raise some money which the charity could then use and to raise awareness for VHL.

Want to join me in making a difference? I’m raising money to benefit VHL UK/Ireland, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

More information about VHL UK/Ireland: a.To raise funds for research into von Hippel-Lindau syndrome - VHL and similar genetic conditions like Hereditary Leiomyomatosis and Renal Cell Cancer - HLRCC and Birt-Hogg-Dubé Syndrome - BHD.

b.To support those persons who are receiving or have received treatment for VHL and similar genetic conditions like HLRCC and BHD, and their families and carers.

c.To advance the education of the public in all matters concerning VHL and similar genetic conditions like HLRCC and BHD.

Thanks.

Darren.